((ProudMomma))

I don't think you have to worry about your children. Your type of amyloidosis does not fall into the category of familial or hereditary types of amyloidosis. From what I understand, I believe your type was caused by a secondary illness which triggered the amyloidosis. I have never seen your type connected to hereditary amyloidosis.

I have the hereditary systemic type, and I've been living with it for 12 years now. My mother and grandmother suffered from it as well, and my son has a 50/50 shot of inheriting this illness. My type also effects the eyes in the form of lattice corneal dystrophy. Doctors thought I only had a few years left of eyesight, but obviously I can still see.

I don't know how else to say this, but I suspect you already know. There is no cure or treatment specific to our illness - mine being hereditary, yours being secondary. We're outside of the box because we don't qualify for stem cell rescue or chemotherapy, like the primary type. The only treatment available is an attempt to treat the symptoms in order to make you more comfortable.

However, I haven't been keeping up-to-date recently on other types beside my own, so I could be wrong about treatment possibilities for you.

Here's a link to some good people in the know when it comes to amyloidosis.

http://www.amyloidosisresearchfoundation.org/

I hope you'll be able to find relief.