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fern46
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Default Nov 17, 2019 at 06:08 PM
  #61
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Originally Posted by BirdDancer View Post
The stress experienced by my family has just GOT to ease!!!! My brother is in the ER right now diagnosed preliminarily with a-fib. My sister is with him. I just got back from Target and other stores buying stuff for my dad for the assisted living.

Update: My sister said that my brother has congestive heart failure. They will be doing a special echocardiogram tomorrow. He'll need to be under general anesthsia for it since they are sending some kind of thing down his throat. They are apparently going to give his heart some kind of shock to get his heart beating properly again. This is just terrible!
So very sorry to hear about your brother BirdDancer. You are in my prayers. May your family find some sense of peace again soon.
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Default Nov 17, 2019 at 06:12 PM
  #62
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Originally Posted by Jennifer 1967 View Post
Christina - I think you are right and it’s time to call in the tdoc and pdoc since today made the fourth time I couldn’t make it to see M. I think I’ve been putting it off because I can’t afford it. I really was thrilled the other day to get those coats from my brother because I didn’t have one and couldn’t afford it. I know you know how that is.

Between the co-pays for these specialists I’m seeing and the upcoming co-pay for the surgery on my pinched nerve, I’m tapped out. I’ve been hoping it would get better on its own without trying to find the money for this. I’ll try to work something out since it would be cheaper then IP.

Thank you for your support and concern. I appreciate you.
Thinking of you. I know this has been a rough couple of weeks. I agree with your call that seeing your doc would be much cheaper than an IP stay. This is especially true if you factor in the emotional costs.

Stay strong Jennifer. You have a beautiful spirit and I am hopeful you will feel much better very soon.
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Default Nov 17, 2019 at 06:55 PM
  #63
Oh, Birddancer so sorry to hear about your brother. Mum had a massive heart attack years ago and with rehab and the amazing technology and meds they have nowadays she has survived more than 20 years. So I pray that they can help your brother with his heart.

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Default Nov 17, 2019 at 07:00 PM
  #64
Spent most of the day at the hospital. Got to talk with the PA and mum is progressing. Slowly but surely. The PA was a great listener and noted down several things we said, like that this confusion mum has is not normal, nor the laying in bed. He said it was great to have families say things like that, that it helps them very much.

Now got to go do mums sheets. And get things ready for her return. Probably not tomorrow but you never know.

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Default Nov 17, 2019 at 07:18 PM
  #65
Oh bird dancer, I am so sorry. I hope your brother will be better soon! I’m sorry you are under so much stress. Please take care of yourself as best you can!

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Default Nov 17, 2019 at 07:31 PM
  #66
Hi, I'm Anna. I was diagnosed with Bipolar, Type 2, at age 14--my mom remembered that, not me. (I also have ADD, and Paranoia--medicated only for the Paranoia, and for the Bipolar.)

Please tell me your legal name. Would feel more normal.

If you ever want to talk, I am here.
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Default Nov 17, 2019 at 07:33 PM
  #67
Hi, all. That message was for "Bipolar-wolf."
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Default Nov 17, 2019 at 07:39 PM
  #68
Back home from my anniversary weekend in the mountains. It was such a nice time. I’m so glad we were able to get away. Delicious food, beautiful accommodations, fun adventures. But I’m glad to be home. I missed my son. Apparently two days is my limit lol.

I’m actually feeling positive about work tomorrow. I was on the fence about it since I interviewed for it. But I feel better about it. I don’t know if it was just the weekend get away or what but I think it will be a good job for me. And I will finally be making money again. Haven’t made much since I quit my other job back in October. I only made $800 from subbing. I’ll start making steady money again soon and it will be good. I’m happy.

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Default Nov 17, 2019 at 07:40 PM
  #69
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My father will be discharged from the physical rehab center sometime next week. I must say that my siblings and I had quite a disagreement about where Dad should go from there. Dad clearly stated that he did not feel safe to go home (re: his drinking urges - people, places, things). In the end, my dad chose what my siblings were offering. That's fine. At least an action plan is decided on and in the works. Dad will move, temporarily, into an assisted living facility. It is a nice one, but not as close to me as the ones my sister and I looked at a few days ago. It's actually exactly right in between where my siblings live and where I live. That is generally nice, but the thing is is that the IOP (Intensive Outpatient Program) he will attend is literally a 3-minute drive from my house. So, instead of me driving 10 minutes to a place to pick him up, I'll need to drive 25 minutes. I know, not that big of a deal. I did ask my siblings if they could sometimes pick him up at his assisted living and drop him off at the IOP. I would then take him back to the assisted living. Maybe in the end this will work out even better for me.

My sister sent me a long shopping list full of things that our dad needs for the assisted living. I'm going to go to Target once she clarifies a few things.

I am still nutty about my Christmas cookie project. I finally got my husband to look for one additional Czech Christmas cookie recipe from his mother's notes. He had to translate it for me. We made them once in the past and it was a failure, but I think that was because he was directing the project. This time I finally got a sense for the recipe. I'm going to make them either today or tomorrow and take photos. Wish me luck in getting them right this time. Then, I'll have only one additional cookie to make. The last ones will be the most challenging and potentially the most impressive. The last will be 3-dimensional cookies. They are a nut-based "cookie" made with a mold in the shape of a bee hive. Then then are hollowed slightly and filled with rum cream and set on a vanilla wafer. Normally they look cute, but I'm going to REALLY make them impressive by putting honey-colored chocolate on the tops of some and top them with an edible decoration that looks like a bee. Others I'll leave traditional. Some others I will coat with white chocolate and put edible silver star-shaped glitter on. Some I will coat in white chocolate colored green with food coloring, and then decorate with multi-color non-pareils to resemble a 3-D Christmas tree. Hubby said he'd be afraid for his sister to see these for fear she'd think I was going nutty again.


I’m glad that there is a plan that your Dad is agreeing to, this is a huge step for him

Yes I hope your sister and brother can help getting to IOP and assisted living.

Oh my goodness ... these cookies you make ?? They sound Amazing. I look forward to seeing the pictures, I’ll drool I am certain.

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Default Nov 17, 2019 at 07:41 PM
  #70
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Thinking of you. I’m sorry you are going through so much. I hope this all gets straightened out soon. Continued prayers for you and your husband.


Thank you sooo much

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Default Nov 17, 2019 at 07:46 PM
  #71
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Christina - I think you are right and it’s time to call in the tdoc and pdoc since today made the fourth time I couldn’t make it to see M. I think I’ve been putting it off because I can’t afford it. I really was thrilled the other day to get those coats from my brother because I didn’t have one and couldn’t afford it. I know you know how that is.


Between the co-pays for these specialists I’m seeing and the upcoming co-pay for the surgery on my pinched nerve, I’m tapped out. I’ve been hoping it would get better on its own without trying to find the money for this. I’ll try to work something out since it would be cheaper then IP.


Thank you for your support and concern. I appreciate you.

I’m glad you have a coat !

I have been very concerned especially when you can’t get out to meet M. Yes time to address it. I’m glad your going to reach out.

It’s really awful trying to afford co pays to get the health care needed

You are in my thoughts

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Default Nov 17, 2019 at 07:48 PM
  #72
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Originally Posted by BirdDancer View Post
The stress experienced by my family has just GOT to ease!!!! My brother is in the ER right now diagnosed preliminarily with a-fib. My sister is with him. I just got back from Target and other stores buying stuff for my dad for the assisted living.


Update: My sister said that my brother has congestive heart failure. They will be doing a special echocardiogram tomorrow. He'll need to be under general anesthsia for it since they are sending some kind of thing down his throat. They are apparently going to give his heart some kind of shock to get his heart beating properly again. This is just terrible!


Oh no ! I will keep all of you in my thoughts

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Default Nov 17, 2019 at 07:57 PM
  #73
Sending hugs to those suffering here. I do read your posts, but find it hard to respond. My concentration is a mess.

The weather has been perfect for swimming and walking but my stupid hip needs a rest so I have had to chill at home for the last four days. Hopefully by resting it properly I will be back to the beach soon. Exercise is my usual way of burning off stress. Instead I have been crying a lot. Yesterday I actually felt down and got worried I am becoming depressed. Only time will tell. This morning I am fragile still. PTSD is bad. The past haunts me through so many ways. I can't escape it. Instead I will walk through it. It f***ing hurts.

Monday morning here. This week I have hopes of getting some errands done, and being more social. On Wednesday I have therapy. That is going to be hard work, but helpful too. I do have moments where I am content in the midst of all this inner chaos. This helps me have hope. Sorry, I am a bit all over the place. I never really have anything good to write here. My life is so boring. Most of my time and energy still goes into surviving and recovering. This will change soon hopefully.

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Default Nov 17, 2019 at 07:59 PM
  #74
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Christina I am sorry you are suffering so much. I hope your breathing gets better soon. That must be so scary and disheartening to deal with for so long. Are you seeing your therapist and getting needed support I hope?


Yes I am seeing my T on Wednesday much needed.

I have a Pulmonary functions test on Tuesday. I just hope someone can give me an idea how long it should take for Humira to get out of my body so this will clear up. Half life is 3-6 months ! But I was only on it for 12 weeks so I’m hoping it will resolve much sooner. So I guess hurry up and wait

Thanks so much

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Default Nov 17, 2019 at 08:04 PM
  #75
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Spent most of the day at the hospital. Got to talk with the PA and mum is progressing. Slowly but surely. The PA was a great listener and noted down several things we said, like that this confusion mum has is not normal, nor the laying in bed. He said it was great to have families say things like that, that it helps them very much.


Now got to go do mums sheets. And get things ready for her return. Probably not tomorrow but you never know.


I’m so glad she’s doing better and likely soon Home.

I worked for years in nursing home and it was so common for a patient to get all confused and some even combative that were normally the sweetest people... and it be bladder / kidney/ urinary tract infection. It’s kind of shocked that it happens. Could be the reason for your Mom being a bit “ off”

Any dreams yet ??

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Default Nov 17, 2019 at 08:07 PM
  #76
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Hi, I'm Anna. I was diagnosed with Bipolar, Type 2, at age 14--my mom remembered that, not me. (I also have ADD, and Paranoia--medicated only for the Paranoia, and for the Bipolar.)


Please tell me your legal name. Would feel more normal.


If you ever want to talk, I am here.


I think your asking for “legal name” is going to bother people. Why do you need such info ?

Surely you can speak to someone regardless of there real name.

Welcome

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Default Nov 17, 2019 at 08:18 PM
  #77
Well I again spent longer lying in bed than I probably should. I’m not sure what’s maybe Bipolar/winter and whats just because physically I’m dealing with so much. I’m not actually sleeping more than a couple hours a night total.

I have a Pulmonary functions test on Tuesday. 7:30 am 1.5 hours North, ugh ! not thrilled about appt time. My follow up appt isn’t until December 16th which he already added Spiriva inhaler to my regimen of Symbicort. So really there’s no point seeing him sooner. It’s a hurry up and wait, I’ll just keep huffing and puffing.

On a positive note I made teriyaki chicken with garlic butter noodles and broccoli for dinner and it turned out great !! So yes highlight of my day was food !!! No wonder I’m so fat

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Default Nov 17, 2019 at 08:28 PM
  #78
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Hi, I'm Anna. I was diagnosed with Bipolar, Type 2, at age 14--my mom remembered that, not me. (I also have ADD, and Paranoia--medicated only for the Paranoia, and for the Bipolar.)

Please tell me your legal name. Would feel more normal.

If you ever want to talk, I am here.


I'm too paranoid to use my legal name on the Internet.

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Default Nov 17, 2019 at 08:31 PM
  #79
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Well I again spent longer lying in bed than I probably should. I’m not sure what’s maybe Bipolar/winter and whats just because physically I’m dealing with so much. I’m not actually sleeping more than a couple hours a night total.

I have a Pulmonary functions test on Tuesday. 7:30 am 1.5 hours North, ugh ! not thrilled about appt time. My follow up appt isn’t until December 16th which he already added Spiriva inhaler to my regimen of Symbicort. So really there’s no point seeing him sooner. It’s a hurry up and wait, I’ll just keep huffing and puffing.

On a positive note I made teriyaki chicken with garlic butter noodles and broccoli for dinner and it turned out great !! So yes highlight of my day was food !!! No wonder I’m so fat
I worry about your chronic lack of solid sleep. I think it's contributing to your physical condition. I hope you get some deep sleep soon.

I did have a dream last night but I've forgotten it now. Sorry

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Default Nov 17, 2019 at 10:03 PM
  #80
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I worry about your chronic lack of solid sleep. I think it's contributing to your physical condition. I hope you get some deep sleep soon.


I did have a dream last night but I've forgotten it now. Sorry


Yes this lack of sleep is really getting out of hand. I always deal with insomnia and it’s not that uncommon for me to go 3-4 days with zero sleep.

I know my breathing difficulty is part of the issue I’m not breathing normally so my body is on high alert.

I hope you have some Fantastic dreams tonight

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