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Old Jan 18, 2009, 12:11 PM
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lizardlady lizardlady is online now
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Member Since: Nov 2002
Location: Mid World
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Sabby, ther's so much overlap in fibro and CFS symptoms it's hard to tell which causes what. Some/many docs consider them different ends of a spectrum with fibro representing the pain end and CFS the fatigue end. Instead of trying to separate which symptoms comes from which dx I (with my docs) treat the symptoms.

I take Provigil to help with the fatigue and fog. It's actually a med for ADHD, but helps with fibro fog. There's a new med on the market called Lyrica that's suppose to help with the pain of fibro. I tried it, but coundn't handle the side effects. OTC pain releivers like ibuprofen work for some folks to help with the pain. There are other prescription pain meds like Tylenol 3 and Darvocet that work for some.

Some non-medical things I do...

Yoga and Tai Chi on days I don't hurt too much help by gently stretching.

I have an electric heated throw I wrap up in. It is a sanity saver some days.

Soaking in a tub of hot water with minerals designed to ease aches and pains.

I found if I sit for too long I start to hurt. So I try to get up and walk around a little every hour.

For the fog I've learned to write things down. I make lists. I stick posties on things. I have other people write things down when they tell me. I keep a calendar that I call my bible. I'm lost without it.

I'm still struggling to sort out conflicting recommendations for fibro and CFS. Folks with fibro and encouraged to get gentle exercise. Folks with CFS are encouraged to rest. I haven't figured out how to do both.

Hope some of this is helpful.
Thanks for this!
sabby