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Default Mar 31, 2020 at 02:06 AM
  #41
8mg Trilafon. Ir's working really well! Getting rid of the relentless spinning anxiety is such a relief. Only 2 side effects; Some dizziness and (unfortunately) stronger appetite.

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Default Apr 01, 2020 at 07:02 PM
  #42
Still with the 8mg. What a relief, to be without the sharp, spinning anxiety. I will talk with my pdoc on Friday; I'm hoping she'll raise the dose to 10 or 12. The reason I'm hoping for that is because I still experience a low level of anxiety that I believe the Trilafon can help bring down to "normal" anxiety.

The only disappointing symptom is that I do crave sugar. It's a difficult symptom to live with - but I'll still take it over the manic anxiety.

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Default Apr 01, 2020 at 07:51 PM
  #43
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Originally Posted by BethRags View Post
Still with the 8mg. What a relief, to be without the sharp, spinning anxiety. I will talk with my pdoc on Friday; I'm hoping she'll raise the dose to 10 or 12. The reason I'm hoping for that is because I still experience a low level of anxiety that I believe the Trilafon can help bring down to "normal" anxiety.

The only disappointing symptom is that I do crave sugar. It's a difficult symptom to live with - but I'll still take it over the manic anxiety.
sorry to hear that. APs can definitely cause sugar cravings...

One interesting thing one of my pdocs told me... Sometimes people are more "ravenous" when they take meds that lessen their anxiety. Basically, when the patient was experiencing crippling anxiety, that anxiety would affect (typically suppress) their appetite to a degree and then the patient would adapt their eating habits to match the lowered appetite. Then when an anxiolytic (or whatever med) is introduced, the hunger comes back and the body is not used to metabolizing as much food, because it had adapted to the lower caloric intake. So... BAM, weight gain.

Now the worst part is that antipsychotics in general cause sugar cravings, so it's like an additional thing you have to deal with.

But anyways, I don't have any sources that talk about anxiety and weight gain/loss, because I am just repeating what one of my pdocs told me. However, that's what I was told and it kinda makes sense to me. I mean, when some people are anxious or depressed, they don't eat. So, it's natural to expect that someone may feel "hungrier" when they're not as anxious, because that anxiety is no longer suppressing the appetite.
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Default Apr 02, 2020 at 05:02 AM
  #44
Absolutely true, blue. When I'm anxious I cannot eat. I'll force myself to eat some crackers.

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Default Apr 03, 2020 at 09:41 PM
  #45
Kicking myself for opening my mouth!

I had a telephone appointment with my pdoc today. I told her that the Trilafon is working really well. I told her I haven't noticed any side effects except that it has slightly increased my tremor (definitely hands, mildly in my jaw).

Well, she flipped out about the increased tremor. She told me that I have to drop the dosage back down to 6mg/day.

Why, why, why did I tell her about the tremor?! The crazy part is that just today the jaw tremor is almost gone, much better than it was. I'd do almost anything to stop the severe anxiety...why can't she understand that?

I wanted to increase the dose, not drop it - or at least keep it at 8mg. I'm really, really upset about this. I don't know what to do. I have a telephone appt. with my therapist on Tuesday; I will talk with her about this and get her feedback.

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Default Apr 06, 2020 at 02:57 PM
  #46
Yesterday was rough (anxiety/depression). The hell with it, I'm taking 8mg today. If the jaw tremor returns, okay; I'll drop down to 6mg. But I want to stay with the 8mg for now - especially at his extremely stressful time when I cannot even see my therapist.

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Default Apr 06, 2020 at 03:09 PM
  #47
Sorry to hear that, BethRags.

Getting help for mental health issues is especially challenging during these stressful times. I wish you could see your therapist and have her comfort you.

I hope this whole COVID-19 situation just blows over by summertime. I think there are many people in the same boat as you with wanting to see their mental health providers in person because they are hurting over this. It really sucks and I wish there were a magic wand to make things better.

Anyway, good luck with keeping your 8mg dose. I hope it works for you.
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Default Apr 06, 2020 at 05:21 PM
  #48
I’m sending hugs

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Default Apr 07, 2020 at 11:10 AM
  #49
I so appreciate the support blue and fuzzy.

Well, I'm an anxious mess. I cannot seem to stop obsessing over the garbage my pdoc told me last week about needing video to communicate with her and all that (which is not true by clinic standards).

I don't know, it could be 6 or 8 weeks until I can actually go into my T's office again. I am grateful for her phone sessions, but I'm also not a phone person and find myself very anxious when using the phone.

I have tremendous relief because California is doing pretty well despite this pandemic nightmare. Still. Guess I didn't realize how much freedom I had before, to go places.

I've taken several Klonopins today; I have got to do something to calm down...I can't be like this. I'm so angry at my pdoc...I can never entirely trust her.

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Default Apr 07, 2020 at 11:21 AM
  #50
Sorry to hear your pdoc is being stubborn like that. She is being VERY unreasonable about all of this. It sounds like she wants things her way and her way only, and so she's coming up with excuses to make her way happen.

Not sure if you've done this or not, but have you talked to the front desk about your pdoc's recent excuses? Can you tell them why you cannot do video, and ask them why it's "illegal" for a doctor to practice psychiatry over the phone? They're of course gonna say, "no, it's not illegal to practice psychiatry over the phone. What makes you think that?" Then it makes them realize that your pdoc is feeding her patients a bunch of lies, and they will probably intervene.

As for therapy -- if you feel that talking on the phone is very anxiety inducing, have you talked to your therapist about your nerves?
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Default Apr 07, 2020 at 11:25 AM
  #51
I can relate to not trusting the providers. Sometimes they do not give us reason to trust them.

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Default Apr 07, 2020 at 12:44 PM
  #52
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I so appreciate the support blue and fuzzy.

Well, I'm an anxious mess. I cannot seem to stop obsessing over the garbage my pdoc told me last week about needing video to communicate with her and all that (which is not true by clinic standards).

I don't know, it could be 6 or 8 weeks until I can actually go into my T's office again. I am grateful for her phone sessions, but I'm also not a phone person and find myself very anxious when using the phone.

I have tremendous relief because California is doing pretty well despite this pandemic nightmare. Still. Guess I didn't realize how much freedom I had before, to go places.

I've taken several Klonopins today; I have got to do something to calm down...I can't be like this. I'm so angry at my pdoc...I can never entirely trust her.
Sorry if I missed anything, I've been taking in a lot of information lately and my sense of time is essentially gone (as for many), but did you talk to the office about this stuff your pdoc said? I know you don't like phoning (not a big fan here either), but I think it might be very worthwhile to do so. If they don't know it's happening, they won't know to do anything about it. Be direct with them. Tell them exactly what she said. Don't make them guess or infer. It is your best bet for making the call effective. This pdoc NEEDS to be stopped from making such false statements. Informing the office of exactly what she's doing is how that can happen across the board, because she's undoubtedly doing it to others too.

Sending thoughts for strength. I know it's not easy, but a) those falsehoods need to be stopped and b) I think it might help *you* in the process as well. Instead of it churning around and around, you can rest in the knowledge that you've done something positive about it.

You are in my thoughts. Good luck.

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Default Apr 07, 2020 at 02:56 PM
  #53
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Sorry to hear your pdoc is being stubborn like that. She is being VERY unreasonable about all of this. It sounds like she wants things her way and her way only, and so she's coming up with excuses to make her way happen.

Not sure if you've done this or not, but have you talked to the front desk about your pdoc's recent excuses? Can you tell them why you cannot do video, and ask them why it's "illegal" for a doctor to practice psychiatry over the phone? They're of course gonna say, "no, it's not illegal to practice psychiatry over the phone. What makes you think that?" Then it makes them realize that your pdoc is feeding her patients a bunch of lies, and they will probably intervene.

As for therapy -- if you feel that talking on the phone is very anxiety inducing, have you talked to your therapist about your nerves?

I'm about to speak with my therapist in a few minutes. I will explain to her was my pdoc (who works with her) has told me, and get her feedback. I am literally so shaken up by my pdoc that I am in a panic.

Thank you, blue. You are so kind. I will update!

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Default Apr 07, 2020 at 02:57 PM
  #54
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I can relate to not trusting the providers. Sometimes they do not give us reason to trust them.

So sadly true, dear Fuzzy I could not agree more. And it really hurts.

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Last edited by *Beth*; Apr 07, 2020 at 03:50 PM..
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Default Apr 07, 2020 at 03:49 PM
  #55
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Sorry if I missed anything, I've been taking in a lot of information lately and my sense of time is essentially gone (as for many),

but did you talk to the office about this stuff your pdoc said? I know you don't like phoning (not a big fan here either), but I think it might be very worthwhile to do so. If they don't know it's happening, they won't know to do anything about it. Be direct with them. Tell them exactly what she said. Don't make them guess or infer. It is your best bet for making the call effective. This pdoc NEEDS to be stopped from making such false statements. Informing the office of exactly what she's doing is how that can happen across the board, because she's undoubtedly doing it to others too.

Sending thoughts for strength. I know it's not easy, but a) those falsehoods need to be stopped and b) I think it might help *you* in the process as well. Instead of it churning around and around, you can rest in the knowledge that you've done something positive about it.

You are in my thoughts. Good luck.
Thank you so much, Innerzone

I just spoke with my therapist and, believe it or not, the clinic actually is encouraging providers to do video whatever with clients because insurance doesn't want to pay for phone calls!!! To say I'm shocked is putting it mildly. The clinic serves low-income people...what are they thinking...maybe I'm in the smallest minority, but no way can I afford a webcam and I sure don't know how to set one up. Plus, stores are closed, even if I could buy a webcam.

My T assured me that our phone sessions will continue, etc. But I will not be surprised, if this lock down continues throughout the summer, if the phone sessions will have to be cut back or eliminated.

What I'm considering doing, however, is talking to the clinic director and getting the exact information for myself, not hearing it from anyone else except the director herself.

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Default Apr 07, 2020 at 04:00 PM
  #56
Beth, are you sure your computer doesn't have a webcam? My super-cheap one does and I can't remember the last computer I had that didn't have one. I'm sure they are out there without one but is it possible you have one and have just never used it? Mine looks like a little round dot on the top of the screen.When I connect with my therapist I just follow a link which asks me if I want to open my video and audio feeds and they open automatically after that and then I'm connected.

I'm so sorry you are dealing with this. In my state I think (not positive) they are allowing phone calls to be billed as sessions.

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Default Apr 07, 2020 at 04:32 PM
  #57
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Beth, are you sure your computer doesn't have a webcam? My super-cheap one does and I can't remember the last computer I had that didn't have one. I'm sure they are out there without one but is it possible you have one and have just never used it? Mine looks like a little round dot on the top of the screen.When I connect with my therapist I just follow a link which asks me if I want to open my video and audio feeds and they open automatically after that and then I'm connected.

I'm so sorry you are dealing with this. In my state I think (not positive) they are allowing phone calls to be billed as sessions.

Thank you so much, Rainbow. I have wondered if my computer has a camera. It's a PC (I'm not a high tech person). I don't see anything that indicates a camera. I'm pretty sure laptops have them. I just feel so lost with all of this.

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Default Apr 07, 2020 at 04:36 PM
  #58
Do you have a laptop or desktop? If it's a laptop, odds are it has a webcam.
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Default Apr 07, 2020 at 04:42 PM
  #59
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Do you have a laptop or desktop? If it's a laptop, odds are it has a webcam.

No, it's a desktop

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Default Apr 07, 2020 at 04:46 PM
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No, it's a desktop
Hmm... How old is your phone?

Does your pdoc use something along the lines of Doxy.me or VSee? If your pdoc does, I can try to walk you through how to set it up on your phone, whether it's iPhone or android.
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