Thank you all for your welcome!
Prednisone is tough drug. Unless I go into remission, I'll be on it at at least 5mg for the rest of my life.
I spent a good part of this year at 60 mg. I've been on as much 120 mg.(For 9 months, that was no fun)
I was on Cellcept (Immunosuppressive, that they use in kidney transplants) and it was a better drug, safer, more effective (Same risks, just less risky) than what I'd spent 10 years on ... which was Imuran.
Insurance has suddenly decided that ONLY kidney transplant patients ... period, end of discussion ... can have Cellcept.
So, As of yesterday, I went back on the riskier, less effective Imuran.
($105 for a months supply as opposed to $2000 for a months supply ...it all comes down to $$$$)
My prayer/hope is that the years on Cellcept will have brought enough 'healing' to me that the Imuran will keep me at least status quo. There is no scientific evidence to back that up ... I'm just desperately needing it to be that way.
We'll see over the next year to 18 months (yeah, these drugs take that long to be effective or show they've stopped working ..nice huh?)
I hope my liver tolerates it better this time ... last time I had a few close calls and I'm now on a couple of other possibly liver toxic drugs ...that I wasn't on before ..
here we go round the medical round ....
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