Meds

Victoria'smom · Oct 18, 2024, 12:26 AM

I'm thinking about going on dissolvable meds again then they can't come up. So the only options are ability and zypexa. I've taken them both before. Zypexa made me sleepy and didn't take away the symptoms and I had breakthrough symptoms with ability. I'm likely to panic and evacuate my medication for the first little while. Id say I have the option of injection too but then I would have to leave the house and that's not happening. I know I need to be on something but convincing myself that taking the medicine wasn't a bad idea that I can fix for long enough to do it's job seems impossible.

BeyondtheRainbow · Oct 18, 2024, 12:47 AM

I think lamictal may have an ODT (it may be a chewable) and depakote has sprinkles you put on food and swallow that way. I know you need an AP but maybe one of those could be a support med?

You did pretty well while on the injections of Abilify didn't you? Where I did home health we had a program that provided 2 nurses who did FT psych stuff and they gave injections. I think that you could be on there caseload just for the injections. Might be worth calling some home health places.

Victoria'smom · Oct 18, 2024, 01:23 AM

Lamictal odt was good for me. I stopped it because of a change in psych Dr who no longer wanted to give me odt. I had to many med compliance issues with lamictal with the pills.

Abilify injection would seem to run out week 3 and it was hell getting me to the clinic and making sure the right nurse was on duty or I would refuse it. The odt will ability only goes up to 15 and insurance won't pay for two tablets a day.

So my best bet is to see about zypexa again. Now you can go up to 30mg maybe that will make a difference.

MuddyBoots · Oct 18, 2024, 03:32 AM

Saphris is dissolvable too. The black cherry one tastes like a warhead and the regular tastes like butt though. Does abilify have injections that last supposedly for three months now?

BeyondtheRainbow · Oct 18, 2024, 04:38 AM

There's also an Invega injection. I know that doesn't solve the difficulty getting the shots, just thought I'd throw it out there.

Victoria'smom · Oct 18, 2024, 06:27 AM

I don't think I can take invega because resperidone gives me a long qt. I worry about taking forms that are less than 1x a month because my symptoms returned before time was up. Id rather not Saphris because I don't get to pick butt flavor or cherry flavor. I'm so sad that after a year and a half of good med compliance I'm back here.

Victoria'smom · Oct 18, 2024, 06:39 AM

Looking for a home health nurse I found this program. " residents and help adults aged 60+, people with disabilities, and people with early on-set Alzheimer’s Disease or related dementia successfully age in place. " Does that mean I qualify or do I have to have dementia or Alzheimer's?

MuddyBoots · Oct 18, 2024, 06:41 AM

Could you time them for about how long the injection lasts? My haldol decanoate lasted only 3 weeks so I would get the shot every three weeks instead of four. There might be some push back from insurance on that though for abilify since it's newer, but maybe your doc could help with that.

If you can do first gens prolixin and haldol come in LAIs too, and stelazine comes in a liquid but I'm not sure if that'd be easier to keep in your system.

If you think Zyprexa would help a bit though, I'd think that'd be a better plan than starting something that may or may not work/be tolerable.

MuddyBoots · Oct 18, 2024, 06:43 AM

Quote:

Originally Posted by Victoria'smom

Looking for a home health nurse I found this program. " residents and help adults aged 60+, people with disabilities, and people with early on-set Alzheimer’s Disease or related dementia successfully age in place. " Does that mean I qualify or do I have to have dementia or Alzheimer's?

Grammatically, it insinuates you need all three, but you can call and ask if they just don't know the proper use of the word "or."

Victoria'smom · Oct 18, 2024, 07:20 AM

As much as everyone says I'm good at advocating for myself. I am not. If I have push back it's likely I'll be like **** it nevermind.

Victoria'smom · Oct 18, 2024, 08:04 AM

I guess Aristada is the only IM that's over 15 mg of abilify. So I'm going to ask for that. I feel it's a huge step back though.

unaluna · Oct 18, 2024, 08:36 AM

Quote:

Originally Posted by MuddyBoots

Grammatically, it insinuates you need all three, but you can call and ask if they just don't know the proper use of the word "or."

No, its 3 separate groups and you only need to be in one, and vsmom fits into the 2nd group, people with disabilities. The "or" just applies to the 3rd group, which is people with any kind of dementia.

MuddyBoots · Oct 18, 2024, 09:55 AM

Quote:

Originally Posted by unaluna

No, its 3 separate groups and you only need to be in one, and vsmom fits into the 2nd group, people with disabilities. The "or" just applies to the 3rd group, which is people with any kind of dementia.

Oh yeah, you're right. Sorry it was early and I read it as "residents and adults aged 60+, people with disabilities and with early on-set Alzheimer’s Disease or related dementia successfully age in place."

Una's right, victoriasmom

Victoria'smom · Oct 18, 2024, 10:36 AM

So I called and they sent the referral out. So we'll see what they offer me. I'm going to try to get on ARISTADA INITIO® + ARISTADA 882 mg + one 30 mg dose.

unaluna · Oct 18, 2024, 11:10 AM

Quote:

Originally Posted by MuddyBoots

Oh yeah, you're right.
Una's right, victoriasmom

I got TONS of practice in ands and ors and "not ands" and "not ors" as a computer programmer.

Also in sentence diagramming in catlik skul.

I scored high on my gmat because i scored only kinda high in math AND verbal, an usually peeps aint good in both, just one or t'other. It makes you a systems analyst. I bet you are too, mud.

Victoria'smom · Oct 18, 2024, 11:48 AM

She said no and that she has to research the best medicine for me and call me back.

Victoria'smom · Oct 18, 2024, 11:58 AM

**** man, why can't I just be normal. This ***** is going to put me in the hospital.

MuddyBoots · Oct 18, 2024, 12:02 PM

Quote:

Originally Posted by Victoria'smom

**** man, why can't I just be normal. This ***** is going to put me in the hospital.

Ahh, the question I’m sure everyone on this forum has asked at some point or another. It was the Abilify she said no to? Did she give a reason?

Moose72 · Oct 18, 2024, 12:43 PM

Quote:

Originally Posted by Victoria'smom

She said no and that she has to research the best medicine for me and call me back.

Have you thought about doing a genesight test? It tells you which meds could give you a reaction or not. Lots of info. Free if you have Medicaid!

Victoria'smom · Oct 18, 2024, 12:44 PM

She said certainly she can do that but how are you going to get the injection. Id need a home health aide.

Then we went through the list of medication I've been on at what dose and why I came off them. Then she said she has to figure out the right medicine for me so she'll call back today.

I could have had stability in 4 days. I'm tired of this ****. My t is right she doesn't know it because she worries easily but my ability to brush off my thoughts as Sza thoughts is fading.

I don't want to take new medicine, I don't want to wait months, I don't want to cry and arguing for 30 mins thinking I was wrong to take the medication and I can fix it, Anna's back, eating is hard and the images in my head aren't for polite company, a long with hearing ****,seeing ****, and not sleeping, it's not fun.

MuddyBoots · Oct 18, 2024, 12:54 PM

I hope your pdoc figures it out today. You shouldnÂ’t have to go through this, and I agree that where you are at right now is unacceptable and unsustainable. Where are you at in terms of safety and self care right now?

Victoria'smom · Oct 18, 2024, 12:54 PM

I haven't done genesight. I'm so frustrated. I'm asking for help before I loose it but no.

Victoria'smom · Oct 18, 2024, 01:02 PM

Possible trigger:

almost tried to tear my veins out of my wrist with my teeth at 3 am last night while laying in bed next to h.

my self care is ****ed. Eating is ****ed. I'm convinced I'm going to gain a ton of weight on whatever I'm put on. I'm trying but I almost want madness to take me away and be like told you.

Victoria'smom · Oct 18, 2024, 01:42 PM

Her answer is Caplyta. I want to say no, I want to cry, I want to throw things. Why can't people understand that I can't take pills especially now.

Moose72 · Oct 18, 2024, 01:44 PM

Quote:

Originally Posted by Victoria'smom

Her answer is Caplyta. I want to say no, I want to cry, I want to throw things. Why can't people understand that I can't take pills especially now.

Forgive me for not remembering but why can’t you take pills?

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