[lizardlady]

Thanks hon.

very painful today getting ready for the day, took way longer than it needed to.

taking a full few minutes to put on one item of clothing... well.. not having much luck

[Pflowers]

Well, as predicted, MetLife took all my SSDI Lump Sum Payout ...

All but the 5k in attorney pfees!

I mailed them the check yesterday ... Dammit ...

[Cocosurviving]

•I Just Need to Vent and Get My Feelings/Frustrations off My Chest. I’m not Seeking Feedback.

•I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community.

•Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle.

•I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets.

•I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups.

•The Constant Flare Ups Really Trigger My Depression.

•I’m Tired of being in Pain.

•I’m Tired of Missing Training/Workshops.

•I’m Tired of Feeling Nauseous.

•I’m Tired of Medical Bills.

•I’m Tired of ****** Health Insurance.

•I’m Tired of Fatigue.

•I’m Tired of Dealing with Vitamin Deficiencies.

• I’m Tired of Constantly Sleeping.

•I’m Tired of Chronic Hives.

•I’ve Tired of Swelling.

•I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom.

•I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema.

•Today I’m also Tired of Crying.




Sent from my iPhone using Tapatalk

I still feel super drained from my shower this morning.

ow it really hurts!

it took me around 15 minutes this morning to get 3 items of clothes os

ow

[lizardlady]

Still struggling with the sinus infection. Called Teledoc Thursday. She ordered me stronger antibiotics and stuff for my asthma. Started the new stuff last night. We'll see how it goes.

I made the mistake of telling the Queen B about still being sick. Asked if I might be able to take breaks during the day. She lived up to her nickname. Basically told me I needed to do my job. Gawd I miss my old boss. He would've told me to do the best I could, but take care of myself.

[lizardlady]

Pflower, I was repotting some of my orchids and thought of you. Here are some pics


Bought this one to celebrate selling my mom's house.

Some pretty blooms...


Here are most of the rest of them in their "winter home" AKA my bathtub.

[Pflowers]

Those are beautiful @lizardlady!

Mine's still in pfull bloom ...

They take their sweet time reaching pfull bloom, but ...

Once they're there, they let us enjoy them pfor a long time.

Thanks pfor sharing!

in a lot of pain.

showered today and well..... almost broke my body

[Cocosurviving]

Ups and downs

Downs
I was symptomatic for three weeks. Chronic Illnesses flare up. I attended three medical appointments last week… my primary care, endocrinologist and immunologist. I started another medication to control Hashimotos.

Fibromyalgia
I experienced a week of increased Fibromyalgia pain. I usually have a lot of pain in my legs, arms and tender points in my feet.
I have an appointment in two weeks with my Rheumatologist.

Depression
My depression is usually triggered by my chronic illnesses. I definitely have days I’m so frustrated with being symptomatic. I get upset about having a crapload of medical bills…..so much is not covered by insurance. I’ve applied for Medicaid multiple times and apparently I’m not poor, poor. I keep getting denied.

Venting
In a society that attempts to push toxic positivity on womxn, I’m glad groups and forums exist.
It helps to clear my head and frustrations. It’s a process to brainstorm and figure out solutions.
I really do get exhausted from chronic illnesses, health insurance bs, medical bills and out-of- pocket expenses not covered by health insurance.
It was hard receiving phone calls, letters and e-mails about multiple medical bills. They do not care if you make payments. Most hospitals don’t seem to relate to people who are on a fixed income and want medical bills paid off in 3-4 payments. They definitely fail to comprehend a lot of people with medical bills have several medical bills. I had medical bills sent to collections while I was making payments. I noticed that one hospital
listed the same medical bill twice. I did contact the credit bureaus.

Ups

I decided to space my medical appointments out more. I had appointments with specialists weekly and every two weeks. I started making detailed notes to get the most out of my appointments and having my provider check that I have refills.

When I’m symptomatic I sleep a lot. I took naps and went to bed a lot earlier than usual. I ate a lot of fresh vegetables and fruits.

I enjoy functional paper planning and attending virtual workshops. I use money management sheets to track my medical bills and the payments I make. I include the account numbers.

I pick workshops that interest me and align with the personal growth that I seek.
I popped in last week the last 30 minutes for two workshops (Monday and Thursday). Friday I participated in a full healing *🩹 gathering that lasted about 45 minutes.

I’m still going to bed early. My teenager school district is out of school this week. Parent Teacher conference is next week.

I’m excited that Feb 28th is Rare Disease Day. I have several autoimmune diseases but also have two rare diseases.

[Pflowers]

I'm over the Medical Industrial Complex!

I want to place a HUGE Tattoo across my chest that says ...

"HEAL ME AT YOUR OWN EXPENSE!
I REFUSE TO ACCEPT PFINANCIAL RESPONSIBLITY PFOR ANY & ALL MEDICAL CARE!".

Maybe if they see that, they'll just let me expire on the table and be done with it.

Pfat lot of good their mistakes & pfailures have done me anyhow.

[lizardlady]

What happened pflower?

[Pflowers]

Nothing new @lizardlady ...

Just how Doctors / Insurance / BIG PHARMA look out pfor one another - the patient be damned is all ...

It's a damn disgrace!

[lizardlady]

They can be frustrating beyond all reason. Sorry they are giving you trouble.

[lizardlady]

Fibro friends I need advice from those who understand.

I have a very good friend who has been shuttling between a nursing home and the hospital with a laundry list of health problems. She's back in the hospital. She's also Covid positive. She's asymptomatic. Covid is not the reason she's in the hospital. I'm trying to decide if I should go see her. As far as I know none of the docs have said anything about end of life, just that She's got a host of medical problems going on.

Part of me thinks I should go see her because it's the "right" thing to do. A larger part of me thinks knowingly exposing myself to Covid is incredibly stupid.

Complicating things even more she no longer answers her phone when I call and does not reply to texts. I'm sure she is depressed. Who the heck wouldn't be in her situation? But how the devil can I offer support if she doesn't pick up the phone or read her texts?

Part of me doesn't want to throw away a 50 year friendship. On the other hand, she started cutting me out of her life before she got sick.

All of that aside, I could use your input on the idea of visiting her given her Covid status.

[Pflowers]

I definitely would not knowingly expose myself to Covid @lizardlady ...

Not even up pfor consideration!

Especially with all the other health issues you have going on!

You stated that she had already started cutting you off before all this happened, so I'd attempt one more contact by calling the hospital & asking to be connected to her room phone (she may not have hers on her).

If there's no response, then perhaps send one last text letting her know you care & are concerned pfor her, and for her to call or text when she pfeels up to chatting.

Sometimes pfriendships end because they've run their course. It doesn't make it any less painful - especially one that's lasted so long. Doesn't mean anybody's the good guy or bad guy. Sometimes the path we've walked pfor a time simply veers off in opposite directions.

It's okay pfor you to practice self-preservation in this case; and ...

Do your best to not pfeel guilty pfor choosing to not expose yourself to this deadly virus!

,
Pflower

[lizardlady]

Thanks pflower. I needed to hear that from someone other than myself.

She won't answer her room phone. At this point I'm unwilling to completely let go of the friendship. Am trying to work on personal boundaries/responsibility. There's a part of me that wants to "fix" the situation, both our relationship and her health stuff. I can't do either. For now I am going to keep texting her and try to not expect a reply.

Thanks for listening. It's helping me work through this.

[Travelinglady]

Liz, could you send her a card in care of the hospital? (I don't know how these things work.) Do you know of her other friends who might take a card to her?

[lizardlady]

Based on a phone call today it sounds like they are getting ready to discharge her from the hospital. I'm afraid if I mail her a card there she won't get it. I can do that once she gets to the nursing home though. Good idea!