Hi everybody. Please excuse my typos as I'm learning how to use a talking computer and have not found backspace tee hee.
I never really posted here much and was scrolling through the forums today and thought it might help. I used to be a moderator here on pc until I went blind seven and a half months ago. I was diagnosed with multiple sclerosis in oh six when the vision in my right eye died. I didn't work for awhile, dedicating my life to sobriety and pc. After about a year and a half I went back to work in a doctor's office, struggling to manage fatigue. I ha been denied sdisability and family had been supporting me.
I loved my job and had just moved into an apt with my bf when the unthinkable happened.
The nerologist said my other eye would be fine bu he was wrong. Back in April my other eye went leaving me blind. I sometimes see shadows and can sometimes make out light and dark, but no more reading, or seeing anything.
I fell into a deep depression, not just from going blind but from leaving here, no longer shooting pool, no longer driving, no more independance.
For people who know me, you know how important my sobriety is to me. I went blind on my three sobriety anniversary. I barely bmade out the three year chip before the vision slowly went. I did not drink.
I was unwilling for a long time to get any training with blind life skills. I could not accept that I would not see. A friend helped me understand that I could accept it just for today, the way I live sober. She ordered me a white cain on the net. I started therapy for grief and loss, and that along wtwith my recovery program, my faith, my friends and my bf, has helped me take the initiative to get my life back.
I began training with the cane and this friday I got a Mac laptop with a reader built into the OS. My friend ca got me a talking ipod nano. I discovered talk radio lol.
Now though, I'm struggling with the fatigue that comesw with MS. Getting more active and taking my life back has its downfalls with how my body can handle it.
I miss being a mod here and maybe one day will be again. Clye er, Clyde and Chalmette called on a regular basis which helped me feel like I was still a part of pc.
Now I'm back and wanted to share my story. Are there any other blind people on the site? I just needed to kind of unload oall that to the community which saved my life....I found pc before I got sober, and I believe that fif I hadn't found pc, I might not have survived long enough to find sobriety.
Any tips on fatigue issues with autoimmune? I know I should go to nerurotalk but I haven't ventured anywhere other than here lol.
Thanks and hugs,
Rayna
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