[*Beth*]

For a long time I have been struggling with tremors from my meds, mostly hand tremor. Neither Cogentin nor Proponalol have helped at all. My pdoc has prescribed Amantadine, as it is an off-label treatment for movement disorders.
Does anyone have experience with Amantadine?

[swimmingly]

I do, Beth. I was in the hosp in March and was given Amantadine as a counter-med to fight against leg-tremors that were caused by another medicine (I cannot remember its name, I'm sorry. I'm still having memory issues from March). My personal experience with Amantadine was that after a day or so I noticed a difficulty speaking properly. I was mumbling, and complained about it during inpatient. I was told my by IP doctor that I was imagining this. It took two days of persistence to make my case that this was not something I was making up. I was able to get computer time and researched all my meds and then made my case to another doctor who was more reasonable and heard me. That is indeed one of the side effects of Amantadine, albeit one of the lesser ones.

This said, Amantadine did work on the tremors, I just couldn't deal with the side effect that I experienced. I hope that your experience is very different than mine!

This is the first time I heard of this med. BethRags, thanks for bringing this up. Swimmingly, thanks for sharing about your experience. That does sound concerning!

BethRags, please do share your experiences with it if you try it. Propranolol did nothing for my past akathisia either (I do still take it, but for something else). Cogentin gave me severe constipation. Luckily, I no longer have akathisia. I was taken off those meds. It was particularly horrible when I got it on Geodon. I hope I never get it again, but am curious about other possible akathisia meds.

[*Beth*]

Originally Posted by swimmingly

I do, Beth. I was in the hosp in March and was given Amantadine as a counter-med to fight against leg-tremors that were caused by another medicine (I cannot remember its name, I'm sorry. I'm still having memory issues from March). My personal experience with Amantadine was that after a day or so I noticed a difficulty speaking properly. I was mumbling, and complained about it during inpatient. I was told my by IP doctor that I was imagining this. It took two days of persistence to make my case that this was not something I was making up. I was able to get computer time and researched all my meds and then made my case to another doctor who was more reasonable and heard me. That is indeed one of the side effects of Amantadine, albeit one of the lesser ones.

This said, Amantadine did work on the tremors, I just couldn't deal with the side effect that I experienced. I hope that your experience is very different than mine!

Thank you for sharing your experience, swimmingly. Not being able to speak properly sounds like a scary and unpleasant experience. Amantadine seems to have a number of side effects that are odd. I have my fingers crossed for the better effects of the medication.

[*Beth*]

Originally Posted by BirdDancer

This is the first time I heard of this med. BethRags, thanks for bringing this up. Swimmingly, thanks for sharing about your experience. That does sound concerning!

BethRags, please do share your experiences with it if you try it. Propranolol did nothing for my past akathisia either (I do still take it, but for something else). Cogentin gave me severe constipation. Luckily, I no longer have akathisia. I was taken off those meds. It was particularly horrible when I got it on Geodon. I hope I never get it again, but am curious about other possible akathisia meds.

Apparently Amantadine is a medication used for Parkinson's, but is also used for akathisia, movement disorder/tremor, and for the fatigue of multiple sclerosis and chronic fatigue syndrome. It would be really great if the med helps offset the fatigue that is a side effect of psych meds.

I'll definitely share my experiences with Amantadine.

[MaigerTom]

Hi there. I’m brand new here and I was looking for Parkinson’s related information and found your post. I take 100mg 3x a day of Amantadine and 1mg of Pramipexole 3x also. These drugs help my tremors. I have also found that it was developed a long time ago as an antiviral and that currently there are studies showing it may have an effect on Covid-19. Any how I haven’t noticed a side effect yet for me

[*Beth*]

Originally Posted by MaigerTom

Hi there. I’m brand new here and I was looking for Parkinson’s related information and found your post. I take 100mg 3x a day of Amantadine and 1mg of Pramipexole 3x also. These drugs help my tremors. I have also found that it was developed a long time ago as an antiviral and that currently there are studies showing it may have an effect on Covid-19. Any how I haven’t noticed a side effect yet for me

Hi Tom! Is your tremor the result of a med side effect?

I recently read about Amantadine being an anti-viral. Really interesting.