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#1
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Have been living with depression for many years, but medication never seemed to help, it made my depression extreme. My T, has had a whole re-think and has now diagnosed me with ADHD and a dash of sensory integration issues for good measure. I have not started medicating yet, we are trying a few alternative remedies first.
Is this misdiagnoses common? Have any of you tried AD and found that they made you feel worse? Have you had any luck with the "alternative rememdies"? If you are on meds, how do they make you feel (if i'm not feeling hyper I tend to stress and get anxious ie. Xanax) |
#2
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Wishmouse, what type of antidepressants have you been taking? If you have been taking an SSRI (e.g. Prozac, Lexapro, Paxil, etc.), then it wouldn't help with ADHD symptoms, as you need something that affects the dopamine pathway for that, and those ADs work via serotonin. Wellbutrin acts on dopamine, so it might be a good thing to try if you have both depression and ADHD symptoms. Stimulants like Adderall, Concerta, etc. also act on dopamine, which will help not also with ADHD but with depression. It's a great "secret" that stimulants help with depression, and you will find very few practitioners who will prescribe them for that unless there is comorbid ADHD (because they are controlled substances and addictive, whereas ADs are not). As for anxiety, I haven't had good luck treating it with medication. Buspar didn't help. The smallest dose of Xanax makes me fall asleep. So I rely on other strategies, such as controlled breathing, meditation, soothing mental imagery, etc. Wishmouse, what are sensory integration issues, and how are they managed? Best of luck to you with finding solutions.
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"Therapists are experts at developing therapeutic relationships." |
#3
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Agreed, the SSRI's and Tri-cyclic made me EXTREMEMLY depressed; I tried Wellburtrin which was great initially, but also made me very weepy and emtional. Had negligable results from Lamictal.
Sensory integration issues means that I experience everything, am not able to filter out "irrelevant imput" and am Overly sensitive to touch, movement, sights, or sounds , Everything to the power of 10. Making it impossible to relax or concentrate as everything is a distraction. Am trying a few things to manage it, mainly cutting down on stimulation ie dimming all the lights, increasing temperature, applying pressure (sitting in a highback chair and wrapping a shawl around my shoulders, like a little caccoon), and playing music that is rythmical and consistant (meditation CD's). Doing this at home and work. Am more concerned by ADHD than SID, if I could get that under control then life would be peachy |
#4
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[quote=sunrise;839777]I think misdiagnosis for ADHD is common (and also for other conditions). ADHD and depression and anxiety often travel together. It can take some effort to tease them out. Sometimes the easiest approach is just to try different things and see what works rather than trying to get an exact diagnosis.
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I think that you and I are some of the lucky ones in that we both seem to have good providers who are educated in adult ADHD. The misconception that some people have that stimulants are addictive (vs. having potential for abuse; two diff. things) is widespread enough that it even biases doctors and other prescriber's (including psychiatrists) against prescribing stimulants for ADHD. The ones who think you are a drug addict or that "don't believe in stimulants" oftentimes then prescribe a antidepressant as a first line treatment even if a stimulant isn't contraindicated. I think this can be discouraging if the patient doesn't see a response from the AD, and the patient might then shy away from ADHD treatment and not try anything else. Of course your case is different and you had depression issues and ADHD issues intermingled (as many of us do if we go untreated for most of our life). In my case I have anxiety issues intertangled with ADHD issues. Rarely travels alone is right! Schedule II prescription drugs have potential for abuse, which can lead to addiction(s), but in itself it isn't addictive. It sounds like a semantic distinction, but it really isn't as abuse and addiction are different clinical terms. Anyone who takes a Schedule II prescription drug to abuse it is likely not a person with ADHD. It's not like taking methamphetamines (commonly compared to legal stimulants due to similar chemical compounds), and there are many extended release versions that virtually eliminate the abuse factor. Multiple longitudinal studies have actually shown that children and adults with ADHD who take stimulants are actually LESS likely to become drug addicts if they are treated with a stimulant than if those with ADHD who go without. ![]()
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--SIMCHA |
![]() sunflower55
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#5
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"Therapists are experts at developing therapeutic relationships." |
![]() Simcha
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#6
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I think misdx's happen all the time with ADHD. Mainly because ADHD is not well defined and often causes or is a comorbidity with other disorders such as depression and anxiety.
I do not believe I am currently suffering from depression, but I believe I was experiencing a depressive episode that made my ADHD symptoms no longer manageable with innervention. Now that I've experienced the benefits of medication, I decided to continue with this treatment for now. I think at times (like this week) I experience intermittent sensory integration issues. Wheither these are considered pathological or not... I don't know. Not sure if this is because of my ADHD; but when I am not on medication for my ADHD it is definately harder for me to deal with them. I am on Adderall and I feel... what I consider normal now. When off this medication I tend to zone out and get very agitated when presented with a busy environment. My patience is much improved while on the Adderall. Occasionally I will take a low dose of short-acting Propranolol when I know I am going to face a particiularly stressful situation (like therapy this week). I really don't feel any major difference when I combine these medications. Other than... I don't feel the racing heart and throat restriction as much. I don't feel mentally impaired, more talkative, or more emotional. I don't know if this is a real benefit or just a placebo effect--but whatever--I think it helps.
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"Joy is your sole's knowledge that if you don't get the promotion, keep the relationship, or buy the house, it's because you weren't meant to.You're meant to have something better, something richer, something deeper, Something More." (Sara Ban Breathnach) |
![]() Simcha
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#7
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(((((((chaotic))))))) ![]() That's interesting... I had never heard of Propranolol before (I had to look it up!). Was the Propranolol prescribed on an "as needed basis" to augment your Adderall for your ADHD treatment, or is it for calming you down? Either way, how does the Propranolol affect you after you've taken it (I couldn't tell if you were saying the Propranolol calms you down or what-not). Is your Adderall the sustained release variety? I'm always looking for something better. I like the Dexedrine XR Spansules (for those who might not know, the XR is extended release), but I'm a fast metabolizer, and about half the days of the week it doesn't feel good when it wears off (I can get very hyper and/or slightly agitated). I find it takes about an hour and a half during for the period where it wears off to have those negative symptoms go away. Mostly I try to stay away from people during that time period, but it's not always possible. I take the Dexedrine XR Spansules 30mg in the morning and I can augment with 30mg in the late morning/early afternoon as needed (and usually I do). When I take it, I feel calmer, more able to make decisions, able to prioritize, and my focus is definitely improved. My mood is also better and more even. I am far less impulsive. It doesn't hurt my creativity either. However, I'm a fast metabolizer, the maximum time the benefit from them seems to last is 4-5 hours at best ![]() For me, I also find that maybe a day or two out of the week the Dexedrine XR Spansules isn't as effective. I don't know if that is normal or not. I've never taken anything else for ADHD other than the Dexedrine immediate release tabs (at a lower dose). The immediate release tabs were intended to work faster in the morning (it takes 30-45 minutes for the Dexedrine XR Spansules to kick in), but they made me feel agitated more than increase focus. I think that too, is because I'm a fast metabolizer. I have thought about trying another medication in place of the Dexedrine XR Spansules. I do not want to increase the dose of Dexedrine XR that I take, as I'm not sure that would extend the timeframe the beneficial effects work anyway. I also do not want my body to start to need higher doses for the same beneficial response. Questions for chaotic (and everyone else who is on meds for ADHD): Do you ever have some days where the ADHD medication doesn't work as well as others (include the name of med) ? What other medications have you tried to treat the ADHD, and if so, what works and what doesn't? Does the medication for ADHD you take have any noticeable side effects, and how does it feel when it wears off and leaves your system? How long does the beneficial response to the medication last? What other treatment strategies (including alternative and psychotherapy) have you tried that works/helps?Maybe I'll write another thread post to explore this topic more too. Thanks for your input! ![]()
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--SIMCHA Last edited by Simcha; Oct 22, 2008 at 08:25 PM. |
#8
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![]() I can remember having problems with sensory issues ever since I was three-four years old. In what I've read and in discussions with my T, problems with sensory integration issues are quite common with children and adults who have ADHD. Clothing tags, loud sounds, TV (the sound from commercials are torture for me), tightness/looseness of shoes, collars, clothing and bedding materials, too many people in the same room, etc. are some of the more common stimuli that are agitating to people with sensory issues relating to ADHD. Some people with ADHD also have full blown Sensory Integration Disorder comorbid to the ADHD (that must be pure hell--ack!). Tags on the collar are horrifying for me. As an FYI to those who have the same problem, the Hanes clothing company now makes their clothes TAG-FREE!! WOOHOO! ![]()
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--SIMCHA |
#9
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Hi. I just found this site. Yes, I was underdiagnosed with anxiety/depression for more than 15 years. Zoloft was very helpful but I continued to get and loose jobs due to all kinds of behaviours not explained by anxiety/depression. I never accepted the depresssion diagnosis, I just clung to the anxiety part to explain my crazy happy then scared behaviours. It took poverty and an astute prescribing nurse to actually take the time to observe how I interrupt other speakers, go down long, interesting paths of tangential conversation before returning to the answer to the question originally asked of me. I could not be diagnosed by the HMO doctors I'd been paying for 15+ years AS LONG AS THEY ONLY SPENT 9 MINUTES OF A 15 MINUTE annual appointment speaking with me. So, I continued to take Zoloft for the anxiety/depression as well as the ADHD. Then I was switched to Adderall XR to participate in freebie program, which worked well once we upped the dosage. And now I've just been switched to Vyvanse when the Adderall XR freebie program was discontinued and the Vyvanse program began. I also take Celexa (generic is Cetalopram) for OCD (obsessive compulsive disorder) that was diagnosed once the ADHD was treated. I also take Seroquil at night in order to get a full nights sleep without interruption. I do a good deal of sleeping during the day to compensate and have to use an alarm to wake up and take the Vyvanse (for ADHD & Anxiety/Depression) and Celexa (for the OCD) then go to sleep for awhile until those meds wake me up. Needless to say I applied for SS Disability Insurance and received it within 9 mos of my application. I'm working to overcome past issues with a psychotherapist and I continue to work at my art and writing fully expecting to earn a living within 3-5 years. BRIGHT SPOT: Now that my mind and nervous system have evened out and I'm learning to live a non-chaotic life, I have really come to appreciate my artistic abilities and honor them by continuing to learn new techniques. After 35 years working in an office environment--corporate, small business, non-profit--I appreciate the ability to live within my own mental emotional cycles (the moon, the stars, menses) and NOT the 9-5 that never, ever worked for me no matter how hard I tried. Time for this ADHD'er never adds up and plays out the way it does for other folkes. I've lost a few friends who didn't believe ADD/ADHD was REAL but. after reading great books and receiving links to ADD sites through ABOUT.com, I KNOW it's very real and I'm doing the very best I can every single day to live this life as I've been given it. DID THIS HELP?
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![]() multipixie9, Simcha
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#10
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Thanks Simcha.I had to include this... my inner feral child needed to feel some no-touch love this week. Quote:
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I don’t notice any major difference, however when I was testing it out over the summer I took it once before doing my daily walk, and I felt like I was dragging a bit at the end. …Not a good idea to take a beta blocker and then go out an exercise… It was low level exercise…and I knew I could stop anytime if I wanted to. I’ve only used my Propranolol anxiety treatment a few times, one being last session. It does seem to help with my physical symptoms. They don’t totally go away but they seem more manageable. The last time I tried to talk about a particular issue in therapy…I thought my heart was going to bust right out of my chest and I was dry heaving in the parking lot afterward. Last week I still felt very anxious…but not where near this ways. I will caution people though…at one point in the management of my BP we tried switching me to a long-lasting –higher dose of Propranolol. My candyman figured… hey why not address both your anxiety and your BP issue with one medication. This worked well for me, EXCEPT for two occasions when I drank some alcohol (1 glass of wine, and the other time it was a large glass of Foster’s Lager). For me Propranolol and even just one glass of alcohol DO NOT MIX. I crashed hard about 30 minutes after drinking… felt like MAJOR depression. I would not recommend doing this. Quote:
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Actually the whole reason I visited this forum today was because …somehow the pharmacy companies have gotten my email address…(hopefully not from PC!) and I was sent an article/advertisement from Medscape.com on DAYTRANA. This apparently is a “once-daily transdermal patch formulation of methylphenidate, available in 10 mg, 15 mg, 20 mg, and 30 mg dosage strengths, provides day-long symptom control.” I know nothing about this medication but thought I would check to see if anyone was using it.
__________________
"Joy is your sole's knowledge that if you don't get the promotion, keep the relationship, or buy the house, it's because you weren't meant to.You're meant to have something better, something richer, something deeper, Something More." (Sara Ban Breathnach) |
![]() Simcha
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#11
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Welcome to PC!
Simcha's Questions: (my answers in red) Do you ever have some days where the ADHD medication doesn't work as well as others (include the name of med) ? What other medications have you tried to treat the ADHD, and if so, what works and what doesn't? Does the medication for ADHD you take have any noticeable side effects, and how does it feel when it wears off and leaves your system? How long does the beneficial response to the medication last? What other treatment strategies (including alternative and psychotherapy) have you tried that works/helps?
__________________
"Therapists are experts at developing therapeutic relationships." |
![]() Simcha
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#12
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__________________
"Therapists are experts at developing therapeutic relationships." |
#13
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I always knew you were really a feral child at heart, chaotic! ![]() ![]() Quote:
Yeah, I'd be scared to take it myself, but I'm hesitant with most pills that can affect my cardiac system. Since I don't have cardiac problems, I don't want to create one either. I've had some physician experiences that I didn't care for (regarding asthma that was diagnosed in May). I'm not so sure they all take the time to properly evaluate you, as they tend to prefer the "hurry up rush rush" appointment these days. IMO, they don't always know what is best. I usually run things through with my T to evaluate if I should take something or not. I don't always think logically when it comes to trusting physicians. Quote:
Have you made your T aware of the extent to which you get these anxiety reactions after difficult sessions? It sounds like you are experiencing a panic attack during these episodes. I would tell him in detail if you haven't already. Talking about the symptoms and precipitors to panic attacks can be very difficult, but must be done in order to overcome them. I have Panic Disorder myself; not everyone who gets panic attacks has Panic Disorder, as they can happen as stand-alone episodes, or due to a specific phobia or medical condition (probably other reasons as well). Hopefully you don't have Panic Disorder, but either way, panic attacks are terrible. Every time you experience one, it reinforces the tendency to get one (physiologically and mentally). Better to get to the source and kill it altogether---have you talked to your T about this? Quote:
How long does the beneficial effects of the Adderall XR last for you? Do you have negative side effects that are notable? Do you have negative side effects when the drug wears off for the day? Quote:
LOL--- that is really crappy about the pharmacy companies now spamming you. I doubt it was PC; I imagine the spam came from one of Medscape.com's advertisers (or affiliate's advertisers). I haven't known anyone on Daytrana, but I hear that it is optimal for children who have a hard time taking pills for one reason or another. All I really know off the top of my head about it is that methylphenidate is the drug in Ritalin (and one of the drugs in Adderall), and it is a stimulant. If the ad said "day long symptom control", I would assume that it might be a long-acting extended release form of the methylenphenidate, but don't take my word for it. I'll have to look it up now when I'm done browsing on PC (I try to do one activity at a time now ![]() ![]() ![]() ![]()
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--SIMCHA |
#14
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Dexedrine XR is supposed to last up to 8-10 hrs (some publications I read said up to 6 hrs), but I really don't think the drug manufacturers can support their claims. There is no way to measure the timeframe the beneficial effects last (not the withdrawal when the drugs wear off or the side effects), as everyone's response to stimulants is trial and error, making the responses quite variable. Since the response is variable (and that fact is well known), how is it they came up with this magical timeframe? Quote:
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--SIMCHA |
#15
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Simcha, you are a wealth of information on ADHD.
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On the subject of different manufacturers of the same drug, it is good to stick with the same one. For example, my PNP won't allow me to get buproprion (generic wellbutrin) from a particular manufacturer, as there are many reports of it being ineffective. She writes this into the prescription. I have been getting only bupropion made by Watson, and this works well for me. If I were to switch to a different manufacturer, I might have to start from square 1 on finding the right dose, and I don't want to hassle with that. It's not only time-consuming, but it's my health! Quote:
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__________________
"Therapists are experts at developing therapeutic relationships." |
#16
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RE: Anxiety issue
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Yes and No. Yes I have told her about the anxiety I experience during and after sessions. I've even mentioned once that my doctor gave me something to take if I want to. However, I have never disclosed to her when I've medicate for a session. I also don't tell her when I feel my throat tightening or my heart start racing. I think I avoid disclosing this because I'm afraid. I know it is irrational to be afraid ..but I am. Quote:
Simcha your point about getting to the source is well taken though. I don't think I have a Panic disorder.... I think I have mental disorder that then causes me to panic. ![]() RE: Adderall XR: Quote:
I will say though that if I skip a dose...I usually can function fairly well for most of the next morning. By the afternoon though is when I start floating off, struggling to stay motivated or focused on one thing, or notice that my tolerance for things is diminished. Quote:
__________________
"Joy is your sole's knowledge that if you don't get the promotion, keep the relationship, or buy the house, it's because you weren't meant to.You're meant to have something better, something richer, something deeper, Something More." (Sara Ban Breathnach) |
![]() Simcha
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#17
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((((((((((chaotic-feral child))))))))))))
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I wonder if the medication affects the quality of your sessions? I'm not saying it does, just something I was wondering. Quote:
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I'm sure you've noticed by now how the anxiety symptoms makes the ADHD exponentially worse. Quote:
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I dream of this scenario!!!!!!!! Of course, I think the anxiety has interfered with the effectiveness of my prescription to some degree. It's something I'm going to talk about on Monday with my T. Dexedrine is rather expensive to justify not getting a complete response, and I don't want to up the dosage. Quote:
Hmm, if it's hormonal---is it normal hormonal flutuations, or related to "the change"? I don't think it's the Adderall---Anxiety disorders can cause that to happen for no obvious reason whatsoever, and I've noticed it time to time with me. It's strange. I don't have it happen very often anymore.
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--SIMCHA |
#18
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Then their time frames they give (that are assumed to indicate efficacy) don't mean anything at all. Half life of the chemical is sooooo unimportant in determining efficacy. Those tricksters. ![]() Quote:
Interesting; I read something to that effect (and discussed it with my T) not too long ago. When I asked the pharmacist about it, he denied there was any difference between manufacturers of the same drug. Quote:
Your unlike most people, and to your benefit----you take a proactive approach to your own health. If more people were active partners in their own healthcare like you are, then people would see better responses to medical (and by extension, psychological) interventions. Quote:
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Haha! ![]() ![]()
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--SIMCHA |
#19
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YES, when I am not on medication and the world gets really busy my anxiety worsen. I tend to get agitated and aggressive more so than fearful. Now that I think of if my T sessions are usually in the afternoon when the Adderall is likely at its highest level. This probably helps me mentally but I wonder if this contributes to my physical symptoms? Hmmmm I might try changing when I take it this week to see if it has any affect on my anxiety symptoms during therapy.
__________________
"Joy is your sole's knowledge that if you don't get the promotion, keep the relationship, or buy the house, it's because you weren't meant to.You're meant to have something better, something richer, something deeper, Something More." (Sara Ban Breathnach) |
#20
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The Adderall probably doesn't contribute to your anxiety if the anxiety predates the anxiety symptoms, but it is a possibility. Usually for us ADHD people, the stimulants make us actually able to slow down our minds long enough to complete thoughts and follow through, also making us physically calmer and more awake. The only problems I have with the stimulants during session is if the stimulants are wearing off for the day. I purposefully try not to schedule appointments when I know it will be during that timeframe. The Adderall in your case is pretty new (if I remember right), so I really don't think it agitates your anxiety per se, but as I understand it, Adderall can have a side effect of giving stomach upset symptoms and nausea (commonly). Interesting... maybe give it a try without the Adderall--but I'd first ask your T what he thinks. ![]() I really should try a different drug to see if it is smoother for me, but I'm always afraid to mess around with a medication that actually works on more days than not. I've also been on it for about two years now, and I'm sure there would probably be some minor withdrawal symptoms involved due to the length of use. I'm writing myself a note to talk to my T about that.
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--SIMCHA |
#21
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Wow, I've learned so much just from this line of postings - definitely am visiting the dr. soon concerning my very obvious ADHD issues - Thanks so much.
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