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Old Mar 23, 2019, 06:51 PM
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Daonnachd Daonnachd is offline
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I get ECT treatments every four weeks. In between the treatments I have a permanent, low-grade headache. It's almost not there until I nod or shake my head. I fear it's a result of the ECT. I also fear telling my doc lest she stop my treatments. I desperately need to continue.


Can anybody relate to the permanent ECT headache?
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  #2  
Old Mar 23, 2019, 08:24 PM
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Wander Wander is offline
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I’ve had a lot of ECT but not like the regular maintenance that you have. I’ve had bad headaches after but they went away by the end of the day. What you’re experiencing could be serious so I suggest you talk to your doctor despite your fears. I hope all goes well.
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Old Mar 23, 2019, 08:34 PM
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Nocalove Nocalove is offline
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I had 6 ECT Treatments. I had a horrible headache the first time, but after that I didn't have any.
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Old Mar 23, 2019, 10:07 PM
Polibeth Polibeth is offline
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I've had tons of ECT and still continue to get maintenance treatments. I haven't had experience with headaches except right around treatment time. I have them give me toradol in the IV prior to the ECT which has drastically reduced the headache issue.

I know the feeling of "uh oh something works and the doc might not like this"
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Old Mar 24, 2019, 09:40 AM
Gabyunbound Gabyunbound is offline
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I can't relate to ECT, but just wanted to chime in and say that maybe they can give you some medication for the headaches: either through the IV to prevent them, or for afterwards. If this is possible, then you wouldn't have to worry about them wanting to stop the ECT. I suspect that headaches post-ECT are pretty common, so they must have some sort of treatment for them?

Good luck with this, and I hope all will be resolved!
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Old Mar 24, 2019, 08:31 PM
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~Christina ~Christina is offline
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Pre medicating would probably make all the difference.

As mentioned Toradol might be a good place to start.
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Old Mar 24, 2019, 08:44 PM
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Daonnachd Daonnachd is offline
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I already get Toradol. It helps keep the immediate headache at bay. What I'm asking about here and now is a low-grade headache which lasts weeks and flairs the worst when I shake my head no or nod yes. I also experience additional pain when walking down stairs because of the jarring effect.

But it doesn't sound like anybody here is having or has had this sort of experience. I'm stuck trying to decide if I'll tell my doc about it before I get my ECT this Friday.
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Old Mar 24, 2019, 08:53 PM
tecomsin tecomsin is offline
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It would make sense to tell your doc.
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Old Mar 24, 2019, 09:00 PM
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Daonnachd Daonnachd is offline
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Quote:
Originally Posted by tecomsin View Post
It would make sense to tell your doc.
Yeah, I know you're right, but I worry that my doc will send me up for some imaging tests of my brain. It would likely postpone the ECT.
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