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Silver Swan
Member Since Jan 2008
Location: USA
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#21
Quote:
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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#22
My discharge paperwork says “You were admitted to the hospital for changes in your thinking and clarity. We think that these changes may have been due to side effects from the combination of medications you have been taking. We would like for you to simplify your medication list by stopping Wellbutrin (bupropion) and propranolol (Inderal). Please continue Invega and Ingrezza at your current doses. Please follow up with your therapist for additional guidance on these medications.”
They said “therapist”. I don’t have a therapist. I assume they meant my Pdoc/Nurse practitioner. __________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) Last edited by Moose72; Jun 08, 2024 at 05:31 PM.. |
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Silver Swan
Member Since Jan 2008
Location: USA
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#23
How am I supposed to get through tonight when I slept too much today? A 3 hour nap when I slept in this morning too! Oh I just misread what I just wrote ! I hope I’m not in for another sleepless night.
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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#24
I Can’t sleep. Slept too much today and this medical show I was watching has me anxious. It’s too quiet and I’m wide awake at almost midnight. Help!
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
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#25
I can't sleep either.
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Silver Swan
Member Since Jan 2008
Location: USA
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#26
Saw Pdoc. She was like “so you were in. the hospital…”. No ****ing kidding! Is this new news to you just this very moment? She increased my invega to 3 mg to help with the voices. I was feeling spacey on the way back from my appointment driving. Right now I’m cold and in a sweatshirt jeans and under a blanket. I just felt like Pdoc was unprepared for my appointment. Makes me upset.
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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#27
I just took my night meds- including the higher dose of invega- 15 minutes ago. Pdoc said to take it 1 hour before I want to sleep. That was at 8. I haven’t noticed that I get tired an hour after I take it.
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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#28
I texted my case manager about 15 minutes ago that I can’t stand the akathisia so I’m going off the invega. Voices be damned! She hasn’t replied but I don’t expect her to. I also added “that’s if the akathisia isn’t permanent already…”
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,243
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#29
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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16 2,714 hugs
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#30
Quote:
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Wise Elder
Member Since Apr 2015
Location: US
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#31
Have you been on clozaril? I am pretty sure it has a pretty low risk for akathesia or other EPS symptoms and once you get in the routine of blood draws it's a pretty easy med.
__________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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#32
No no clozaril. I thought it was a last ditch med?
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
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#33
I had a rare bad reaction to clozaril. Extreme water retention, swelling, edema in my ankles, respiratory problems.... my psychiatrist said he'd never seen anything like it! And he's pretty much retired right now and July is his last month. Not to mention the DROOLING. I had a DROOL towel at night. Lol. And all the blood draws... ugh. It worked well though. Made me nice and fat and jolly. But was overall a miserable experience for me. Had to abruptly stop it, went through withdrawal, and THAT was a miserable experience... the anxiety! Omg!
Obviously everyone is different though. And like I said, I had a very, VERY rare bad reaction to it. So I think it's worth a shot, if you're running out of options. What APs have you all tried? Seroquel? Prolixin? Abilify? Haldol? Latuda? I'm trying to think of any others I've tried... Abilify gave me akathisia, Haldol worked great for seven years but then started giving me muscle rigidity and stopped working, and prolixin just worked me up and made me anxious and I hated it. It was like an evil Haldol. I was on latuda for like a day and just remember it making me feel really high. Right now I'm on seroquel, which is working great (no delusions or hallucinations), and 50mg of loxapine, but I know you were just on loxapine and it didn't work out for you. Anyway, meds are frustrating! Has your akathisia gone away? __________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Wise Elder
Member Since Apr 2015
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#34
It is but if you're running out of options and especially if you are running out of options that don't cause akathesia/EPS it might be time to consider it. It is annoying the first year to get frequent blood draws but after that time it's just once a month. The main side effects I've had from it are drooling at night and I wear an incontinence pad at night because every so often I sleep too deeply and wake up realizing that I'm peeing. (I have overactive bladder which probably makes this one worse for me than usual). Otherwise it's a little sedating but I've needed other meds for sleep with it so it's not very sedating for me. Weight gain was a problem initially but I started metformin and that controlled it. I've been on it 8 years and I'm really glad. I don't know if you're there yet but if you're running out of meds it might be worth a shot. __________________ Bipolar 1, PTSD, GAD, OCD. Clozapine 250 mg, Emsam 12 mg/day patch, topamax 25 mg, ,Gabapentin 1600 mg & 100-2 PRN,. 2 mg clonazepam., 75 mg Seroquel and 12.5 mg PRNx2 daily |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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16 2,714 hugs
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#35
Quote:
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Member
Member Since Jun 2024
Location: Washington
Posts: 158
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#36
I didn't read all the comments, so excuse me if someone has already said this. But I'm on 3 mgs of invega and it has caused eps symptoms for me as well. When I get anxious, my lip kind of rolls in my mouth and I get horrible tremors.
I'm on 3 mgs of cogentin and 40 mgs of prpinol I spelled that wrong sorry. But they do help. Ubut something that is the most bothersome is the blurred vision from the cogentin causes that. I stay on it bc it has taken away my period and I have really heavy periods and a lot of cramps. I have a lot going on in my personal life. Hope this helped you! |
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Silver Swan
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Location: USA
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#37
I have completely stopped the invega. Still dealing with TD. It can get bad but last night I slept thank god. Right now I don’t care what Pdoc says about going off. I much prefer the voices!
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Insert Smiley Face
Member Since Mar 2015
Location: USA
Posts: 6,243
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#38
Quote:
__________________ The darkest of nights is followed by the brightest of days. 😊 - anonymous The night belongs to you. 🌙- sleep token "I'm scared. I'm old. I want to go home!" 😁 - anonymous |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
(SuperPoster!)
16 2,714 hugs
given |
#39
Quote:
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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Silver Swan
Member Since Jan 2008
Location: USA
Posts: 17,163
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16 2,714 hugs
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#40
I finally broke down and called the after hours line at my Pdoc office. The nurse I spoke to said while the tremors are no fun it’s not and emergency. She contacted my Pdoc, case manager and the RN that works with them. They are supposed to call me tomorrow. The nurse also said that since I haven’t been on the invega that long that the akathesia should reverse itself.
__________________ Ingrezza 80 mg Propranolol 40 mg Benztropine 1 mg Vraylar 1.5 mg, Gabapentin 300 Mania Sept/Oct 2024 Mania (July/August 2024) Mania (December 2023) Mixed episode/Hypomania (September 2023) Depression, Anxiety and Intrusive thoughts (September 2021) Depression & Psychosis (July/August 2021) Mania (April/May 2019) |
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