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Legendary
Member Since Apr 2012
Location: Earth
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#21
BeyondtheRainbow I'm sorry so much is going on. I hope you catch a break.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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Legendary
Member Since Apr 2012
Location: Earth
Posts: 15,318
(SuperPoster!)
12 5,638 hugs
given |
#22
So my husband is pretty much decided to come home at the end of the month. No idea what this means for my nephew. This is not the outcome we wanted. We'll help anyway we can but h needs his Drs too. We'll see what the next week's bring.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,273
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#23
My pdoc put me on 50mg of topamax at my last appointment. I gagged my way through my oatmeal this morning. Even my Coke zero was yuck. Do you guys think this is because of the topamax, people who have been on it?Maybe I'm just having a weird day or something, but jeez! It tasted vile.
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,664
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#24
Topamax made me sick. I think mainly diarrhea but also nausea. I take 25 mg because it does seem to have some benefit but I doubt it is much. Anything over 25 mg is impossible.
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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raspberrytorte
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,603
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#25
topemax made everything taste awful and i was dumber than a box of rocks!
__________________ schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,273
9 9,159 hugs
given |
#26
I've only been on it for three (?) weeks now. Until today I noticed no side effects from it.
I was put on it to hopefully lose some weight. __________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,273
9 9,159 hugs
given |
#27
Do you take it primarily for mood stabilization, or are you on it for weight control?
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Wanderer of Distant Stars
Member Since May 2012
Location: North Carolina, USA. Originally New York
Posts: 25,789
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#28
Today is a really good day. My mood is pretty good, I am getting through each day getting used to my husband.
__________________ Tales of Love, Motivation, and An Interesting Journey - Please Subscribe to my Website on WordPress: Inspired Odyssey's Path to Wellness and Love |
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Legendary
Member Since Apr 2012
Location: Earth
Posts: 15,318
(SuperPoster!)
12 5,638 hugs
given |
#29
My daughter is on topamax for weight management. She says things just don't taste right.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
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Wise Elder
Member Since Apr 2015
Location: US
Posts: 9,664
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9 11.9k hugs
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#30
I started it for migraines but stay on it for mood stability. I was hoping for weight loss as a side effect but my dose is too low.
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,273
9 9,159 hugs
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#31
Yeah. My oatmeal tasted like snot or something, and I made it the way I normally do and usually it's good! I had to make myself finish it (because I don't like throwing food out).
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
bizi, Crazy Hitch, Nammu
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,273
9 9,159 hugs
given |
#32
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Poohbah
Member Since May 2018
Location: Toronto, Canada
Posts: 1,364
6 84 hugs
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#33
I had several really low days. It has passed now, I'm feeling better.
The depression just eased off, it's still present but not as bad as it was for those several days. I'm still scoring high on the PHQ-9. I went to the gym and had a good workout, and now I'm tired but it's a good tired. I'm still having coordination issues but that might get better with practice. I bought a big protein shake on the way home. I see my pdoc tomorrow, I'll tell her about the low days. Maybe she'll change my meds. I'll also discuss ECT with her - my family doesn't want me to do it. __________________ * Dx: Unspecified Bipolar and Related Disorder * Rx: Remeron, Prozac, Klonopin My avatar picture is a photo of the Whirlpool Galaxy I took in April 2023. I dedicated this photo to my sister who passed away in July 2016. |
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ɘvlovƎ
Member Since Nov 2013
Location: Australia
Posts: 19,192
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#34
When you’re that depressed you’re on the brink of tears all day. That’s me. But I must soldier on!
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Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
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#35
I took topamax way, way back, oh about twenty years ago. Don’t remember that it did anything positive or negative. Didn’t need to lose weight but was hoping for an increase in mood. But nothing.
I keep putting off washing clothes. Ugh it’s such a chore now that I have to use a laundry room. Really really need to get it done tho. I was feeling sort of in the dumps. Grey weather for days now. But I went downstairs to play dice. The lady with the dice didn’t show up so I just sat with a few others and we chewed the fat. Was a fun reminiscing of old times. We did the Minnesota good bye for 40 minutes. Feeling much better now. Got my mail. And cut all the cardboard up so it’s ready to take down to recycling. __________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
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raspberrytorte
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Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 38,791
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#36
I am starting to reduce my moring Topamax. Man I didn't realize how much brain fog and word salad it caused! I'm down 50mil from 75 and I'm able to talk to people. The lady at the cafe asked if I needed help and I said "oh, no. I've been helped already." Before I would have just looked at her cluelessly and then to my mom for her to answer for me.
It does cause weight loss at least for me, but you end up gaining it back eventually even if you still are taking it. I've heard that from other people too. __________________ I'm Blue Last edited by Mountaindewed; Dec 11, 2023 at 04:59 PM.. |
Legendary
Member Since Apr 2012
Location: Earth
Posts: 15,318
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12 5,638 hugs
given |
#37
So I'm having massive anxiety and sh thoughts. Feel like I can't breathe and my chest is being ripped apart. Can't tell anyone. I told h about the anxiety, not about the thoughts or paranoia or sh. He wants to come home now but can't. I'm worried he can tell I'm not alright. I just want the ****en medicine so I can take it. Why does it have to be on backorder? I'm honestly thinking a little sh is harmless. But I know they won't trust me if I do that. I know he can't read my thoughts but I kinda don't at the same time like it's a possibility.
__________________ Dx: Me- SzA Husband- Bipolar 1 Daughter- mood disorder+ Comfortable broken and happy "So I don't know why I'm tongue tied At the wrong time when I need this."- P!nk My blog |
Crazy Hitch, Nammu, raspberrytorte, wildflowerchild25
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,273
9 9,159 hugs
given |
#38
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
Crazy Hitch
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,181
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#39
I just couldn’t stand it anymore! I was up till early this morning unable to sleep, afraid of what the Lunesta might do. I gave up at 3:30 and took it and fell asleep before it kicked in- I think! Crazy dreams ensued and I woke up at 11:30 a.m. feeling that falling into my own body feeling over and over again. I got up and talked with my non-boyfriend for hours as usual. I kept experiencing the sensation of starting the same moment in time over again from millisecond to millisecond though it SEEMED to be the normal progression of time it felt like I was stuck. N3 picked me up and he and his gf and I went to Chili’s for a late lunch. I didn’t dare drive myself. While at the restaurant I felt that I was floating next to and along with my body which eased along as I walked to and from the bathroom. I knew then that it was a good thing that I didn’t drive.
I left a message for my case manager and then called the people who intervene between patients and their providers to get my side effect experiences to my Pdoc. Soon after, I got a call from my case manager who said she’d gotten the message from Clinical Coverage that I’d called and said my Pdoc said to stop the Lunesta tonight for good and that she was putting me on Rozerem. Just for seven days. Apparently, it works with melatonin in your body. Melatonin supplements have done nothing for me so I expect this will be the same but we’ll see. Tonight, either way, will be long as I will be without any sleep aid at all. __________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Legendary
Member Since Oct 2004
Location: usa
Posts: 11,603
20 2,808 hugs
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#40
I called my pdoc office and explained about the trintellix and how very down i am and sine hes gone to part time he has no opening til next august and is trasnferring me. so now i have to see someone new and cant see them til jan 10th. i cant stop crying. i cant take this right now. i trusted him and he was nice and idk if ic an trust this shane guy. im just doing really ****** today and cant quit crying. he said there was nothing he could for me bc hes booked and i need to be seen. i JUST saw him dec 5 when he put me on that hellish med.
i just need a long drive to mysefl __________________ schizoaffective bipolar type PTSD generalized anxiety d/o haldol, prazosin, risperdal and prn klonopin and helpful cogentin |
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