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#1
Feb 16, 2016, 06:49 PM
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I'm home, in my pajamas and cuddled up with my orange cat who may never stop purring. I'm exhausted after missing my naps (all I really have wanted to do the last few days is sleep and they let me because they feel I really need it) and a little worried that I haven't heard from the pharmacy after the resident wrote the orders for gabapentin incorrectly (he wrote two different orders, one for the daytime doses and another for the night doses and he has to correct that so they can combine it before they can fill it. If they don't by tomorrow afternoon I may have to have them fill one bottle and deal with it when that runs out. I can make do tonight and probably part of tomorrow but it's just tricky, especially since I don't have an easy ride tomorrow and am not sure I"ll be driving. I sure couldn't have been safe today.
I'm on 175 mg of Clozaril twice a day, so 350 mg total. That's more than my pdoc had been aiming for but it is working and every day I'm feeling a little better. I think I finally started feeling it when I was on 250 mg divided. I could really do without the drooling at night (common side effect); it's gross. I may need a medicine to help with that. But otherwise it really hasn't had side effects. I'm tired and sleepy a lot but it doesn't seem to be from the clozaril as much as the clozaril plus gabapentin plus just being exhausted after so long without a decent week or even string of days of sleep So glad to be home. I'm hoping to take meds about 8:30 and sleep until morning.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
 Anonymous45023, cmc3663, gina_re, jacky8807, LorrieTorrie, mattjstead, Mrs. Mania, Nammu, Pastel Kitten, raspberrytorte, Wanderlust90
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 gina_re, Nammu
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#2
Feb 16, 2016, 06:54 PM
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Welcome back, I'm glad it worked out so well. Hope the med order gets straightened out pronto.
__________________
Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
| BeyondtheRainbow
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#3
Feb 16, 2016, 06:55 PM
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Happy you're home rainbow and feeling better!
__________________
The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "What if I can't get up and stand tall, What if the diamond days are all gone, and Who will I be when the Empire falls? Wake up alone and I'll be forgotten." 😢 - sleep token |
| BeyondtheRainbow
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#4
Feb 16, 2016, 07:34 PM
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Happy you're home and very happy you're feeling better!!!
__________________
Of course it is happening inside your head. But why on earth should that mean that it is not real? -Albus Dumbledore That’s life. If nothing else, that is life. It’s real. Sometimes it f—-ing hurts. But it’s sort of all we have. -Garden State |
| BeyondtheRainbow
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#5
Feb 16, 2016, 08:57 PM
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Glad to hear you're home!
__________________
Bipolar Disorder I Lithium 450mg Zyprexa 5mg Citalopram 20mg |
| BeyondtheRainbow
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#6
Feb 17, 2016, 02:57 AM
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Great news...well not about the script issues, but being home again is awesome. Keep us posted on how your tracking day to day, esp. with the Gabapentin script and Clozaril side effects. Wishing you the best.
__________________
Bipolar 1 with psychotic features PTSD  "Phew! For a minute there I lost myself." 'Karma Police' by Radiohead |
| BeyondtheRainbow
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#7
Feb 17, 2016, 10:05 AM
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Welcome home Rainbow! It's great to hear you're feeling better and I hope that you continue to feel better and better. We've all missed you.
__________________
Do at least one thing you enjoy each day.   Dx: BPD, OCD, GAD, and PTSD traits Rx: Lamictal 200mg and 0.5mg Ativan as needed "Now I can see all the colors that you see." |
| BeyondtheRainbow
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#8
Feb 17, 2016, 06:22 PM
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How you doing today?
__________________
Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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#9
Feb 17, 2016, 06:30 PM
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Tired!!!!! I slept from 9:30 pm until almost noon and then napped almost all afternoon with intermittent awake times. I've done nothing but enjoy the quiet and sleep. I think the clozaril has finally reached a dose it is making me sleepy combined with just needing to sleep because it had been so long and adjusting to my much higher bedtime gabapentin dose. Plus, it is quiet and nobody is checking on me every 15-30 minutes. I know that I'm always tired after a hospitalization but this one may win for the most tired.
Hopefully I can get through this soon b/c next week I have psychiatrist monday, fillings tuesday and wednesday and therapy thursday. It will all be covered under medicaid this way so that's good but it's a big week when there are so many med changes and if I'm this sleepy. I think they need to change my clozaril dose to put more at night and less during the day. I'm sure my pdoc will do that Monday. Tomorrow is therapy.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| Nammu
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#10
Feb 17, 2016, 06:35 PM
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So glad you are home with new meds. I hope you feel lots better soon.
Cuddle the cat some more, it will help. 
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#11
Feb 17, 2016, 06:36 PM
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Oh a lot of people drool at night, not even as a side effect from meds. I know I do. I know, not sexy.
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#12
Feb 17, 2016, 06:38 PM
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This is not regular drooling. I realize everyone drools at night but this is huge quantities of drool. I can't describe how much it is aside from my shirt is soaked, my pillowcases are soaked, etc. I'm drooling some during the day but can catch it. The night drooling I can't catch and so I'm very wet. It's a well-known side effect.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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#13
Feb 17, 2016, 06:57 PM
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I LOATHE the drooling! I wake up and the shoulders on my shirt will be soaking wet; my hair in one place is wet and there is a puddle on the pillow. It isn't cause for stopping the med but it does make me feel disgusting!
I am so glad you are home and well! You seem to be doing better. I am sooo happy for you and your animals (and us!)!
__________________
***** Every finger in the room is pointing at me I want to spit in their faces then I get afraid of what that could bring I got a bowling ball in my stomach I got a desert in my mouth Figures that my courage would choose to sell out now Tori Amos ~ Crucify Dx: Schizoaffective Disorder |
| BeyondtheRainbow
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#14
Feb 17, 2016, 07:06 PM
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They can treat the drooling with meds. I won't do that unless I am drooling more than the tiny, easily dealt with amount during the day that I have now. My pdoc told me to not expect that to be a huge issue because she planned to go to only 200 mg and that would have fewer side effects but then I needed 375 (maybe I can come down some but I doubt it will be to 200).
I am feeling better. I hope it keeps improving. I have long experience that makes me wary but every little bit is better than I was a week ago or 3 weeks ago. For today I just wish I weren't quite so tired. That makes me anxious that I'm going to have trouble with sedation after all. In the hospital I was doing fine with waking up and eating breakfast/taking AM meds and then sleeping about an hour/ 90 minutes then I was up for 3 or 4 and then napped a couple then did supper and stayed up until after 9:30 meds and a shower and then slept about 11:30-8 with a few wake-ups the last few days. So I was asleep a good bit but not like today. Hopefully it's just a matter of catching up.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| cashart10
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| cashart10
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#15
Feb 17, 2016, 10:31 PM
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I'm glad you are home and enjoying your kitties! I'm sure they are happy you are home too! I'm glad that it seems like the meds are working so far! Keep us updated!
__________________
Hashi/Bipolar Mom 300mg Lamictal 1800mg Gabapentin 10mg Memantine (weaning off) .6mg Clonidine (for sleep and anxiety) 40mg Propanol (for sleep) 3 mg Xanax 10mg Saphris |
| BeyondtheRainbow
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#16
Feb 17, 2016, 10:39 PM
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So far I've spent my time home sleeping. It's so nice to have my own bed, the dark that goes with living where I do, and my kitties. I also have a lot of sleeping to catch up on. I just seem to be trying to do it all at once.
I will say that gabapentin was an absolute life saver this last 10 days. I was allowed to increase my doses as I needed to and it got me through without any horrible meltdowns except once when I was treated unfairly and another time I just lay in bed crying for no reason. It is definitely good for anxiety. I have to go now in order to take it in fact; it wasn't in my pill box b/c I'm waiting to hear from CVS that I can pick it up and the prescription error is fixed. Until then I'm using what I had from before. But I'm pretty impressed I made it through without something stronger. Apparently my hospital is very big on a combination of gabapentin and hydroxyzine for anxiety and the combination worked very well for me,probably better than benzos. I used 1 mg of klonopin a few times and my usual klonopin at bedtime but for the most part it was that combination.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
| Nammu
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#17
Feb 18, 2016, 03:26 AM
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Welcome home!
 
__________________
I used to rule the world Seas would rise when I gave the word Now in the morning, I sleep alone Sweep the streets I used to own I used to roll the dice Feel the fear in my enemy's eyes Listen as the crowd would sing Now the old king is dead! Long live the king! One minute I held the key Next the walls were closed on me And I discovered that my castles stand Upon pillars of salt and pillars of sand |
| BeyondtheRainbow
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#18
Feb 18, 2016, 03:36 AM
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Welcome back!
__________________
Dx: Bipolar II, GAD, past substance abuse, temporal lobe epilepsy. Rx: Lamotrigine 125mg, Sertraline 50mg, Clonazepam 0.5mg prn. |
| BeyondtheRainbow
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#19
Feb 18, 2016, 08:16 AM
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I'm so glad you kicked your massive dose of seraquel.
Will you return to work?
__________________
 Bipolar 1Day Vraylar 3 mg. Wellbutrin 150 Night meds Temazepam 30 mg or lorazepam Hasn't helped yet. From sunny California! |
| BeyondtheRainbow
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#20
Feb 18, 2016, 10:55 AM
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Welcome home!
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| BeyondtheRainbow
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#21
Feb 18, 2016, 03:26 PM
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I'm on SSDI. It would take a miracle for the clozaril to work well enough for work to be an issue ad I'm not sure I'd go back then because work was a big problem when I did it. I loved it but it just wasn't good for me.
__________________
Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2.5 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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#22
Feb 18, 2016, 03:32 PM
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Welcome home and glad thing ate going well for you hugs!
Sent from my XT1058 using Tapatalk
__________________
Current Meds Lamictal 200 mg x2 Seroquel 100 mg |
| BeyondtheRainbow
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