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Old May 22, 2012, 11:36 PM
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Leed Leed is offline
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Location: Michigan
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I've been a chronic painer for 26 years now and I'm just so tired!!! I've had several spinal surgeries, which did more harm than good. I've had a spinal cord stimulator implant for 6 months, and later had to have it removed cause believe it or not, it started to work itself OUT. It wasn't helping anyway. I've had every-single procedure that a pain specialist can do in a pain clinic, and nothing worked. And now the problem is that the doctors are all afraid to give me the proper dose of pain medication to even TOUCH the pain, let alone reduce it!!! Presently I'm on Opana 40mg twice a day, and that does absolutely NOTHING. Before this, I was on Methadone 10mg, TWICE a day. Can you believe that???

Im very hard to medicate too -- I'm the kind that wakes up DURING SURGERY whenever they put me out. I woke up during my spinal surgeries and it was a GENERAL anesthesia!!! I was on my stomach, and they couldn't see my face as I was face down in a 'cut out" for my face -- so they didn't know I was awake for a long time. I couldn't move cause they gave me curare!! So here I was awake while they're cutting on my spine!!! YIKES. The same thing happened 2 other times during surgery. So giving low doses of medication just doesn't work.

I'm in such pain right now -- and HAVE BEEN for the last 26 years that I want to tear my hair out-- but I can't get ANY doctor to understand and i've been everywhere. Teaching hospitals, pain clinics, specialists, you name it. Right now my GP is taking care of me cause I've gone to all the pain clinics and no one will take me anymore since I've had all the procedures done. Doctors are just too afraid to UP the dosages -- so I suffer to the extent that at times I want to vomit the pain is so bad. The ER doesn't help. They MIGHT hand you 2 Vicodin & tell you to see your doctor.

Thanks for listening. I just wanted to whine---maybe I'll have a little cheese with it. Seriously tho, my family gets tired of hearing it, so thanks again. God bless. Hugs, Lee
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gma45, kindachaotic, lizardlady, lorider, missbelle, shipping
Thanks for this!
missbelle

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  #2  
Old May 23, 2012, 01:23 AM
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Trippin2.0 Trippin2.0 is offline
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So sorry you've been suffering like this. I admire your whining, very ladylike and proper of you, I'd be tearing my house apart in your shoes. You've just confirmed what I've known for a long time... You're amazing will keep you in prayer
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  #3  
Old May 29, 2012, 01:36 AM
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shipping shipping is offline
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That was a good whine. You deserved a chance to get that said.

I, too, do not have good response to pain med, and twice during surgery with a local I could feel the pain, was moaning involuntarily, but the doctor wouldn't stop cutting into my nerves. I think it was because I am brown. They think I am a drug-seeker.
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  #4  
Old May 29, 2012, 01:55 AM
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gma45 gma45 is offline
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Leed I need to take lessons from you as to how to whine. Maybe that is why know one is around anymore, I whine a lot worse than that and I haven't had any surgeries just pain. I have gotten so confused as I don't want to get high I just want to be able to function. You are right the Dr.s will not listen to people like us. I have arthritis and fibromyalgia, etc.... The pain meds they had given me has killed my liver. I just don't think there is any relief I am on methadone now and it barely touches it after I work just a 4 hour shift. I wish I had some answers but I don't. You can whine here any time!I just added him for a little comic relief! Take care!
  #5  
Old May 29, 2012, 06:32 AM
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Leed Leed is offline
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Member Since: Oct 2010
Location: Michigan
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Thanks everyone -- There are so many of us "out here" that you'd think the medical community would wise up !!! But they don't. They just send us home in the same shape we were when we came to their office.

I went to the doc the other day and he added a WHOLE 10mg. of Norco. Jeez, wasn't that NICE of him?? Does he REALLY think that's going to do anything??? Good grief. I might as well take an aspirin.

Awww heck. I think I'll go out back and play in the mud.
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lizardlady, missbelle
  #6  
Old May 30, 2012, 07:27 AM
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missbelle missbelle is offline
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Location: Fairfax, Va.
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Whining is good.......none of us mind Leed. I whine myself!!!!!!!!!!!!!!
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  #7  
Old Jun 22, 2012, 04:47 PM
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misscath007 misscath007 is offline
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Location: Florida, U.S.
Posts: 293
So sorry you are in so much pain, Leed. It sounds like something you have lived with for a long time, must be so tiring on you. I am in pain now from a herniated disc & I have been considering surgery.

((((Lee))))
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  #8  
Old Jun 22, 2012, 09:11 PM
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Leed Leed is offline
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Member Since: Oct 2010
Location: Michigan
Posts: 6,543
Thanks MissCath ~ I really appreciate it. And I'm sorry you are in pain too. Herniated discs are no fun to deal with! Talk to you soon! Hugs, Lee
  #9  
Old Jun 22, 2012, 09:26 PM
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unaluna unaluna is offline
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Location: Milan/Michigan
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my brother says he has helped unhelpable pain with biofeedback.
  #10  
Old Jun 23, 2012, 03:52 AM
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kindachaotic kindachaotic is offline
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Member Since: Aug 2011
Location: Southeast US
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This is out of the box. My BIL went to a methadone clinic to stay off street drugs. He was on something like 70 or 80mg a day.
Not saying you have an addiction problem but 10mg x2 a day isn't hugh considering you are hard to medicate.
INS may not cover it but just throwing it out there as a last resort.
Seems like he had to go once a week to get the methadone.
Don't know if this helped.
Feel free to whine all you need. I personally think you are tough as nails.
You are in such pain but are always giving others support on the forums.
Class act in my book!!

Hope you somehow get relief.
  #11  
Old Jun 23, 2012, 04:10 PM
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Perna Perna is offline
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Member Since: Sep 2006
Location: Maryland
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Quote:
In the event that conservative measures are not effective, we offer the full spectrum of neurosurgical options.
From: http://www.michiganpainspecialists.c....php?pageID=18

Does this mean they are willing to just take out your brain?

Sorry you have such a tough, painful time, Leed! I'd take some of it from you if I could (Wait, Girl, what you saying????) I know constant pain is no fun; cannot imagine it for that long.
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