I have started keeping a log as it is happening about 3 times a day. Surprisingly it seems to happen in a pattern though I have difficulty figuring out the triggers. The windows that they come at 11am- 1 pm, 3-4:30, then again at 9 pm ish. It is really quite scary as one time I was "sleeping" in and so my husband didn't check on me. It lasted from 11 am till 2pm. It has made me very paranoid about when it will hit again and how to make sure that they know how to deal with it. The thing that really bugs me is that we have had to educate my 15yr old daughter. It could be a conflict with meds or anxiety (of what I don't know as the circumctances change every time.

thank for the input as that helps me to remember that I am not the only one.