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Old Aug 12, 2020 at 02:23 PM
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Well that sucked. I was really out of it to the point I had to call my husband in. She did say that she thinks I exaggerate my symptoms sometimes. She's worried this will turn dangerous. She said I often have delusions but that's not psychosis because I understand that they're not proper. Thoughts. I did tell her the thoughts I had a couple weeks ago and then I have trouble being honest with her about them. She said I can't email. Did I can make list and share them with her when I call the word exaggerating keeps playing over and over in my head. I think she used the wrong word. I don't know we'll see what the doctor says next week
That's a confusing visit. Sorry MM. Maybe it felt like exaggerating to her because she never knew how often or how deep this stuff goes for you? I kinda dislike that she was so quick to judge it. In my mind it makes more sense to thank you for opening up more and listen for a few visits before jumping to conclusions.
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Old Aug 12, 2020 at 03:53 PM
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Check-in #48 reached 100 pages, so here's check-in #49.

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Old Aug 12, 2020 at 04:16 PM
  #3
 
Went to my pdoc for the last time before transitioning to a new therapist/group/pdoc (I'm in the process of this. Already been assessed and everything). He agreed with the weaning/tapering off of Seroquel from 100 mg to 50 mg. He thinks that will be enough since I've only been on Seroquel since July.

I'm not sure. I want to try 25 mg for two weeks. Should I just stop after 50 mg, or go for the 25 mg?

I'm staying on Trileptal and he prescribed Varistal (spelling?) for anxiety as needed, but I don't think I want to try it.

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Old Aug 12, 2020 at 04:20 PM
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Originally Posted by Living in LaLa Land View Post
Went to my pdoc for the last time before transitioning to a new therapist/group/pdoc (I'm in the process of this. Already been assessed and everything). He agreed with the weaning/tapering off of Seroquel from 100 mg to 50 mg. He thinks that will be enough since I've only been on Seroquel since July.

I'm not sure. I want to try 25 mg for two weeks. Should I just stop after 50 mg, or go for the 25 mg?

I'm staying on Trileptal and he prescribed Varistal (spelling?) for anxiety as needed, but I don't think I want to try it.
Trust your gut. I found that my doctors weren't very cautious with withdrawal strategies. I came up with something I was comfortable with after doing the research on it. If you think 25mg would be a better step down approach, go for it.
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Old Aug 12, 2020 at 04:25 PM
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MM, I also wanted to second what Beth said about psychosis. If the thoughts were random flashbacks or just every now and again that would be one thing. In your case it seems more like prominent thoughts that you've learned are delusions. That is insightful and wonderful, but I disagree that insight means it isn't psychosis. For example, when my delusions came back a few weeks ago I knew they were wrong. I also had them showing up more and more and couldn't get them to just go away on my own. My pdoc and therapist considered it a return of psychosis despite my insight.
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Old Aug 12, 2020 at 04:29 PM
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two days without akathisia

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Old Aug 12, 2020 at 05:06 PM
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two days without akathisia
Wonderful!

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Old Aug 12, 2020 at 06:04 PM
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Originally Posted by Living in LaLa Land View Post
Went to my pdoc for the last time before transitioning to a new therapist/group/pdoc (I'm in the process of this. Already been assessed and everything). He agreed with the weaning/tapering off of Seroquel from 100 mg to 50 mg. He thinks that will be enough since I've only been on Seroquel since July.

I'm not sure. I want to try 25 mg for two weeks. Should I just stop after 50 mg, or go for the 25 mg?

I'm staying on Trileptal and he prescribed Varistal (spelling?) for anxiety as needed, but I don't think I want to try it.

I believe that 25mg would help you sleep well. Of course, you could do what I did...go off Seroquel completely, find out how your sleep is. For me, since my sleep was so bad, after a couple of difficult months I finally went back on the 25mg Seroquel.


I didn't find that Vistaril did anything, at all. But that's me. I've heard of people using it for sleep.

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Old Aug 12, 2020 at 06:48 PM
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Quote:
Originally Posted by Living in LaLa Land View Post
Went to my pdoc for the last time before transitioning to a new therapist/group/pdoc (I'm in the process of this. Already been assessed and everything). He agreed with the weaning/tapering off of Seroquel from 100 mg to 50 mg. He thinks that will be enough since I've only been on Seroquel since July.

I'm not sure. I want to try 25 mg for two weeks. Should I just stop after 50 mg, or go for the 25 mg?

I'm staying on Trileptal and he prescribed Varistal (spelling?) for anxiety as needed, but I don't think I want to try it.
Vistaril maybe?

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Old Aug 12, 2020 at 06:51 PM
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MM, I also wanted to second what Beth said about psychosis. If the thoughts were random flashbacks or just every now and again that would be one thing. In your case it seems more like prominent thoughts that you've learned are delusions. That is insightful and wonderful, but I disagree that insight means it isn't psychosis. For example, when my delusions came back a few weeks ago I knew they were wrong. I also had them showing up more and more and couldn't get them to just go away on my own. My pdoc and therapist considered it a return of psychosis despite my insight.
I am pretty sure there are not IR cameras in my walls and yet, at times, I really, really am convinced there are. I just live with this all the time. Just one example.

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Old Aug 12, 2020 at 07:14 PM
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Thank you guys. It was hard and felt like a rejection. It wiped me out . I think she was frustrated because of how out of it I was. She thought I was sleeping when she called. She asked me several times if I was doing drugs. I've been in bed since and I'm getting up now.

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Old Aug 12, 2020 at 08:37 PM
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Quote:
Originally Posted by Living in LaLa Land View Post
Went to my pdoc for the last time before transitioning to a new therapist/group/pdoc (I'm in the process of this. Already been assessed and everything). He agreed with the weaning/tapering off of Seroquel from 100 mg to 50 mg. He thinks that will be enough since I've only been on Seroquel since July.

I'm not sure. I want to try 25 mg for two weeks. Should I just stop after 50 mg, or go for the 25 mg?

I'm staying on Trileptal and he prescribed Varistal (spelling?) for anxiety as needed, but I don't think I want to try it.
It is always best to taper off meds as slow as possible. Iíve come off low doses of Seroquel before and had insomnia and other issues by dropping off too fast.

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Old Aug 12, 2020 at 08:54 PM
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Last week I was feeling great. My physical health was improving and the injection I had stopped most of my PTSD symptoms. Then on Sunday I physically crashed. I had been too active in the previous days so the chronic fatigue syndrome flared up bad. On Tuesday night I was at my partners and feeling so ill I had sting SI. My partner helped me think straight and I was calmer by Wednesday. Having such intense physical limitations is a great frustration to me. I struggle to hope it will get better as even medicine has no cure. It is just a waiting game while pacing myself to avoid crashes. The stress is getting to me.

This morning (Thursday) I feel a little better. I have a busy day ahead. I just hope I donít crash further. I will try to rest as much as possible in between tasks. My partner is coming to stay with me for four days. He has been very unwell with Bipolar. He has little insight but finally clicked he needs to see his doctor yesterday but then didnít call. He has promised to call this morning. I hope he does. He can barely function and Iím too weak to care for him all the time. He goes on manic rants and my fatigued brain falls apart trying to keep up. Then he crashes and begins sobbing so I comfort him as best I can. It can be exhausting, but when he is calm we have a great time. He rapid cycles constantly but still believes his meds are perfect despite all his suffering. He also has PTSD and is very fragile so I canít pressure him in any way to get help. He also isnít completely open with his pdoc as he goes in hypomanic and says everything is perfect. Then he crashes and wonít make another appointment. It is frustrating and exhausting, but I love him and donít want to abandon him. I just need to find ways to reduce the stress it brings as I canít take much more myself.

Sorry, Iíve ranted myself. On the plus side I may be starting to do some volunteer administrative work for a global aid organisation that my friend works for. It will be very minimal to begin with to see what I can cope with. It will be good not to feel so useless all the time.

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Old Aug 12, 2020 at 09:03 PM
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Last week I was feeling great. My physical health was improving and the injection I had stopped most of my PTSD symptoms. Then on Sunday I physically crashed. I had been too active in the previous days so the chronic fatigue syndrome flared up bad. On Tuesday night I was at my partners and feeling so ill I had sting SI. My partner helped me think straight and I was calmer by Wednesday. Having such intense physical limitations is a great frustration to me. I struggle to hope it will get better as even medicine has no cure. It is just a waiting game while pacing myself to avoid crashes. The stress is getting to me.

This morning (Thursday) I feel a little better. I have a busy day ahead. I just hope I donít crash further. I will try to rest as much as possible in between tasks. My partner is coming to stay with me for four days. He has been very unwell with Bipolar. He has little insight but finally clicked he needs to see his doctor yesterday but then didnít call. He has promised to call this morning. I hope he does. He can barely function and Iím too weak to care for him all the time. He goes on manic rants and my fatigued brain falls apart trying to keep up. Then he crashes and begins sobbing so I comfort him as best I can. It can be exhausting, but when he is calm we have a great time. He rapid cycles constantly but still believes his meds are perfect despite all his suffering. He also has PTSD and is very fragile so I canít pressure him in any way to get help. He also isnít completely open with his pdoc as he goes in hypomanic and says everything is perfect. Then he crashes and wonít make another appointment. It is frustrating and exhausting, but I love him and donít want to abandon him. I just need to find ways to reduce the stress it brings as I canít take much more myself.

Sorry, Iíve ranted myself. On the plus side I may be starting to do some volunteer administrative work for a global aid organisation that my friend works for. It will be very minimal to begin with to see what I can cope with. It will be good not to feel so useless all the time.
Sorry for your pain, Wander. It sounds like your partner is unmedicated is that true?

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Last edited by bpcyclist; Aug 13, 2020 at 12:19 AM..
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Old Aug 12, 2020 at 09:39 PM
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Sorry for your pai, Wander. It sounds like your partner is unmedicated is that true?
Thanks. No, he is medicated. He even thinks his meds are perfect. Sigh... Clearly they need adjusting.

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Old Aug 12, 2020 at 10:30 PM
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Went to my pdoc for the last time before transitioning to a new therapist/group/pdoc (I'm in the process of this. Already been assessed and everything). He agreed with the weaning/tapering off of Seroquel from 100 mg to 50 mg. He thinks that will be enough since I've only been on Seroquel since July.

I'm not sure. I want to try 25 mg for two weeks. Should I just stop after 50 mg, or go for the 25 mg?

I'm staying on Trileptal and he prescribed Varistal (spelling?) for anxiety as needed, but I don't think I want to try it.
I was on 150 and weaned down to nothing over a few months but then I couldnt sleep so I went back to 50. Sleep restored.

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Old Aug 12, 2020 at 10:55 PM
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RS was very upset today and I finally got him to talk after much coaxing. Heís just feeling disappointed with some things involving work and finances. I was afraid it was me. I kinda told him just a little bit about why Iíve been so upset and unable to sleep, but I still feel quite embarrassed and ashamed. But I watched an episode of 600 lb life that kinda put things in perspective. I really just need to repeat to myself ďit wasnít my fault, it wasnít my faultĒ until I believe it. Hard, but doable, I think.

Iíve been increasingly hungry and wanting to snack. I believe itís hormones. I still am on track to settle at a one pound loss, which is good.

I am still thinking about SI and SH A LOT. I really, really wish I could SH. Iím thinking of maybe going to get an ear piercing Iíve always wanted. Just to take my mind off things and kind of do something for myself. Iíve taken out most of my piercing because they are not professional. Iíve even taken out my gushes as I keep losing plugs and having to replace them. I was sick of it. But I could def get away with a non obvious not traditional piercing In my ear. I have to give up my blue hair when the summer ends.

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Old Aug 12, 2020 at 11:18 PM
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This reduced calorie diet is making me hungry. I was fantasizing about eating a whole box of kraft mac n cheese with 2 hot dogs. I think that would be a lot of calories and fat and carbs! But I still want it! I settled for salted, roasted seaweed with oil.

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Old Aug 13, 2020 at 12:22 AM
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RS was very upset today and I finally got him to talk after much coaxing. Heís just feeling disappointed with some things involving work and finances. I was afraid it was me. I kinda told him just a little bit about why Iíve been so upset and unable to sleep, but I still feel quite embarrassed and ashamed. But I watched an episode of 600 lb life that kinda put things in perspective. I really just need to repeat to myself ďit wasnít my fault, it wasnít my faultĒ until I believe it. Hard, but doable, I think.

Iíve been increasingly hungry and wanting to snack. I believe itís hormones. I still am on track to settle at a one pound loss, which is good.

I am still thinking about SI and SH A LOT. I really, really wish I could SH. Iím thinking of maybe going to get an ear piercing Iíve always wanted. Just to take my mind off things and kind of do something for myself. Iíve taken out most of my piercing because they are not professional. Iíve even taken out my gushes as I keep losing plugs and having to replace them. I was sick of it. But I could def get away with a non obvious not traditional piercing In my ear. I have to give up my blue hair when the summer ends.
Hugs, wfc!!

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Old Aug 13, 2020 at 12:26 AM
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Thank you guys. It was hard and felt like a rejection. It wiped me out . I think she was frustrated because of how out of it I was. She thought I was sleeping when she called. She asked me several times if I was doing drugs. I've been in bed since and I'm getting up now.

She sounds like a royal pain in the azz. Clueless.

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