[Amoslass]

Noone can give me a definite answer of where I will be with my genetic disorder in 1 year..5 years...10 years....

I have something rare and weird and noone ever knows what it is. I have something that can't be calculated. Will I be in a wheelchair net year? will I be in so much pain that there is only one last solution?

I'm only 31 but I feel about 85. I look so normal but I am in pain all the time. I am tired. Tired of this disorder, tired of me, tired of being tired. I don't feel like I am living. I don't know anymore.....

[Leed]

Dear Amoslass ~ Can you tell me what it is that you have??? I'm so sorry you have this disorder. If I knew what it was, perhaps i can do some research on it. I often research things like that.

Please let me know -- or you can message me if you don't want to post it here. God bless, and i hope to hear from you. Hugs, Lee

[Sunna]

Dear Amoslass,
I am so sorry you are having such a difficult time in your life right now. It sounds almost unbearable and yet here you are asking if someone can tell you how much worse it will get.

When I read your question a long forgotten aquaintance of mine popped to my mind. If not that I met this woman, lived in her home for a while, talked to her, saw her heart and her honesty, I would probably never believe her story. Because it is impossible by what medicine tells us.

She was diagnosed with arthritsm. She was in chronic, overwhelming pain and couldn't walk even a few steps without passing out. Sometimes it was so bad that she was incapable of a rational thought.

She does not claim she found a cure the doctors missed, some secret pill you can pop and make it all go away. She reasearched and tried things. The process took her 11 years, but she suceeded.

Her primary tool for healing was meditation. She had to deal with her mind and her emotions first and foremost. She meditated on anger, fear, and the pain itself. She found meditation alone would decrease her pain.
She also dealt with allergies and clearing her body. Allergies are misunderstood by many, who think that's when your eyes water and you need to pop a Claritin. That's one kind of allergy. The other is that our bodies react with inflamatory antibodies to foods. Eating these foods does not have to make us acutely sick (that would be like Celiac's) but it will create a chronic level of inflammation in our body. The immune system often is implicated in chronic seemingly "causeless" pain. The other thing is toxins that we've accumulated in our tissues over a lifetime. Altogether she found 9 pathways to a what I would describe as a complete mind and body overhaul. It apparently works for people not just with arthritism but other forms of chronic pain. Her techniques are not unique. She did not invent meditation. She did not invent food rotation. She did successfully put it all together and cured herself from what seemed a hopeless condition.

The disease totally transformed her life, for the better. If you asked her, if she could, would she choose to never had gone through all that agony when just laying in bed was painful, her answer would be a resounding "No way!".

(Since we are not supposed to peddle "cures", I am not telling the title of her book or her name. In any case, it is not about her. Other people have gone similar route and have similar success stories. I just happen to know this one personally.)

[bebop]

I think only your dr could answer those questions. I know how it feels to be in constant pain but honestly no one knows how long we will be like we are.