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*Beth*
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Default May 27, 2022 at 01:13 AM
  #541
I got the results of my blood labs and they aren't too bad. The usual slightly elevated (bad) cholesterol, slightly elevated glucose, some anemia. The weird one is that my vitamin D is low. I spent every summer from young childhood on through to age 40 tanning and I've had so many sunburns I can't possibly count. One was so bad when I was 17 that I landed in the hospital. Then in the '90's word was that tanning beds were safe. I loved tanning beds, they felt so great, and I used them a lot. Once I went to a tanning salon in Hollywood...that was an experience. Wow. All of a sudden - no! Tanning beds are not safe! Oh, great. Then I got my tattoos and started avoiding the sun altogether, for fear of skin cancer and because I don't want my tattoos to fade. So now I have a vit D deficiency. Maybe that's why my body aches, I feel so fatigued, and this winter & spring my hair seems to come out a little bit too much. Life is crazy. Not a big deal, though, I just have to take a high dose of D.

I saw med provider, S., yesterday. He is so easy to work with. I told him I increased the Lamictal back to 200 and he said, sounds smart. Shocking, to have a med provider who doesn't act like judge and jury. I told him I'm seriously desperate for sleep + my mind is so noisy, so he agreed to give Haldol a try. I'm taking the first one tonight. Fingers crossed xx

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Red face May 27, 2022 at 10:25 PM
  #542
Shocked about the MD!!!!
My new Nurse practitioner allows me to take prn meds as needed. my old pdoc would have had me lock up my meds still. and have jeff dool them out.
She knew a bit more than I liked . my new provider doesn't really know any thing about me and doesn't ask any questions she just asks if I have had any mania or depression. It takes 5 minutes. I guess that is a good thing.
she always says to call her if I need her. I see her every 2 months.

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Default May 27, 2022 at 10:41 PM
  #543
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Originally Posted by *Beth* View Post
I got the results of my blood labs and they aren't too bad. The usual slightly elevated (bad) cholesterol, slightly elevated glucose, some anemia. The weird one is that my vitamin D is low. I spent every summer from young childhood on through to age 40 tanning and I've had so many sunburns I can't possibly count. One was so bad when I was 17 that I landed in the hospital. Then in the '90's word was that tanning beds were safe. I loved tanning beds, they felt so great, and I used them a lot. Once I went to a tanning salon in Hollywood...that was an experience. Wow. All of a sudden - no! Tanning beds are not safe! Oh, great. Then I got my tattoos and started avoiding the sun altogether, for fear of skin cancer and because I don't want my tattoos to fade. So now I have a vit D deficiency. Maybe that's why my body aches, I feel so fatigued, and this winter & spring my hair seems to come out a little bit too much. Life is crazy. Not a big deal, though, I just have to take a high dose of D.

I saw med provider, S., yesterday. He is so easy to work with. I told him I increased the Lamictal back to 200 and he said, sounds smart. Shocking, to have a med provider who doesn't act like judge and jury. I told him I'm seriously desperate for sleep + my mind is so noisy, so he agreed to give Haldol a try. I'm taking the first one tonight. Fingers crossed xx
I am vitamin D deficient too. I take a supplement.

I hope Haldol works for you. I haven't had any side effects from it- unless the tremor in my right hand is from it but I'm pretty sure that it's from Lithium (that I stopped taking years ago!)

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Default May 28, 2022 at 07:49 AM
  #544
Took 2 Haldol (4mg.) last night and felt so much less "noisy" in my mind. Fell asleep quickly!

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Default May 28, 2022 at 07:54 AM
  #545
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Took 2 Haldol (4mg.) last night and felt so much less "noisy" in my mind. Fell asleep quickly!

Yay Beth! So glad you had a good night!

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Smile May 28, 2022 at 11:21 PM
  #546
Beth this is great news!!!!
Isn't sleep wonderful!!!!
Lets hope it continues. I take 5 mg 2xday.
here is to more sleepful nights ahead.
((((((HUGS)))))
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150mg of lamictal 2x a day
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1mg of cogentin 2x a day
klonipin , 1mg at night,
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Default Sep 25, 2022 at 10:43 PM
  #547
I am not requesting feedback on this post; I'm using it to update my med and health situation.

I deeply regret that I haven't kept up with my thread. I do believe I would have saved myself a very frightening 6-8 weeks of severe illness.

Shortly after starting to take Luvox I had some uncomfortable indigestion. I knew it was the typical SSRI beginning side-effect. The indigestion turned into nausea. Mild, at first, then pretty bad. I felt between queasy and really sick all the time. In addition, I had what felt like a constant migraine. I still stuck with the Luvox.

Around that time I decided that I'd been on Gabapentin long enough, that it probably wasn't even doing much anymore. Furthermore, I thought it may be contributing to the nausea because the gel caps tend to upset my stomach. So I rather quickly, over about 10 days, titrated down on the Gabapentin. I went from 1800mg to 300mg. I was getting desperate because I felt so nauseated.

Finally, one night I became extremely nauseated and was vomiting intensely. Like a light went on, it hit me that the Luvox was causing the nausea. Also - I had been prescribed lithium, had been taking it for 6 days. I was very concerned when I became so ill, thinking that perhaps it was lithium toxicity.

I immediately stopped the lithium and I do not plan on going back on it.

Over 4 days I cut the Luvox down, a rapid stopping of a psych med, but I had to end the extreme nausea. The day after I stopped the Luvox I stopped being nauseated. But around the time I'd started vomiting I also began having diarrhea. It got worse and worse, to a point at which I couldn't eat.

I took a covid test, which was negative.

The diarrhea went on for weeks. I was able to drink water and sip Gatorade. I could more-or-less tolerate banana with high-probiotic yogurt. Pure coconut water was a blessing and probably kept me from serious dehydration. Plain rolled oats (oatmeal) with plain soy milk (no sugar, nothing else) and organic applesauce was tolerable. 2 slices of plain white toast and a glass of water was dinner during that time. An occasional Popsicle, just sugared ice & a flavor, was mostly okay. Plain white rice, a small amount. A 1/2 teaspoon of raw, local organic honey. That was it. Anything else I ate, my stomach would not tolerate.

And this went on for weeks. I was fatigued, shaky, and managing only basic chores and cat care, of course. Terrible body aches and muscle spasms. I had lost 6 lbs. in 3 weeks. My blood pressure was scarily low.

Finally, I saw a doctor, after talking with 2 advice nurses. The doctor ordered labs. My blood labs came back quickly and everything was normal, except slightly elevated liver enzymes. (AST 44 / ALT 100) My medication PA told me that the liver enzyme number just showed that my liver was stressed from having been so sick. I did stool samples, but haven't turned them in yet - and, God willing, I won't have to!

I was so terrified that I was researching madly online. Yesterday, I started putting things together and realized that it was the fast withdrawal from the Gabapentin that was causing the diarrhea.

Last night I took 600mg of Gabapentin. With my morning meds I took another 300mg of Gaba. Today my stomach has been calm and settled. No nausea, no diarrhea, no indigestion - for the first time in two months!

I feel blessed. Like I've been handed a miracle. Obviously, the fairly rapid withdrawal from the Gabapentin was too hard on my body AND apparently, the Gaba IS helpful for me, in that it soothes my forever IBS and myalgia. It also helps with anxiety.

I do believe that I am okay, now. It will take some patience to return to normal eating. I skated today, for the first time in a month, and it felt fabulous!

I will continue with the Gabapentin. It is helping me, truly.

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200mg Lamictal
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Metformin
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25 to 50mg Seroquel for sleep

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Default Sep 26, 2022 at 06:59 AM
  #548
Thinking of you dear Beth

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Default Sep 26, 2022 at 12:59 PM
  #549
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Thinking of you dear Beth

I've been thinking very much of you, Fuzzy. I'm so happy to see you

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Default Sep 27, 2022 at 09:07 PM
  #550
I had my first real meal in about 4 weeks, small, but it sure tasted good. Salmon and masked potato (without the skin, unusual for me). So far, so good!


Holding the Gaba dose at 900mg, even though I'm tempted to add another 300mg tomorrow morning. Before getting so sick I was taking 1800mg.

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Default Sep 28, 2022 at 03:10 PM
  #551
Well, I figured that since I was on 1800mg. of Gabapentin less than 2 months ago, for many months, I'd add in 300mg this morning. I'm taking a total of 1200mg now. So far, so good! My stomach feels much, much calmer. No body aches. No fatigue.

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Default Sep 28, 2022 at 09:53 PM
  #552
I hope things keep improving

Sent from my iPhone using Tapatalk

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Default Sep 29, 2022 at 10:52 PM
  #553
At 1200 mg Gabapentin. So far, so good. My stomach is a bit sore inside, but it's been through a lot. Nothing major, though.

I will see my new GP (another Dr. B.) next week. Please, please, let him be a good one.

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Red face Sep 30, 2022 at 12:17 PM
  #554
Glad that you tummy is some better.
I hope you like your new MD. keep us posted.
I went to a class reunion last weekend.
I went to support my sister who was part of the planning committee.
so am trying to get caught up here.
bizi

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150mg of lamictal 2x a day
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klonipin , 1mg at night,
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multi vit,, vit c, at noon, tumeric, caffeine at noon
PRN Remeron 15mg at night,
zyprexa10mg under tongue,
requip2mg.





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Default Sep 30, 2022 at 04:12 PM
  #555
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Glad that you tummy is some better.
I hope you like your new MD. keep us posted.
I went to a class reunion last weekend.
I went to support my sister who was part of the planning committee.
so am trying to get caught up here.
bizi

Thank you so much, bizi. You are always a reliable friend. I'm glad your reunion went well - sorry your boot broke! Am I imagining things, or did you tell me your sister is your twin?

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Heart Sep 30, 2022 at 08:11 PM
  #556
yep, she is my twin!We turn 60 on Jan 1st.
we are thinking about taking one of those river boat cruises.
My older sister would go with us.
(((((HUGS))))))
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150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night,
4-5 peri-colace for chronic constipation


multi vit,, vit c, at noon, tumeric, caffeine at noon
PRN Remeron 15mg at night,
zyprexa10mg under tongue,
requip2mg.





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Default Sep 30, 2022 at 10:30 PM
  #557
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yep, she is my twin!We turn 60 on Jan 1st.
we are thinking about taking one of those river boat cruises.
My older sister would go with us.
(((((HUGS))))))
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A riverboat cruise sounds perfect! Yep, I'll turn 60 Dec. 28th. Too bad we don't live close to each other because we could celebrate our 60th together MAJOR New Year's Ever party!

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Heart Oct 01, 2022 at 08:24 AM
  #558
That would be fun! Plan something fun and out of the ordinary for your 60th. That is a big number!Keep me posted!
bizi

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150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night,
4-5 peri-colace for chronic constipation


multi vit,, vit c, at noon, tumeric, caffeine at noon
PRN Remeron 15mg at night,
zyprexa10mg under tongue,
requip2mg.





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Default Oct 05, 2022 at 02:05 AM
  #559
My stomach still feels I don't know. Sore and sensitive inside. I'm off any SSRI for the first time in decades. SSRI's always kept IBS symptoms away. So now the IBS I've had from childhood has probably reappeared.

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Unhappy Oct 06, 2022 at 06:58 PM
  #560
Oh beth no.......i have a friend who gets horrible stomach aches from IBS.
I am so sorry that you have this. maybe it would be worth going back on the ssri to help with the ibs.
I really feel for you.
(((((((HUGS))))))
bizi

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150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night,
4-5 peri-colace for chronic constipation


multi vit,, vit c, at noon, tumeric, caffeine at noon
PRN Remeron 15mg at night,
zyprexa10mg under tongue,
requip2mg.





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