FAQ/Help |
Calendar |
Search |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#1
If you have been receiving SSDI for many years: how often does the SSA re-evaluate your case? During re-evaluation, does the SSA rely on your medical records, send you to their own Dr., or both?
Cross-posted in Insurance and Finances. __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
Reply With Quote |
Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,712
(SuperPoster!)
14 53.9k hugs
given |
#2
When I got SSDI I was designated as long term. I don’t recall the proper terminology but it was years before they contacted me. They just sent me a form occasionally that asked the name of my doctors and dates of if any hospitalizations. I think in thirty years I got maybe three forms to fill out. I never heard back from them after filling out the forms. No idea if they contacted drs and hospitals to follow up on veracity. I’m 65 now.
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
Reply With Quote |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#3
MINE? Are they called MINE, medical improvement not expected?
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
Reply With Quote |
Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,712
(SuperPoster!)
14 53.9k hugs
given |
#4
It was over thirty years ago and I don’t remember much I was not stable at the time. I had medical diagnoses of Deafness, mental health diagnosis of bipolar and PSTD. I was just devastated at the letter. My whole world fell apart. I only applied to make my psychiatrist happy. I did not expect to be approved and certainly did not expect to read in black and white my prognosis was so dim.
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
Reply With Quote |
Discombobulated, FloatThruThis, Tart Cherry Jam
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#5
Quote:
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
|
Reply With Quote |
Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,712
(SuperPoster!)
14 53.9k hugs
given |
#6
Yes. The deafness was since age 3 and a half, I never considered it a disability. The bipolar and ptsd were new and the whole psychological world was new to me. Now days they might have called it cptsd but I overcame the ptsd it’s no longer an issue. And at long last my bipolar has been stable since starting latuda. But now I have hardware in my back that keeps me from walking or standing much, if not for that I’d go back to work. I don’t feel 65.
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
Reply With Quote |
Legendary Wise Elder
Member Since Jun 2016
Location: Where the sidewalk ends
Posts: 36,510
(SuperPoster!)
7 8,891 hugs
given |
#7
I got re-evauated about 1.5 years ago. They just took a look at all of the doctors I was seeing and approved me without any needing any furthur info.
I've had to do other very lengthy re-evaulations that have involved paperwork from my pdoc, and my therapist, and my mom, and I had to submit some stuff in myself too. That only happened once. __________________ Ridin' with Biden |
Reply With Quote |
Tart Cherry Jam
|
Tart Cherry Jam
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#8
Quote:
am very glad that you do not feel 65 and that Latuda helps so well. __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
|
Reply With Quote |
Nammu
|
Crone
Member Since May 2010
Location: Some where between my inner mind and the solar system.
Posts: 71,712
(SuperPoster!)
14 53.9k hugs
given |
#9
Yes. I can sit. I joined the Y about 3 years ago and was doing water aerobics and a class for seniors that has weights. It was an intense 45 class of dance moves, weights, yoga movements and mindfulness. Its purpose is to increase longevity and decrease falls. But after I moved into the apartment I now live in I did less and less then not at all. The apartment has increased dramatically my social life but increased the sitting around talking, playing games and eating out. I need to rejoin the Y.
__________________ Nammu …Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe no less than the trees and the stars; you have a right to be here. …... Desiderata Max Ehrmann |
Reply With Quote |
Wanderer of Distant Stars
Member Since May 2012
Location: North Carolina, USA. Originally New York
Posts: 24,952
(SuperPoster!)
12 9,316 hugs
given |
#10
I have been getting re-evaluated like clockwork every 7 years. I don't know who made that determination that I have to re-certify and fill out a bunch of paperwork, but it's been happening every 7 years since I was first approved years ago, I am not sure how long.
__________________ Tales of Love, Motivation, and An Interesting Journey - Please Subscribe to my Website on WordPress: Inspired Odyssey's Path to Wellness and Love |
Reply With Quote |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#11
Quote:
You wrote about yoga and I remembered sitting yoga I once did as part of a therapy group. It was so much fun! __________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
|
Reply With Quote |
Nammu
|
Nammu
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#12
Quote:
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
|
Reply With Quote |
Wanderer of Distant Stars
Member Since May 2012
Location: North Carolina, USA. Originally New York
Posts: 24,952
(SuperPoster!)
12 9,316 hugs
given |
#13
Interesting, never knew that. I had been hospitalized every year (at least twice), since I have had disability so I can see how that makes sense and they would think that.
__________________ Tales of Love, Motivation, and An Interesting Journey - Please Subscribe to my Website on WordPress: Inspired Odyssey's Path to Wellness and Love |
Reply With Quote |
Tart Cherry Jam
|
Member
Member Since Aug 2015
Location: Florida
Posts: 346
8 |
#14
I was never re-evaluated. Never had to fill out any additional paperwork after I was accepted.
|
Reply With Quote |
Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 5,623
9 5,145 hugs
given |
#15
I've been on it eight years now? Was reevaluated after the first three years Had to fill out all the same forms when I had initially applied (from me, husband, doctor, therapist, case manager, etc.), but haven't been reevaluated since then. I'm overdue, now that you mention it.
__________________ The darkest of nights is followed by the brightest of days. |
Reply With Quote |
Tart Cherry Jam
|
Monster on the Hill
Member Since Sep 2020
Location: by the river
Posts: 4,394
(SuperPoster!)
3 4,985 hugs
given |
#16
I’ve been on it 6 years and I think I got reevaluated one time after a year or so after and that’s it.
__________________ Live life for nothing but that sweet sweet melody. |
Reply With Quote |
Tart Cherry Jam
|
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#17
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
Reply With Quote |
Elder
Member Since Jun 2015
Location: Czechia
Posts: 5,155
8 13.4k hugs
given |
#18
As already mentioned, the time between re-evaluations depends on how likely you are deemed to recover enough to go off disability. Upon initial approval, this is determined by your past history and current situation, and could later change again if your condition worsens or vice versa.
Read SSA - POMS: DI 28001.020 - Frequency of Continuing Disability Reviews (CDRs) - 08/09/2023 for the most detailed response to your question. When I applied for SSDI I had 10 psych hospitalizations and 12 IOPs within the 3 1/2 years that preceded it. My condition had worsened, greatly, over that period. In between, I had attempted to return to work several times, most attempts lasting short periods and only reaching part-time. Only once did I reach full-time again for a while, which was followed by my worst of the bad episodes, including ECT. Initially on SSDI, I received CDRs more frequently. My condition was still very bad. There are "short form CDRs" and "long form CDRs". The latter requires more details and generally comes less frequently. They ask questions like if you've returned to work/school or how likely that might be, in your doctor's opinion. More detailed questions relate to what you are able to do most days (capabilities for Activities of Daily Living). As Nammu wrote, if deemed a very long-term (or permanent) disability, the reviews are years between each other. As also mentioned, they'll ask for updates on any new mental healthcare providers and the frequency that you usually see them. Though not relevant to most people here, know that an American collecting SSDI (or SS retirement) can continue receiving it if they move abroad (with a few exception countries...maybe Iran, Russia, Syria, or the like). This is not the case for SSI. In the former cases, this is arranged through a designated American embassy in (or near) the foreign country. There are other steps, too. Also, if a review requiring a doctor is needed, there are designed "approved" local doctors for that. __________________ Dx: Bipolar type 1 Psych Medications: * Tegretol XR (carbamazepine ER) 800 mg * Lamictal (lamotrigine) 150 mg * Seroquel XR (quetiapine ER) 600 mg I also take meds for blood pressure, cholesterol, and tachycardia. Last edited by Soupe du jour; Feb 04, 2024 at 05:48 AM.. |
Reply With Quote |
Magnate
Member Since Mar 2021
Location: California
Posts: 2,685
(SuperPoster!)
3 1,205 hugs
given |
#19
I was about to ask about moving as I was reading the post, but you already answered @Soupe du jour at the end of it.
__________________ Bipolar I w/psychotic features Last inpatient stay in 2018 Geodon 40 mg Seroquel 75 mg Lybalvi 5 mg as a PRN Gabapentin 1200 mg, Vitamin B-complex (against extrapyramidal side effects) Long term side effects from medications some of them discontinued: - hypothyroidism - obesity Suspected narcolepsy Treated with Ritalin 5mg |
Reply With Quote |
Elder
Member Since Jun 2015
Location: Czechia
Posts: 5,155
8 13.4k hugs
given |
#20
Quote:
__________________ Dx: Bipolar type 1 Psych Medications: * Tegretol XR (carbamazepine ER) 800 mg * Lamictal (lamotrigine) 150 mg * Seroquel XR (quetiapine ER) 600 mg I also take meds for blood pressure, cholesterol, and tachycardia. |
|
Reply With Quote |
Tart Cherry Jam
|
Reply |
|
Similar Threads | ||||
Thread | Forum | |||
SSDI recipients: how often is the disability re-evaluated? | Insurance and Finances | |||
Disability questions (SSDI & SSI) | Insurance and Finances | |||
Disability SSDI | Insurance and Finances | |||
Help!!! Ssdi evaluated me to improve | Insurance and Finances | |||
SSDI disability or back to the grind? | Bipolar |