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Legendary Wise Elder
Community Liaison
Member Since Jul 2011
Location: Tennessee
Posts: 22,450
(SuperPoster!)
13 12.7k hugs
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#41
Hey Ladies, I've not been on PC much more than to answer PM's.. Im in a rage-y depressed mixed bowl of trash right now. My Pain? It's winter enough said..
I hope life is being kind and all of you do something nice for yourself no matter how small, We all need a perk here and there ![]() Loads of love and hugs __________________ Helping others gets me out of my own head ~ |
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![]() Anonymous41006, lizardlady, SlumberKitty
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![]() lizardlady
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Guest
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#43
you know: sometimes I wish I was as brave in real life as I was on the forum.
I share stuff here I never tell anyone... was thinking about this today, if only life was just virtual I'd have no issues at all with confidence |
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![]() Anonymous41006, SlumberKitty
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Legendary Wise Elder
Member Since Jul 2018
Location: CA
Posts: 27,329
(SuperPoster!)
6 117.7k hugs
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#44
It's snowed the last couple of days. We don't get much snow in So. California but we got 4 inches in two days. Wind chill factor is making it feel much colder than it is. Fibro flare.
__________________ Dum Spiro Spero IC XC NIKA |
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![]() Anonymous41006, lizardlady
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Guest
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#45
I am in so much pain today I can't hardly stand it.
Major psoriasis outbreak all over my body. Extra stiff & brittle too. ![]() |
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![]() lizardlady, SlumberKitty
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Guest
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#46
hey frog
hope you're feeling better. how's everyone else? |
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![]() Anonymous41006, SlumberKitty
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Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,658
(SuperPoster!)
21 7,555 hugs
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#47
I'm kind of in the same boat as Christina. Never ending stress has lead to me being cranky, crabby and not pleasant to be around. See my "you can only do so much" thread in the social forum if you want details.
I haven't been feeling very supportive lately. Silly me has been staying away from this thread because I'm so cranky. Then I came here tonight and remembered why I love you guys so much. Seems everyone is struggling right now. I hope things get better for everyone. ![]() |
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![]() Anonymous41006, SlumberKitty
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Guest
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#49
shower today and my whole body has been feeling on fire.
I've said it before here and I'll say it again... showers hurt, not just while you're in the shower... the rest of the day! |
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![]() Anonymous41006, SlumberKitty
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Guest
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#50
urg!. surveys!
trying to take part in a survey today for the pain association of america, 5 minits they said... more like 35, and I never completed it- I got bored. |
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![]() Anonymous41006, SlumberKitty
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Guest
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#51
Sometimes A Little Humor Helps ...
![]() Hope all are able to pfind that one comfortable position today - the one where you are in the least amount of pain - and that you don't have to move until absolutely necessary ... like having to get up and go pee! ![]() |
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![]() Anonymous32451, SlumberKitty
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![]() lizardlady
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Guest
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#52
Quote:
when ever I think of humor now, I just think about the italian man who went to malta and start doing the accent in my head that joke changed my life! okay not litirally, but it's funny! |
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![]() Anonymous41006, SlumberKitty
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
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#53
It’s very challenging having rare diseases and autoimmune diseases that primarily revolve around regularly taking steroid medications. Regularly taking steroid medications directly cause weight gain for many individuals.
I’m not going to give up...I will continue to be active on non-symptomatic days. Right now is very challenging with back to back ice and snow storms. I used to workout at my residence..home workouts. I really enjoy being outside. I’ve been doing pretty good with my depression. I stopped taking all psychotropic medications in 2018 and it was the best choice for me. After being misdiagnosed when my original diagnoses was always depression. I’ll never go to another mental provider again. I found several things that work for me as coping skills.....music, coloring, reading, blogging, traditional Indigenous music, praying to my ancestors, chatting with folx, soaking, knitting 🧶 etc. I recently lost my auntie, heart disease and it hurts so much. I lost a cousin to breast cancer four months earlier. I’ve recently looked into bullet journaling. I see it as a creative outlet for me to deal with grief, loss and process my thoughts. __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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![]() Anonymous41006, lizardlady, SlumberKitty
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Guest
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#54
agony getting dressed, and very breathless over breakfast
almost felt sick to my stomach because of the pain |
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![]() Anonymous41006, SlumberKitty
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Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,658
(SuperPoster!)
21 7,555 hugs
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#55
I just read that the Covid vaccines can cause fibro and chronic fatigue flares. Oh joy, oh rapture!
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![]() Anonymous41006, SlumberKitty, ~Christina
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#56
I was incontinent 4 times last night, not just a little, either. apart from dealing with that, I do have something to smile about: today when I did my
quiz, I scored 9/10 on my quiz. it would have been 10, but I didn't know who hosted the last olympic games. I am also going to have pancakes today for shrove tuesday. sugar and lemmon |
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![]() Anonymous41006, SlumberKitty
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Guest
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#57
Quote:
I've been on the pfence about getting the shot anyhow since I've already had a couple of severe allergic reactions to some other meds ... I think that right there is the deal breaker for me! ![]() |
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![]() SlumberKitty
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Legendary
Member Since Nov 2002
Location: Mid World
Posts: 17,658
(SuperPoster!)
21 7,555 hugs
given ![]() |
#58
I know Pfrog. I'm scared of getting the virus. I'm not sure I trust the vaccine the way they rushed it into production. Now I hear it can trigger flares. I'm going to keep waiting before I get the shot. I feel kind of damned if you do, damned if you don't.
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![]() Anonymous41006, SlumberKitty
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#59
I’m just getting back into running. I was in track in school and I continued running even after graduating college. One of my sisters also runs and my adult daughter. I walk part of the way then run part of the way. It’s definitely important to me to pace myself. I do have several autoimmune diseases and rare diseases. I’m mindful of my reality. Monday, I had a lot of pain...muscle spasms.
I try to walk and run for a total of 30 minutes. I do have to break up the time because of the weather and also until I build my running stamina back up. The temperature was 7 degrees yesterday night and breathing in the cold ![]() __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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![]() Anonymous41006, lizardlady, SlumberKitty
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Guest
Posts: n/a
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#60
well: I didn't get to have the pancakes
partly because I just sat around all day feeling sorry for myself (depression), and partly because I didn't have any lemmon. but I will have some this week for sure...... nom nom nom nom |
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![]() Anonymous41006, SlumberKitty
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