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Default Jan 31, 2018 at 06:38 PM
  #161
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Originally Posted by Gus1234U View Post
The Fibromyalgia check in thread #4

Happpy Happpy Birthday Jan~! late but not forgotten~!

Sending you my most powerful energies for your healing~!
Happy Belated!! I can’t believe I missed it
Anyway, I hope you were ok. Miss you!
Hugs,
Kiya

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Default Jan 31, 2018 at 06:43 PM
  #162
Hi everyone- miss you all. In week 6 of a shoulder impingement that hurts like a you know what. PT yesterday had me in tears. Adding insult to injury, I forgot to wash the ultrasound gel and massage cream off... 5 hours later I put a lidocaine patch on and a few hours later had a chemical burn

I never thought I’d be at a point where 2 events per day would be too much... alas. Logging into here is a 3rd thing too many for all the editing I have to do on this small phone screen.
Always with you all in spirit.
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Default Jan 31, 2018 at 07:40 PM
  #163
I posted awhile back about my reaction to all the talk of sexual harassment/ abuse in the news. I asked Doc John for permission to start a blog here at Psych Central. I created it here:

Liz's Lair

So far there's not much there except a "hello" post. I'm still sorting out how the whole thing works.

Emotionally I've come a long way since I first posted my reaction to the news. Back then I was falling apart. Old demons were lose. I felt like I was falling apart. Now I'm full of anger - not at myself, at my abusers. At every last single S O B who ever hurt another person. Hmm, this is not the place to vent that. I wanted to invite all of you to visit my new lair.
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Default Feb 01, 2018 at 01:54 AM
  #164
The Fibromyalgia check in thread #4

herro~

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Default Feb 01, 2018 at 11:26 PM
  #165
Thank you Liz , I don’t know how to use a blog.

I’m glad that your feeling better, I can relate to your struggle.

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Default Feb 01, 2018 at 11:39 PM
  #166
Moved back the 15 th , was sick with asthmatic bronchitis before we left Florida. So settling back in being so sick has been difficult to say the least. Was put on Steroids and that never plays well with my Bipolar , I feel so bad for my husband I have been terribly snappy and mean

I finally feel like I’m getting back to normal , least I can breathe now.

Had my Mammogram if there was anything in there they would pop it because they have you so flat and in a vice ( eye roll) and Labs done today.

I can’t get into see a Rhuematologist til April !!! But it is what it is... my GP has no problem refilling my Lyrica, not sure it helps but too scared to stop it lol. I did stop the sulfasalazine, and not sure it really was helping. The next step is biologics .... will have to really research those to see if the risk is worth it.

There’s my update.

Roll call ?????

I will try to keep up on everyone here, I feel so bad when I can’t but when I’m hurting it’s hard for me type about it , make sense?

Gentle hugs to all

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Default Feb 02, 2018 at 12:08 PM
  #167
The Fibromyalgia check in thread #4

i know you're there~ O.O

(Christina~ they have a digital (sonagram) mameo machine now that does not require smashing... hope they have one near you...)

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Default Feb 02, 2018 at 09:41 PM
  #168
I need to have the sonagram one done next go around. This mammo really hurt , still hurting tbh. My mother and both grandmothers had Breast cancer and my grandmothers both died from it. I get mammograms twice a year just due to family history, but yes smooshed flat is just more pain to add to my day.

On a happy note my NP called today and was not pleased with my waiting til April for rheumatologist appt and got me in on Monday. Yay !

I’m hopefully this Doctor will believe in Fibro and not brush it off like others in my past have done. I also have PsA which I have proof of at least, terrible to be happy about having a provable illness.

I guess I need to spend time researching the biologics this weekend as I expected to have more time.

None of the oral meds have offered PsA relief, Otezla for scalp psoriasis has worked wonders, but I will have to stop that to take a biologic, I’m not sure what to do , hopefully this Doctor will be a good one and take time to discuss options and pro/cons.

I love that bunny !!! Looks very huggable

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Default Feb 03, 2018 at 07:32 PM
  #169
The Fibromyalgia check in thread #4

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Default Feb 03, 2018 at 09:52 PM
  #170
(((Christina))))
Good call, Gus, on the sonogram. I join the band wagon of:
Abuse
Flashbacks
Panic
Found a possible lump that I have to have examined
TERRIFIED
Also terrified to have it examined
Plus they started pushing for mammograms last year (40) and this year are really pushing it.
Add DID to the mix, fight/flight, and having one internal kid that bites and one that’s a runner with a squished body part and I’m thinking this is not a good thing. Especially with new stress responses of catatonia and pseudo seizures.
Yike.
So I am also glad to know there might be another alternative if needed.
My appointment is Thursday.
Did I mention I’m terrified?
More hugs, Christina.
And (((((hugs)))) to Liz.

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Default Feb 04, 2018 at 03:42 AM
  #171
Thank you for the pics, Gus. I love that Bunny!
(I'm hugging it.)

Kiya, I wish I could go with you, Thurs. By all means, insist on the easy kind of mammogram.

Christina, there is a shampoo that the dermatologist gave me for my psoriasis. It's Ketaconazole. That's a close spelling. It works well.

I don't know how a blog works either, but I'm going to read yours, Liz.

I think my depression meds need to be increased. I have no energy at all and I'm sleeping the day away except for a few hours. I'm too tired to do anything.

Belle definitely does not like her socks. Her feet get so cold on this floor and I went ahead and put them on her. She didn't like them at all, but I left them on for a while hoping she'd adjust. She looked like a cat being forced to walk in water. I found her on the bed, shaking. She had managed to take one off by herself and she gave it a good chewing! So, I had mercy and took them all off her.

I love you all.


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Default Feb 04, 2018 at 12:09 PM
  #172
Jan, this is going to sound weird, but have you tried telling Belle the socks are to keep her feet warm? I swear they understand more than we think.

Kiya, can you have an internal dialogue with alters and ask they let someone who can cope with the mammo deal with it? That used to work for me sometimes.

For those interested in the blog. There's nothing to it. Click on the link I posted. It will take you to my posts. So far there is only a short one saying hello.

Has anyone heard from Cake? She hasn't posted in a long time. Am worried about her.
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Default Feb 04, 2018 at 11:32 PM
  #173
Kiya .. thank you for the hugs much appreciated!! I agree , see if you can have an alter that can handle the appt be present, I know a couple people that can manage there alters to a slight degree maybe more.

Jan......Belle is so lucky to have you !!!!! Yes socks take some time to adjust too, I had a pup once that loathed them so bad I had to just give up... lil guy did ok cold feet and all lol he was a hoot ! I have that shampoo and a liquid solution to use if need be , but if I go forward with treatment for PsA I have to stop the Otezla and honestly even using the shampoo and liquid daily I still scratched til I bled and looked like a dog with mange ...psoriasis and the arthritis that can go along with is ridiculous.

Liz I will try and get on your blog to help support you maybe it doesn’t work right since I am on my phone using Tapatalk ?? I know I can’t give hugs , just thanks. I just don’t have the energy to pull out my laptop to be honest. It hurts more to type on that than sit here using my phone.

Tomorrow I see new Rheumatologist early am then T at 3 .

I think I am becoming obsessed with wanting to make one of the big chunky throws that you use your arms to do it. I just want one so bad, YouTube shows me how but I imagine it to be much harder lol I think the problem will be how much the material will cost. Oh well it’s okay to have a dream.

Gus !! All your pictures bring me joy ! You find the best ones!!!!

I am also very worried about Cake I do hope she is okay

Gentle hugs everyone

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Default Feb 05, 2018 at 05:12 AM
  #174
I am around... I'm just having a rough time mentally. Just wanted to pop in and say I'm still here.

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Default Feb 05, 2018 at 02:32 PM
  #175
The Fibromyalgia check in thread #4

we had the hot air balloon fest this weekend. they take off from the big field next to the hot springs, and what a sight that must be from the air~! they used to take off from the resort nearby me, and would pass right over my house to land in the field across from me~!

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Default Feb 06, 2018 at 12:33 AM
  #176
Glad you checked in Child

Gus ... oh my goodness that must be an amazing sight.

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Default Feb 06, 2018 at 03:01 AM
  #177
The Fibromyalgia check in thread #4

face your fears head on.... hide from your pain~

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Default Feb 10, 2018 at 12:02 AM
  #178
Jan, yes- try telling Belle... also mimicking what they are for and then putting your own shoes on. I’ve done that with my pets.

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Default Feb 10, 2018 at 12:16 AM
  #179
(((( all ))))
Did go to the exam- dr didn’t find anything concerning (yay!) but thought *I* wouldn’t be ok until I knew for sure via imaging. Told her if she says I’m ok, I’m ok. Often I can get the kids to go do something else while I do these appointments, but not this time. They wouldn’t leave my side.
Dr kept talking about the mammogram and I stared at her blankly. Said I couldn’t do it.
“I think you can”
Shook head.
“I think you can”
Shook head.
“We’re not at a point where I feel I need to force you to do it... but... you’re 41, and over time... this.... you need to work through this with your therapist.”
I shook my head.
“Would your therapist come with you?”
I highly doubt it and I couldn’t do that anyway.
She was not up to considering another form of imaging. Or rather that insurance demands this first and then more if need be.
I tried to explain to her my switching parts, the issues of being topless, and the Little’s trying to fight or run while clamped in. @_@
She sort of got it... but said I was doing fine there with her.
I’ve known her 3 years, I’m lying down and mostly covered, I don’t have to actively participate in any way, and I took 2.5mg Valium and 1mg Ativan to tolerate that. I also almost didn’t make it several times.
In my head, the image presented to me is of the kids scrunching up in a ball on the floor and letting loose their high pitched screams. Really not what I want to go thru.
Plus, the littles bite....

Anyway, good news is that I don’t have to come back for a year unless anything changes.

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Default Feb 10, 2018 at 12:18 AM
  #180
Hope cake is ok too!!!

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