tardive dyskinesia

I'm sure there are others who struggle with this would like to connect with you. I've had it for about a year and a half, but no one took me seriously until I saw a new pdoc. It started soon after I started taking Depakote. I got off of it pretty quick and the symptoms got better but didn't go away entirely. I have just been put on Zyprexa and I'm a little concerned.

Anyway, I would like to hear your stories and if you found anything that helps.

Thanks, Gayle

i had facial tics and such...from 'atypicals,' but probably because the atypicals were combined with too many other things, including stimulants.

some people will call this quackery, but antioxidants seem to have taken care of it for me. Its based on Orthomolecular psychiatry, which started in the 50s, around the same time Thorazine started flooding the state hospitals. high dose vitamin E (I use natural form), high dose C, b-100 complex, additional B3 (I use niacinamide), melatonin at night if needed. Other stuff, too, if one feels like it...now and then, I'll add in alpha lipoic acid. It recycles other antioxidants and is an antioxidant in its own right, too. Green tea extract, grape seed extract, taurine, NAC, selenium, zinc.

there are some FDA-approved options available, now, but they're $$$$ and getting coverage can be a problem. next to clozapine, seroquel is apparently still regarded as the least toxic antipsychotic, when it comes to TD. Its low potency (like Thorazine), and low(er) potency agents are usually associated with less TD. Fun fact: if doctors hadn't gone so crazy with the dosages of Thorazine back in the day, it wouldn't have caused so much TD...300-600mgs/Thorazine per day is about all most people could possibly need, and it doesn't seem to cause TD any more often at that dose than reasonable doses of risperidone.

manganese has been used in Orthomolecular circles to prevent TD and suppress/treat established cases, all by itself. Me, personally...I'd mix it in with other stuff, just to cover all the bases.

sorry you're suffering. :-( hope this helps.

Thanks, I will check into your suggestions. I know vitamin E is a problem, but maybe some of the others will be okay. I'm taking warfarin and there are so many things that affect my INR. I will check with my doctor and see what I can take.

I had it after being on the max dose of Invega Sustenna for many years, I ended up getting off that med and the TD went away after while, I take different meds now, and am hoping to not experience it again, thankfully it wasn't permanent the first time. I've read that there are meds out there that help with it now, something called ingrezza or something like that? I don't know much about it though, I hope you don't have to deal with that again

I got rid of it in 2006/2007 when I was having some really awful facial tics. I think I was on a dose of Seroquel at the time. I quit taking the AP, and took huge daily doses of excellent quality vitamin E.

Unfortunately, I'm not sure if I could go off my AP now without suffering some bad symptoms. The only constant movement disorder I have now is tremors in my left hand. And every few days, eye symptoms.

Don’t want to hijack thread so a quick question: do you also take N-AcetylCysteine? It’s the largest antioxidant precursor.

Quote:

Originally Posted by Pookyl Don’t want to hijack thread so a quick question: do you also take N-AcetylCysteine? It’s the largest antioxidant precursor.

No, I haven't taken any of that.

Quote:

Originally Posted by Angelique67 I got rid of it in 2006/2007 when I was having some really awful facial tics. I think I was on a dose of Seroquel at the time. I quit taking the AP, and took huge daily doses of excellent quality vitamin E. Unfortunately, I'm not sure if I could go off my AP now without suffering some bad symptoms. The only constant movement disorder I have now is tremors in my left hand. And every few days, eye symptoms.

That's encouraging, thanks.

I don't have much to add. Just wanted to send you my thoughts and best wishes, @gayleggg! I hope things will get better soon and that you'll heal REALLY quicky. Sending many safe, warm hugs to You, @gayleggg, and ALL Of Your Loved Ones! You're in my THOUGHTS and PRAYERS! Keep fighting as you always do and BE PROUD OF YOURSELF for the progress you're making ENTIRELY ON YOUR OWN!

im reviving this thread...because I can. :-)

10mgs/melatonin at night has been recommended by some 'alternative health experts' to help those dealing with TD. I know this because I can put my 'obsessive tratis' to good use. anyway...

taurine has been better for me than nac was....its more calming than B3, and high doses supposedly have all kinds of benefits...plus its cheap. downside: the empty stomach thing, kinda...lame.

gingko biloba has been studied a bit. Suntheanine helped me tremendously with anxiety, then i found out its also a potent antioxidant...its a patented version of l-theanine.

ok. hope this helps a bit. :-)

I have a hand tremor that remains quite severe. It's embarrassing and difficult.

I’ve been put on high blood pressure medication (Atenolol) and a pleasant side effect is that my hand tremor is completely gone!