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99fairies
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Default Feb 13, 2018 at 12:30 PM
  #1
I know you're all pretty sick of reading about this, but my side effect med wasn't taking the pain away but it was taking the edge off. Now I'm out and everyone is out. The drug company, the pharmacies, none...at all! No one has any idea when they will be in again. So here I lay, wanting my meds.
I'm just hoping the splitting of the geodon helps...not so far.

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Last edited by 99fairies; Feb 13, 2018 at 12:45 PM..
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Default Feb 13, 2018 at 12:47 PM
  #2
Not sick of reading about it. Happy you are comfortable sharing. Sorry about the meds as I know how awful this is for you. Hugs my friend.
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Default Feb 13, 2018 at 12:53 PM
  #3
I don't understand why the pharmacy can't keep it in stock if you order it every month.

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Default Feb 13, 2018 at 12:57 PM
  #4
I don't know either.

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Default Feb 13, 2018 at 03:35 PM
  #5
Just found out that the drug company isn't producing anymore of my med for 12 months. I don't know what to do.

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Default Feb 13, 2018 at 04:49 PM
  #6
oh man. that's rough. i don't have any suggestions, except maybe talk to a doctor about...some kind of replacement, or something to at least take the edge off for a while...
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Default Feb 13, 2018 at 05:18 PM
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My pdoc said I tried everything thats available and procycladine is the only one that works for me.

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Default Feb 13, 2018 at 06:02 PM
  #8
Maybe try another AP medication at a low dose?

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Default Feb 13, 2018 at 06:12 PM
  #9
Geodon works well for me. I'm gonna cut my dose in half and see if it helps.

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Default Feb 13, 2018 at 06:23 PM
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My pdoc said the only AP that helps dystonia is clozapine. I gained 50 pounds on that shiit. I finally lost those 50 pounds and I don't want to put it back on. But I dont want to go through this pain for an entire year, so I need to decide.

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Default Feb 13, 2018 at 06:44 PM
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Have you checked using a Canadian pharmacy ?

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Default Feb 13, 2018 at 06:51 PM
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I live in Canada.

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Default Feb 13, 2018 at 07:13 PM
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Could it be that the generic, procyclidine, is not available but the name brand Kemadrin is?

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Default Feb 13, 2018 at 07:39 PM
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Our insurance will only cover generic. We don't have the money to pay out of pocket. I just called my pharmacist and he said they don't make Kemadrin anymore. This is very frustrating.

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Default Feb 13, 2018 at 07:59 PM
  #15
That really sucks.

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Unhappy Feb 13, 2018 at 08:44 PM
  #16
I am feeling sorry for you.
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Default Feb 13, 2018 at 08:52 PM
  #17
I looked up dystonia and diet and it said to stay away from most carbs...to lessen the inflammation.And fasting is good as well. So if I can stick to this diet hopefully I will notice a difference soon. I don't know what else to do. But I'm desperate, so it's worth a try.
It also said that fatigue and stress makes it worse. Which sucks cuz I stress out all the time.

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Red face Feb 13, 2018 at 09:57 PM
  #18
so splitting the doses of the geodon did not work?
I take 80mg in the morning and 80 at night
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Red face Feb 13, 2018 at 09:58 PM
  #19
Quote:
Originally Posted by 99fairies View Post
I looked up dystonia and diet and it said to stay away from most carbs...to lessen the inflammation.And fasting is good as well. So if I can stick to this diet hopefully I will notice a difference soon. I don't know what else to do. But I'm desperate, so it's worth a try.
It also said that fatigue and stress makes it worse. Which sucks cuz I stress out all the time.
So no more slim fasts...you need to eat real food.
bizi

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lamictal 2x a day
haldol 2x a day
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klonipin , 1mg at night,
fish oil coq10
multi vit,, vit c, at noon, tumeric, caffeine
Remeron at night,
zyprexa,
requip2-4mg





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Default Feb 13, 2018 at 10:13 PM
  #20
I do need to eat more. I passed out tonight. Could be from the pain or it's cuz I'm not eating enough.

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