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*Beth*
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Default Sep 26, 2021 at 04:59 PM
  #121
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Originally Posted by wildflowerchild25 View Post
My aunt wanted mine and my brother’s addresses so now I’m wondering what she’s going to send us. I thought it might be a card for some reason but there’s no reason to send us both one! I’m wondering if it’s going to be a sane message about wanting to spend more time with us or a completely insane one blaming us for the divide in the family. I guess I’ll find out in a couple of days lol.

In other news, my son might have covid I thought it was a bad cold as he tends to get those when the seasons change in spring and fall, but yesterday he told me he can’t taste or smell anything either. That’s classic covid. He’s not feeling any worse than he ever does with a bad cold so that’s a plus. Just a very stuffy nose and sore throat. Slight infrequent cough. But even if I took him to school tomorrow they’d kick him out due to how bad he sounds. Plus I can’t in good conscious send him to school without knowing for sure he’s negative. I have an appointment tomorrow to get him tested with a rapid test.

I got bored today so I made some apple cider cupcakes that are supposed to taste like apple cider donuts. They’re still cooling so the jury is still out!

Ugh, I hope he doesn't have covid. Hopefully he'll recover quickly.

Ohhhh....apple cider cupcakes

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Default Sep 26, 2021 at 09:42 PM
  #122
I ran some errands for mom and brother and I was the only one wearing a mask. My state is right up there in the top 3 for surges. At one time it was number one. People in this town act as if it doesn’t exist. SMH. I’m getting my booster Thursday. Mom is getting hers as well. Brother isn’t six months out so he’ll have to wait.

If I thought things were tough before…I had no idea how much tougher it could be. With mom’s broken wrist needing surgery and brother’s broken femur and both of them incontinent and mentally limited…I’m really, really busy. Difference - this time I’m taking care of myself as part of the equation. In the morning, I’ll get my iced coffee, some beautiful fall flowers and pumpkins to decorate. A brief getaway from the madness. I’m looking to rent a secluded cabin soon in the Smokies for a few days. Mentally….I’m fine. Physically….very, very tired with a hurt arm from helping my brother up from a fall. As my therapist reminds me…this is temporary.

My NP increased my Lithium due to my depression of last week. A total of 600 mg. I can’t tell whether it is helping or not.

I hope everyone has a nice week ahead!
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Default Sep 26, 2021 at 09:54 PM
  #123
Jennifer I’m so glad your taking care of you. That sounds exhausting.

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Default Sep 26, 2021 at 11:35 PM
  #124
I recite some Bible verses to calm myself. Even partial phrases help.

Do you pop your knuckles?

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Default Sep 27, 2021 at 02:53 AM
  #125
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Originally Posted by Jennifer 1967 View Post
I ran some errands for mom and brother and I was the only one wearing a mask. My state is right up there in the top 3 for surges. At one time it was number one. People in this town act as if it doesn’t exist. SMH. I’m getting my booster Thursday. Mom is getting hers as well. Brother isn’t six months out so he’ll have to wait.

If I thought things were tough before…I had no idea how much tougher it could be. With mom’s broken wrist needing surgery and brother’s broken femur and both of them incontinent and mentally limited…I’m really, really busy. Difference - this time I’m taking care of myself as part of the equation. In the morning, I’ll get my iced coffee, some beautiful fall flowers and pumpkins to decorate. A brief getaway from the madness. I’m looking to rent a secluded cabin soon in the Smokies for a few days. Mentally….I’m fine. Physically….very, very tired with a hurt arm from helping my brother up from a fall. As my therapist reminds me…this is temporary.

My NP increased my Lithium due to my depression of last week. A total of 600 mg. I can’t tell whether it is helping or not.

I hope everyone has a nice week ahead!
That's great you got the booster, Jennifer. It's sad that so many don't want (or understand) the value of its protection.

I truly admire all of the efforts you are putting towards your wellbeing. I do hope the time in the mountains is restorative. Flowers also do worlds of good for me.

Please be patient with the Lithium increase. Honestly, the mere fact that you continue to practice coping tools and seek stress relief is a great sign. Gosh, please give yourself a nice pat on the back for that! Hugs

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* Lamictal (lamotrigine) 150 mg
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* Lyrica (pregabalin) 100 mg

Last edited by Soupe du jour; Sep 27, 2021 at 03:20 AM..
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Default Sep 27, 2021 at 03:55 AM
  #126
Last night Hubby and I watched "Schindler's List". I had only ever seen bits of it. The beginning of the story was set in/near Krakow, Poland where we recently visited. The rest was in a town in Moravia near where we live now. Obviously it was a powerful movie. When in Krakow, we took a tour of its former Jewish section, called Kazimierz. Very interesting and important place to visit. Most of the then Jewish citizens of Krakow were murdered during WW2, by the Nazis. A much smaller number, including ones on Schindler's list, survived. Extreme nationalism and racism is so dangerous. It frightens me that it is on the rise again. Some of it is blatant, a lot a bit more subtle. I bring this up because the victims of such, during WW2, were not strictly Jewish, but also the disabled, mentally unwell, people with different sexual preferences, and others. I see such concerns as relevant here. It's dangerous thinking that similar (to any degree) can't happen again. It often starts slowly.

I didn't write the above to depress anyone. Rather to cite how exclusion and hate can create extreme harm. My husband and I read that as a child, Oskar Schindler's best friend was a Jewish neighbor and that he had fond memories of how the friend's parents welcomed him into their home. I can't help but assume that inclusion played a role in what he later did.

On a much lighter note, whenever our friend comes to CZ from the US he always asks us what we (or I) want him to bring. There are things we can't find here. The first time he brought us Press N Seal wrap. The second time two bottles of cooking sherry. This coming time we asked for waxed paper. None of these are available in CZ and I find it sad living without them. Funny these differences! And yet there are things here that are great, that aren't available (or as inexpensive) in the US. These include game meats, and certain fruit, as examples.

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Psych Medications:
* Tegretol XR (carbamazepine ER) 800 mg
* Lamictal (lamotrigine) 150 mg
* Seroquel XR (quetiapine ER) 600 mg
* Seroquel IR (quetiapine IR) 50 mg
* Lyrica (pregabalin) 100 mg

Last edited by Soupe du jour; Sep 27, 2021 at 05:21 AM..
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Default Sep 27, 2021 at 07:14 AM
  #127
So I got a letter saying the appeal to get invega sustenna covered was denied. The reason? "We don't cover it because, well, uhhh, we don't cover it (because it's expensive as fk and we want to profit off you, not actually help you)." (I may be paraphrasing but that's what the letter said minus the parenthetical. I could try appealing again but I have a feeling that won't get anything done. The nurse said they have samples but that's not always a guarantee. I would go to the pills, but they don't cover those either!

Happy National Chocolate Milk Day everyone!!!

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Default Sep 27, 2021 at 08:23 AM
  #128
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Originally Posted by Sapien View Post
So I got a letter saying the appeal to get invega sustenna covered was denied. The reason? "We don't cover it because, well, uhhh, we don't cover it (because it's expensive as fk and we want to profit off you, not actually help you)." (I may be paraphrasing but that's what the letter said minus the parenthetical. I could try appealing again but I have a feeling that won't get anything done. The nurse said they have samples but that's not always a guarantee. I would go to the pills, but they don't cover those either!

Happy National Chocolate Milk Day everyone!!!
Hi Sapien. Have you considered writing to Janssen Pharmaceuticals? They have a patient assistance program. Qualifying is not a guarantee, but you never know until you try. You can see info on that at Paying for INVEGA SUSTENNA(R) - Cost Support | Janssen CarePath It would be good to let them know that your insurance refuses to pay for it. Believe me, big pharma doesn't like that! Just a thought. Here's another link to their contact info, if of interest: Patient Assistance | Janssen United States Picking up the phone and calling their 800 number might be a good first step.

If I had tried Risperdal (also a Janssen product) and my doctor recommended Invega, instead, I'd be telling Janssen why I needed Invega over Risperdal. Didn't you recently write akathisia as the reason? Does your doctor think Invega might not cause the same reaction? I assume both have been effective for your moods and/or psychosis? I've taken both the pill forms of Risperdal and Invega, in the past. Neither gave me akathisia, but I understand we all have unique reactions to meds.

I haven't had chocolate milk in ages. Sounds yummy! Maybe I'll make some cocoa soon. It's been chilly, lately. I do have the ingredients to make that.

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Last edited by Soupe du jour; Sep 27, 2021 at 09:12 AM..
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Default Sep 27, 2021 at 09:08 AM
  #129
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Originally Posted by Soupe du jour View Post
Hi Sapien. Have you considered writing to Janssen Pharmaceuticals? They have a patient assistance program. Qualifying is not a guarantee, but you never know until you try. You can see info on that at Paying for INVEGA SUSTENNA(R) - Cost Support | Janssen CarePath It would be good to let them know that your insurance refuses to pay for it. Believe me, big pharma doesn't like that! Just a thought. Here's another link to their contact info, if of interest: Patient Assistance | Janssen United States Picking up the phone and calling their 800 number might be a good first step.

If I had tried Risperdal (also a Janssen product) and my doctor recommended Invega, instead, I'd be telling Janssen why I needed Invega over Risperdal. Didn't you recently write akathisia as the reason? I assume both have been effective for your moods and/or psychosis?

I haven't had chocolate milk in ages. Sounds yummy! Maybe I'll make some cocoa soon. It's been chilly, lately. I do have the ingredients to make that.
I got a letter in the mail saying I'm already in the savings program, but it goes through insurance so I'm not sure if I would pay the $10 they promise or more or even if it's applicable at all. I called, was on hold for 10 minutes, then was told to leave a voicemail and that someone would call me back. The risperdal worked for my psychosis/mania for two years then pooped out and that's why I'm on Invega now. I had akathisia (amongst a lot of other problems I don't remember) when there was a packaging error and I got 50mg instead of 37.5mg. I realize I should sue, but I just don't have the spoons for that right now. I can hang that over their heads though if need be.

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Default Sep 27, 2021 at 09:15 AM
  #130
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I got a letter in the mail saying I'm already in the savings program, but it goes through insurance so I'm not sure if I would pay the $10 they promise or more or even if it's applicable at all. I called, was on hold for 10 minutes, then was told to leave a voicemail and that someone would call me back. The risperdal worked for my psychosis/mania for two years then pooped out and that's why I'm on Invega now. I had akathisia (amongst a lot of other problems I don't remember) when there was a packaging error and I got 50mg instead of 37.5mg. I realize I should sue, but I just don't have the spoons for that right now. I can hang that over their heads though if need be.
I hope you finally hear back from them. Keep at em' if you need to.

I've never taken part in an assistance program, but someone must be able to tell you if the co-pay is $10 or not. A pharmacist, maybe? Anyway, best of luck with this, Sapien.

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Default Sep 27, 2021 at 09:30 AM
  #131
This is stupid. Invega's gonna poop out on me in a year or two anyways so why bother. (Pharmacist didn't tell me squat)

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Default Sep 27, 2021 at 10:10 AM
  #132
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I wonder if anyone else here has been regularly watching Jeopardy with Matt Amodio? My husband and I are big Jeopardy fans and we've loved this new major champion. The last show we watched he made it over $1,000,000. He's such a refreshing breath of fresh air. Unlike so many people, nowadays, this guy exudes "niceness". He has the sweetest smile and I enjoy everything he says. I'm getting so tired of and sad about how much hate there seems to be in the world, especially nowadays in the US. Hate does no one any good.
I was watching that 2 or 3 days ago before he got to a million. He is just super smart. Its like he has practiced the answers! And he does seem very nice.

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Default Sep 27, 2021 at 11:53 AM
  #133
I am essentially released but my mom can't get me until 7! So I'm just here packing up. I need a shower, but I'm going to wait until I get home I think as the shower here sucks. (Very low water pressure.) I'm not sure, but I think I have an in person appointment with pdoc this week. also I see her nurse and my case manager (I think). They should give me a schedule - or I can call and find out. I just found out that this closed-off area that I've never seen is the "psych ICU". I wondered what kind of patients were back there.

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Default Sep 27, 2021 at 12:08 PM
  #134
I’m doing ok today. I woke up around 5 and I took my antibiotics. I took them with a Mountain Dew and then at 6:30 I couldn’t figure out why I was nauseated. Until I realized I need to eat with those meds. So I ate a piece of white bread and I was fine. I watched the first episode of Drag Race UK season 3. It’s interesting. This season they have the first cis woman in the franchise's history. She didn’t look like what I expected her to look like but she’s cool. I’m glad people are understanding that drag is a form of art and anyone can do it.

Then I went to the library to pick up some books and I went to Target. I got a bunch of fall candy. The fall section at Target today was full but at Walmart the other day it was empty. These shortages are annoying.

I’m not sure what I’ll do next. I need to find something to do though. My anxiety isn’t bad for once. I haven’t taken my second Valium yet and I don’t feel the need to take any Geodon early. So I guess things are going good.

My doctors office called to say I needed a Covid test. And the hospital had already called last Thursday to set it up. So yeah they aren’t exactly on the same page. But it will be fine.

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Default Sep 27, 2021 at 12:18 PM
  #135
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Originally Posted by BeyondtheRainbow View Post
I recite some Bible verses to calm myself. Even partial phrases help.

Do you pop your knuckles?

Haha, yes I do pop my knuckle. And my toes

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Default Sep 27, 2021 at 12:21 PM
  #136
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Last night Hubby and I watched "Schindler's List". I had only ever seen bits of it. The beginning of the story was set in/near Krakow, Poland where we recently visited. The rest was in a town in Moravia near where we live now. Obviously it was a powerful movie. When in Krakow, we took a tour of its former Jewish section, called Kazimierz. Very interesting and important place to visit. Most of the then Jewish citizens of Krakow were murdered during WW2, by the Nazis. A much smaller number, including ones on Schindler's list, survived. Extreme nationalism and racism is so dangerous. It frightens me that it is on the rise again. Some of it is blatant, a lot a bit more subtle. I bring this up because the victims of such, during WW2, were not strictly Jewish, but also the disabled, mentally unwell, people with different sexual preferences, and others. I see such concerns as relevant here. It's dangerous thinking that similar (to any degree) can't happen again. It often starts slowly.

I didn't write the above to depress anyone. Rather to cite how exclusion and hate can create extreme harm. My husband and I read that as a child, Oskar Schindler's best friend was a Jewish neighbor and that he had fond memories of how the friend's parents welcomed him into their home. I can't help but assume that inclusion played a role in what he later did.

On a much lighter note, whenever our friend comes to CZ from the US he always asks us what we (or I) want him to bring. There are things we can't find here. The first time he brought us Press N Seal wrap. The second time two bottles of cooking sherry. This coming time we asked for waxed paper. None of these are available in CZ and I find it sad living without them. Funny these differences! And yet there are things here that are great, that aren't available (or as inexpensive) in the US. These include game meats, and certain fruit, as examples.

Schindler's List was a rough one. Half of my family are Jews from eastern Europe, so it hits home.

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Default Sep 27, 2021 at 12:24 PM
  #137
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Originally Posted by Sapien View Post
So I got a letter saying the appeal to get invega sustenna covered was denied. The reason? "We don't cover it because, well, uhhh, we don't cover it (because it's expensive as fk and we want to profit off you, not actually help you)." (I may be paraphrasing but that's what the letter said minus the parenthetical. I could try appealing again but I have a feeling that won't get anything done. The nurse said they have samples but that's not always a guarantee. I would go to the pills, but they don't cover those either!

Happy National Chocolate Milk Day everyone!!!

I wish I had some chocolate milk right now.

I'm so sorry, Sapien. What a ****ed up situation. I dunno...maybe appealing is worth a try? And what about a TAR?

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Default Sep 27, 2021 at 12:29 PM
  #138
Autumn hugs all around.

Took a Klonopin this morning, 20 minutes later my anxiety lessened at least a little bit - which is a lot. I'm caught in a maze and I bet that new dipshite pdoc won't prescribe enough K-pin for me to take 2 1mg/day. Why do meds always have to be a battle?

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Default Sep 27, 2021 at 01:06 PM
  #139
I’m lazy today. I’m still in my pjs. I have plenty to do but good sleep was elusive and I’m just sluggish. But I do gotta go to the pharmacy.

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Default Sep 27, 2021 at 01:17 PM
  #140
I guess I have a new therapist. I’m not sure about insurance yet but I have an appointment on the 11th. She has a lot of trans clients and also knows about autism and is comfortable with people with eating disorders. I’m taking this all very carefully though since I’ve gotten my hopes up a lot of times with a lot of different things and people.

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Thanks for this!
Soupe du jour
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My Support Forums

My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.

 

Helplines and Lifelines

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Always consult your doctor or mental health professional before trying anything you read here.