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Azralin
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Default Jan 11, 2022 at 08:42 PM
  #1
It seems very common for people to experience neglect due to chronic illness. The experience can be incredibly isolating, especially when a parent makes you feel guilty for being the way you are and is accentuated when they ignore or dismiss your needs as being non-existent. As I see a thread for this is not yet created, I wanted to generate a space for people having such experiences to discuss them and receive support from others who also have.

To break the ice, while not necessarily an illness, I am an adult who has recently been diagnosed with autism and other nuerodivergancies. Throughout my life, due to circumstances beyond my control, showing emotions of any kind could be quite dangerous and would set off other conditions my parents had. I was consistently dismissed as a hypochondriac for thinking anything at all was wrong with me when I struggled, and have twice been threatened with institutionalization when having panic attacks as a method of getting me to shut up. Love was tied to performance and overtime I worked myself into hard positions that became dangerous to me because I over-extended myself. Lacking explanation, it was difficult to connect with peers as I was excessively emotionally subdued and struggled with most things others considered normal, being only an irritation to my peers. Finding out about my conditions has given me solace that my struggle is real and that this dismissal was inappropriate among other experiences I've had.

I'd hoped this was uncommon, but have recently met several other friends who have struggled with mental illness and chronic health conditions which were only made worse by neglect. While I am starting to feel better, many others are not. It's hard to find spaces to get friends the support and resources they deserve as many people are intensely ashamed about their experiences.

If anyone has any resources for online groups supporting chronic illness or conditions or would like to share their experiences to find others who have also experienced similar, it would likely be beneficial to post them here.
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Default Jan 12, 2022 at 04:14 PM
  #2
I am sorry that you had to endure that ordeal. What a shame and how heartbreaking! I went through something similar but it is too painful for me to talk about. Someday I will. Wish I knew what to say that would be helpful to you and others going through the same kinds of experiences or who have gone through them.
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