[Murren]

Have been through hell over last 2 years because of my stinking thyroid! I am a successfully (or so I thought!) treated bipolar sufferer on lithium for 10 years however it now seems that the lithium may have caused severe recurring thyroiditis. Dealing with sceptical endocrinologists has been soul destroying. The symptoms have been torturous and my last consultant blindly increased my lithium inducing a serious lithium toxicity.
The problems are that recurring thyroiditis is rare and consultants are reluctant to remove my thyroid despite positive scans and bloods because thyroiditis (not recurring) should be a temporary condition.
Anyone else had a similar experience?
Desperatly seeking a thyroidectomy! stopping lithium has been deemed not an option.

[Michah]

Hi there,

Yes, you are in a bad situation........and the symptoms of thyroiditis are horrendous.

I have had thyroid problems for last 3 years and was put on lithium in 2007. I had a goiter a couple of years ago and it has gotten worse. I have been to see a surgeon and I am seeing an Endo at the end of this month. I am on thyroxine but I do not know if I am hypothyroid yet.

It sounds like you have tried to do alot for your situation.........and "normal" blood results are not necessarily a given as I am sure you know. Some of mine are also in range but this is the sickest I have ever been in my life.

I really feel for you.........I do not have any real answers as there is so much you need to consider.

I am a member of a really good thyroid forum and some of the women on there have had thyroidectomies and are really knowledgeable........I recommend you join

http://thyroidhost.proboards30.com/index.cgi

Good luck sweetie, please feel free to msg me if you want to talk further......