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Old 08-29-2021, 07:18 AM   #301
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Default Re: Fibromyalgia Check-In Thread #6 ...

Quote:
Originally Posted by lizardlady View Post
In addition to the exhaustion and body aches now my digestive system joined the party. I still don't know if this is Covid or some other bug, but if I ever find out who gave it to me I'm gonna drive 'em into the ground head first like a tent stake.
I got a Covid test this afternoon. They said two business days to get results. I guess that means Tuesday.... *sigh*


good luck.

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Old 08-29-2021, 11:03 AM   #302
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Default Fibromyalgia Check-In Thread #6 ...

“10 Ways to Relax That Require 10 Minutes or Less


Hey

Ron here...

While it would be nice to just take a long vacation or check out of work each day for a few hours, most of us have limited time and opportunities to relax. However, we usually do have 10 minutes here and there throughout the day.

There are several ways you can relax in just 10 minutes or less. Do this a few times a day, and you’ll find that you might not need that long vacation.

Use these methods to relax in as little as 10 minutes:

1. Meditate. The benefits of meditating are many. It’s incredibly popular right now but has been around for thousands of years. Experts often claim that even just one minute of meditation per hour is enough to gain benefits.

2. Control your breath. Your breath is one of the few parts of your physiology you can control. Slower, deeper, breaths will help you to relax. Focus on the feeling of your breath passing through your mouth or nostrils. Count your breaths if you find that helps.

3. Visualize a peaceful scene. Our moods follow our thoughts. Think about something pleasant, and you can expect to experience a more enjoyable mood.

4. Spend time with your pet. Pets are a blessing. They require little and ask for even less. They’re always happy to see you. Cuddle up with your pet and notice how much better you feel. Your pet will love the extra attention, too. Don’t have a pet? Borrow a friend’s pet.

5. Talk to a friend. Call up a friend, or even better, have a face to face. A few minutes spent chatting with a trusted confidant can do wonders for your stress levels. You’ll also be maintaining your relationships.

6. Take a short walk. A long walk is even better, but if you only have 10 minutes, a short walk can help a lot if you’re feeling stressed. Pay close attention to your surroundings while you walk. It will keep your mind off your challenges for a few minutes.

7. Listen to music. Music has an amazing ability to alter one’s mood. Think of a few songs that will put you in a mood you’d rather feel. Listen away! If you don’t happen to have those songs available at the moment, YouTube has just about every song available for free.

8. Chew gum. Chewing gum has been shown to be an effective reducer of cortisol, the primary stress hormone. Many people like to blow bubbles, too. You can lower your stress and amuse yourself at the same time.

9. Sit outside in the sun. Relax for a few minutes on a nice day and enjoy the sun. The warmth on your body can be a great mood booster, and you’ll get a nice dose of vitamin D, too.

10. Write down everything that worries you. One way to be less stressed and anxious is to write down everything that’s bothering you. Get it out of your system and down on paper. By externalizing it, you’ll often find that things aren’t quite as bad as you thought.

If you’re regularly feeling stressed, it’s important to do something about it. Not only is it miserable to feel stressed all the time, but it’s terrible for your health.

If you want to relax, make time for it each day. Ten minutes can be enough to take the edge off your stress levels. Don’t allow 10 minutes to go to waste. Use them to relax!

Ronald Smith
Rare Disease Story Shirt”

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Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata

Last edited by Cocosurviving; 08-29-2021 at 11:39 AM..
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Old 08-30-2021, 12:17 PM   #303
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Default Re: Fibromyalgia Check-In Thread #6 ...

Why Medical Gaslighting Isn’t Always Easy to Spot.

Why Medical Gaslighting Isn’t Always Easy to Spot | The Mighty

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 08-31-2021, 05:20 AM   #304
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Default Re: Fibromyalgia Check-In Thread #6 ...

new echo is good, though I wish i'd saved my money to buy voltron. can't aford it now and need to wait

had some good food the last few nights.. not been perfect, but not making me gag or anything so that has to be in plus

sleep's been the usual, basically none

I can't believe that tomorrow I've been back from the hospital for a weekk. it's litirally flown by..
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Old 08-31-2021, 10:06 AM   #305
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Default Re: Fibromyalgia Check-In Thread #6 ...

so I just saw my mental health team for the 7-day follow-up after being discharged from the hospital

oh my god, talk about annoying and a day spoiler. they just can't accept I'm okay.... jesus.
ah well: I'm going to try not to think about it, tonight I'm having pizza and garlic bread. should take my mind off it for a while

and I got you all too. gal couldn't wish for more, right?
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Old 08-31-2021, 01:44 PM   #306
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Default Re: Fibromyalgia Check-In Thread #6 ...

Got my Covid test results - negative! I still feel like poo though so I did a teledoc appt. He agreed with me that it sounds like a respiratory infection. He called in scripts for a z-pack and some albuterol for my nebulizer.
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Old 08-31-2021, 03:23 PM   #307
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Red face Re: Fibromyalgia Check-In Thread #6 ...

Sorry you pfeel like crap but elated that it is NOT Covid! ...

Hope you're pfeeling better soon!

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Old 09-01-2021, 07:26 AM   #308
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Unhappy Re: Fibromyalgia Check-In Thread #6 ...

Nothing imminent, & no current plans, but ...

I don't think I can take another 10-15 years living in this kinda pain ...

Knowing it's only going to continue to get worse ...

Knowing there's nothing that can be done pfor or about it ...

Needless to say, none of that offers much encouragement or hope!

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Old 09-01-2021, 01:49 PM   #309
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Default Re: Fibromyalgia Check-In Thread #6 ...

(*(*(*(*pflower*)*)*)*)

I've said almost exactly the same thing about the pain. There are days it seems Neverending and I don't think I can deal anymore. I've found the only thing I can do is ride it out.

So sorry you are feeling this way.
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Old 09-02-2021, 01:16 PM   #310
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Default Re: Fibromyalgia Check-In Thread #6 ...

almost slipped on a wet floor this evening. didn't, walked the other way in sted but that would have hurt

feel this week has gone pretty quickly despite all the flashbacks and memories of hospital making it seem like it's gone slow

glad it's the start of the weekend tomorrow. I always prefer to the end of the week to the beginning, no idea why: I seem to do the same no matter what the day is so it shouldn't really matter.
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Old 09-06-2021, 09:32 AM   #311
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Default Re: Fibromyalgia Check-In Thread #6 ...

Recent respiratory infection has me exhausted. If I sit down I fall asleep. *sigh*
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Old 09-06-2021, 01:03 PM   #312
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Red face Re: Fibromyalgia Check-In Thread #6 ...

((( @lizardlady ))) ...

Perhaps rest is best ...

Stuff like that tends to hit peeps like us twice as hard!

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Old 09-09-2021, 01:37 PM   #313
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Red face Re: Fibromyalgia Check-In Thread #6 ...

My Body Be Like ...

Fibromyalgia Check-In Thread #6 ...

May Thursday Be Kind To Us!

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Old 09-14-2021, 01:19 AM   #314
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Default Re: Fibromyalgia Check-In Thread #6 ...

Hey Ladies

Ugh why are we all struggling with a variety of garbage? Like seriously can't we catch a break!

My Bipolar has me buried with auditory hallucinations and one of the worst Fibro flares in forever. Its back to like a 8. I still can't take a deep breath

Does anyone else have trouble breathing from a Fibro flare??

Liz I hope you feeling better by the time you see this..

Pflower I could have typed exactly the same thing

Maybe we will all have some good days coming?? I so hope we do. I'm like literally stick a fork in me I'm done
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Old 09-14-2021, 08:38 AM   #315
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Red face Re: Fibromyalgia Check-In Thread #6 ...

Good to see you @~Christina ...

Gentle hugs, & hopes pfor better days somewhere along the way ...

Because life shouldn't be so harsh!

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Old 09-17-2021, 11:35 AM   #316
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Default Re: Fibromyalgia Check-In Thread #6 ...

I've been looking at fibro awareness t-shirts to buy some. One has a kitty wearing boxing gloves that says "I fight fibro. What's your superpower?"

Then there's "I don't look sick. You don't look stupid. Looks can be deceiving

Or....

If I woke up in the morning and nothing hurt I'd think I was dead."

And....

I may not look sick on the outside, but on the inside it's like my body is trying to kill me."
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Old 09-17-2021, 04:34 PM   #317
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Red face Re: Fibromyalgia Check-In Thread #6 ...

The kitty one sounds extra cute, but if I could only pick one ...

It would definitely be the Looks Can Be Deceiving one!

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Old 09-19-2021, 12:10 AM   #318
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Default Re: Fibromyalgia Check-In Thread #6 ...

Being on Disability Does Not Mean I'm 'Lazy' or 'Lucky'

“I have been told the following quotes recently after people finding out I’m on disability:
1. “You’re so lazy, you don’t do anything all day.”
2. “You’re so lucky to not have to work.”
3. “Man, I wish I had your problem.”
I hear these on a regular basis. I suffer from debilitating chronic pain as well as a handful of mental health issues, and I can honestly say I am not lucky or lazy. In fact these words are quite hurtful.

So to those who said these comments, please take this into consideration:

1. I can’t work because I am always in pain. If it felt like someone was stabbing you in the abdomen every two seconds, would you?

2. I am not lazy. I physically cannot move. Yep, that means I can hardly even walk two steps without crying some days.

3. My day revolves around medication, doctor visits, and even finding the strength to get out of bed. Please tell me how you would want this. I wouldn’t wish it on my worst enemy.

4. I miss working and socializing. This is not fun. I miss being a “productive” member of society and doing what I love.

5. It takes a lot of fight to even get on disability. It takes endless documents and months to process. I am on it because I need it. I am not lazy or lucky. However, being on disability is something that I am not ashamed of. Although, with comments like these, some days I feel like it’s something I should be. Please take time to consider why someone is on disability, or even better, look into it. It actually takes a lot of courage and strength.
For those of you who are on it – never be embarrassed! You are not lucky or lazy, you are doing the best you can. We should be applauded for going through what we are. Disability and all.”

Being on Disability Does Not Mean I’m ‘Lazy’ or ‘Lucky’ | The Mighty

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 09-19-2021, 10:01 AM   #319
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Default Re: Fibromyalgia Check-In Thread #6 ...

Some more fibro awareness t-shirts...

"I suffer from fibro. I don't have the energy to pretend to like you."

"I have three moods
1. tired
2. exhausted
3. basically dead

"Fibro... it's like having the hangover without the party."

"The seven dwarves of fibro... grumpy, sleepy, achey, shakey, nervy, dopey, grouchy"
(Side note - I've said this about myself for years and never knew it was a t-shirt!)

"Not to brag, but I totally got out of bed today"

"My energy level is equivalent to a sloth on sedatives."

"We don't know how strong we are until being strong is the only choice we have."
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Old 09-21-2021, 11:48 PM   #320
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Talking Re: Fibromyalgia Check-In Thread #6 ...

Hey all!

It's been a couple years since I've been here at the forums. It's nice to see all who's here. I'm sad to hear ya'll are still suffering so much from the fibro. I've been able to get a bit more relief by upping the strength of my duluxatine recently. I don't know how long it will last but some relief is better than no relief right?

I'm trying to find some energy again as I had a heart attack a couple of weeks ago. It was quite an experience and I ended up getting 2 stents and put on some more meds (just what I needed *sigh*). I seem to be doing pretty good except for my energy & strength. It's making me crazy. Oh, and the fact that I almost always have to take a nap everyday.

Well, like I said, it's awesome to see you folks again & I wish you all gentleness & peace.
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