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  #51  
Old Feb 14, 2021, 05:49 AM
Anonymous41006
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Sometimes A Little Humor Helps ...

Fibromyalgia Check-In Thread #6 ...

Hope all are able to pfind that one comfortable position today - the one where you are in the least amount of pain - and that you don't have to move until absolutely necessary ... like having to get up and go pee!

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Anonymous32451, SlumberKitty
Thanks for this!
lizardlady

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  #52  
Old Feb 14, 2021, 11:56 AM
Anonymous32451
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Quote:
Originally Posted by Pfrog View Post
Sometimes A Little Humor Helps ...

Fibromyalgia Check-In Thread #6 ...

Hope all are able to pfind that one comfortable position today - the one where you are in the least amount of pain - and that you don't have to move until absolutely necessary ... like having to get up and go pee!



when ever I think of humor now, I just think about the italian man who went to malta and start doing the accent in my head

that joke changed my life!

okay not litirally, but it's funny!
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  #53  
Old Feb 15, 2021, 03:32 AM
Cocosurviving's Avatar
Cocosurviving Cocosurviving is offline
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Location: Muscogee (Creek) Nation Reservation
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It’s very challenging having rare diseases and autoimmune diseases that primarily revolve around regularly taking steroid medications. Regularly taking steroid medications directly cause weight gain for many individuals.

I’m not going to give up...I will continue to be active on non-symptomatic days. Right now is very challenging with back to back ice and snow storms. I used to workout at my residence..home workouts. I really enjoy being outside.

I’ve been doing pretty good with my depression. I stopped taking all psychotropic medications in 2018 and it was the best choice for me. After being misdiagnosed when my original diagnoses was always depression. I’ll never go to another mental provider again.

I found several things that work for me as coping skills.....music, coloring, reading, blogging, traditional Indigenous music, praying to my ancestors, chatting with folx, soaking, knitting 🧶 etc.

I recently lost my auntie, heart disease and it hurts so much. I lost a cousin to breast cancer four months earlier. I’ve recently looked into bullet journaling. I see it as a creative outlet for me to deal with grief, loss and process my thoughts.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #54  
Old Feb 15, 2021, 09:02 AM
Anonymous32451
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agony getting dressed, and very breathless over breakfast

almost felt sick to my stomach because of the pain
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  #55  
Old Feb 15, 2021, 11:55 AM
lizardlady's Avatar
lizardlady lizardlady is offline
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I just read that the Covid vaccines can cause fibro and chronic fatigue flares. Oh joy, oh rapture!
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  #56  
Old Feb 16, 2021, 05:12 AM
Anonymous32451
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I was incontinent 4 times last night, not just a little, either. apart from dealing with that, I do have something to smile about: today when I did my
quiz, I scored 9/10 on my quiz. it would have been 10, but I didn't know who hosted the last olympic games. I am also going to have pancakes today for
shrove tuesday. sugar and lemmon
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  #57  
Old Feb 16, 2021, 07:06 AM
Anonymous41006
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Quote:
Originally Posted by lizardlady View Post
I just read that the Covid vaccines can cause fibro and chronic fatigue flares. Oh joy, oh rapture!
Well, that certainly sucks @lizardlady!

I've been on the pfence about getting the shot anyhow since I've already had a couple of severe allergic reactions to some other meds ...

I think that right there is the deal breaker for me!

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  #58  
Old Feb 16, 2021, 06:23 PM
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lizardlady lizardlady is offline
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I know Pfrog. I'm scared of getting the virus. I'm not sure I trust the vaccine the way they rushed it into production. Now I hear it can trigger flares. I'm going to keep waiting before I get the shot. I feel kind of damned if you do, damned if you don't.
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  #59  
Old Feb 17, 2021, 04:10 AM
Cocosurviving's Avatar
Cocosurviving Cocosurviving is offline
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Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
I’m just getting back into running. I was in track in school and I continued running even after graduating college. One of my sisters also runs and my adult daughter. I walk part of the way then run part of the way. It’s definitely important to me to pace myself. I do have several autoimmune diseases and rare diseases. I’m mindful of my reality. Monday, I had a lot of pain...muscle spasms.

I try to walk and run for a total of 30 minutes. I do have to break up the time because of the weather and also until I build my running stamina back up. The temperature was 7 degrees yesterday night and breathing in the cold Fibromyalgia Check-In Thread #6 ... air definitely triggered my asthma.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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  #60  
Old Feb 17, 2021, 06:41 AM
Anonymous32451
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well: I didn't get to have the pancakes

partly because I just sat around all day feeling sorry for myself (depression), and partly because I didn't have any lemmon.
but I will have some this week for sure...... nom nom nom nom
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  #61  
Old Feb 17, 2021, 09:11 AM
Anonymous41006
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Quote:
Originally Posted by lizardlady View Post
I know Pfrog. I'm scared of getting the virus. I'm not sure I trust the vaccine the way they rushed it into production. Now I hear it can trigger flares. I'm going to keep waiting before I get the shot. I feel kind of damned if you do, damned if you don't.
Me too, @lizardlady, Me too ...

Here's hoping we continue to be lucky!

In the meantime ...

Fibromyalgia Check-In Thread #6 ...

All this cold & damp's got me hurting like a you-know-what!

Hugs from:
lizardlady, SlumberKitty
Thanks for this!
lizardlady
  #62  
Old Feb 17, 2021, 03:18 PM
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lizardlady lizardlady is offline
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Probably not as cold and damp here as where you are, but it is miserable. At least we don't have to deal with that white shyte on the ground.
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  #63  
Old Feb 18, 2021, 11:31 AM
Anonymous32451
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been watching old episodes of southpark today.

so many fond memories.... love the old episodes
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  #64  
Old Feb 19, 2021, 10:28 AM
Anonymous32451
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I had a shower today

most importantly, I managed to go to the bathroom before the shower

and usually it's the first thing I do when I get out. big thing for me
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  #65  
Old Feb 19, 2021, 06:16 PM
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SlumberKitty SlumberKitty is offline
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Location: CA
Posts: 27,329
I didn't feel up to showering today. I'll have to by tomorrow because it's been a few days and my mom will be on my case if I don't. Trying to walk to lose weight but walking more than a little bit flares up my fibro.
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Dum Spiro Spero
IC XC NIKA
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  #66  
Old Feb 20, 2021, 11:27 AM
Anonymous32451
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my evening consisted of a mcdonalds which was very nice, lots of backpain in especially the left side of my back, and once again not a single bit of sleep..

in terms of today: incontinent and depressed. and overeating
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  #67  
Old Feb 20, 2021, 06:25 PM
lizardlady's Avatar
lizardlady lizardlady is offline
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Fibro and chronic fatigue both flaring today. Just woke up from two hour nap and am not sure of my name. Nap helped the flares a little though.
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  #68  
Old Feb 21, 2021, 04:04 AM
~Christina's Avatar
~Christina ~Christina is offline
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Member Since: Jul 2011
Location: Tennessee
Posts: 22,450
Finally got my Internet back working.

We got almost an inche of Ice then 4 inches of snow.. The snow was pretty but now it can go the hell away, our power hasn't gone off and im so thankful. Will take at least 6 days until we can go to town.

Hugs to everyone

Prayers to Texas and other people who are literally freezing to death. We as as country need to do better,
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Helping others gets me out of my own head ~
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  #69  
Old Feb 21, 2021, 09:16 AM
Anonymous32451
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ant and dec returned to tv today and I sat their watching it

well, bit of a correction: I sat their crying as they both tried to play a game of football and be the winner. what's sad about a game of football I don't know, but my emotions... like everything else, tend to be ****ed. happy show, sad gal. dunno why. perhaps watching it reminds me of the fact I've never played with a ball (true fact)
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  #70  
Old Feb 21, 2021, 09:20 AM
Anonymous32451
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I also hate how a sister of a friend has Fibromyalgia and she says it's painfull to watch

I have the same thing and she doesn't bat an eyelash

I never mattered though to anyone. this should actually be inprinted in my memory now
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Anonymous41006
  #71  
Old Feb 22, 2021, 09:07 AM
Anonymous32451
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getting dressed... extremely painfull

took it all out of me really and sat and watched tv much of the rest of the day. blah
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  #72  
Old Feb 23, 2021, 05:21 AM
Anonymous41006
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Today is the 61st Anniversary of my arrival on this patch of dirt called earth ...

Fibromyalgia Check-In Thread #6 ...

In honor of this momentous occasion, I owe myself a mountain road trip as soon as it is safe to do so!

Hugs from:
Anonymous32451, lizardlady
  #73  
Old Feb 23, 2021, 10:49 AM
Anonymous32451
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Quote:
Originally Posted by Pfrog View Post
Today is the 61st Anniversary of my arrival on this patch of dirt called earth ...

Fibromyalgia Check-In Thread #6 ...

In honor of this momentous occasion, I owe myself a mountain road trip as soon as it is safe to do so!



I need to wait a few months before my " anniversary", and I've all ready been asked if I plan to decorate my room for the ocasion

no is the answer. I don't celebrate it

but it's a darn better word to use than birthday. don't know why but birthday just... uggg.
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  #74  
Old Feb 23, 2021, 10:52 AM
Anonymous32451
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all this talk about lifting covid lockdown is bringing me ****ing down

at least in lockdown I didn't feel like such a worthless peace of crap. but soon as it's safe, everyone will return to their lives and the daily grind, but not me.... covid was just an excuse I could use for my ****ed up life

and then you get all the people saying to me : but it's a good thing, it's got lots of benifits. sure it has, if you have something to go back too.

rant over. I'm just fed up with it
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  #75  
Old Feb 25, 2021, 07:34 AM
lizardlady's Avatar
lizardlady lizardlady is offline
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Happy anniversary Pfrog!
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Anonymous41006
Thanks for this!
Cocosurviving
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