(((((((((((((((((((((((( everyone ))))))))))))))))))))))))))

Thank you for your responses, and especially for taking the time to read the LONG journey...unfortunately, that's not 1/100 of it...whew.

We're in the process of filling out the questionnaire this weekend, getting pics together and emailing back.

I really want to "get the word out" on this because I feel it's so important and can touch so many more than we're even aware of. Further, when they finally do find this disease with so many of childbearing age, they've really been through it mentally and physically...some suffering permanent heart or liver damage, mental illness, or other damage.

We're blessed in so many ways, and though sometimes it's hard to fully appreciate the blessings when dealing with so much "hard", we do count them for sure.

I'll keep you updated!!!

Thanks again for the support!

KD