I was in a similar situation one time, where I had a lot of difficult medical problems and it was all very confusing....and nothing was getting resolved. I don't know what your insurance situation is, or if you have medical insurance. If you do, you might try calling your health plan, and see if you can be assigned a case manager to help you navigate all of this, and possibly work with these doctors - or refer you to someone who can give you more definitive information if necessary. I was assigned a case manager at one point and it really helped me. She checked in with me periodically, and kept an eye on things, but the best thing of all was that she found the internist I see now, who is such a brilliant physician. He oversees my care now and is the best physician I've ever seen. Sometimes health insurance plans will assign case managers when patients have a lot of health issues going on, and it can really be a big help.

One way or another, I hope you'll find the help you need, figure out what the trouble is, and start feeling better! My thoughts are with you.

Take care,
ErinBear