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Red face Feb 12, 2024 at 11:50 AM
  #661
Gentle hugs to you too @lizardlady ...

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Default Feb 21, 2024 at 02:16 AM
  #662
Greetings! Itís been a while. I am still taking things day-by-day. My first rheumatology office stopped accepting health insurance, straight private pay. I recently found a new rheumatologist and she seems very thorough.

July 2023- I was diagnosed with Osteopenia

Nov 2023- I was diagnosed with Lupus SLE.

In November 2023, I received a positive antinuclear antibody (ANA) test. Then a positive anti-double stranded DNA (Anti-dsDNA).

My new rheumatologist is going to double check everything collecting labs and documenting symptoms.

My Fibromyalgia has calmed down this week. We have a few warm days.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Feb 21, 2024 at 02:30 AM
  #663
I searched for a Lupus Check-In thread. I did not see a thread but I am not sure if itís worth making a thread. It seems a lot of people on this forum have Fibromyalgia, Iím not sure about Lupus.
I wonder if a lot of people have several unpreventable autoimmune diseases. I have several.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Apr 15, 2024 at 09:06 AM
  #664
Hello everyone
I may have posted before..
I have positive ANA and anti thyroid antibodies which my rheumatologist said will most likely never become anything.
Also a fibromyalgia diagnosis. I feel as though this needs each symptom to be treated individually.
What are your thoughts on gabapentin? I read it can cause depression so I'm scared because I get strange adverse side effects

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Red face Apr 15, 2024 at 02:52 PM
  #665
I'm not very trusting of medications myself as I've had a few adverse reactions in the past.

I've heard mixed reviews on the Gabapentin for pain from members of a psoriatic arthritis group I belong to. I guess it's like anything else, meds work differently for everybody, some have good experiences, others not so much.

I do hope you are able to find some kind of relief from the pain though ...

Living in constant pain sucks BIG time!

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Default Apr 15, 2024 at 07:55 PM
  #666
Quote:
Originally Posted by Pflowers View Post
I'm not very trusting of medications myself as I've had a few adverse reactions in the past.


I've heard mixed reviews on the Gabapentin for pain from members of a psoriatic arthritis group I belong to. I guess it's like anything else, meds work differently for everybody, some have good experiences, others not so much.


I do hope you are able to find some kind of relief from the pain though ...


Living in constant pain sucks BIG time!


I appreciate your reply.
I tend to be more episodic depending on diet, sleep etc.

I'm sorry you have the same reactions to medications too....

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Default Apr 16, 2024 at 12:37 AM
  #667
I hope everyone had a decent weekend and Monday. I have a follow-up appointment with my rheumatologist in May, and for now, I have one medication aimed at reducing inflammation.

The previous post asked about medications such as gabapentin.
In 2019, I was diagnosed with fibromyalgia. I immediately noticed the type of mediation commonly prescribed. I declined the commonly prescribed medications. I tried one RX of Flexeril and CBD under the direction of my specialist. Flexeril lingers too long in my body. CBD didnít help at all. My rheumatologist then suggested
medical cannabis. I had a good experience with medical cannabis creams, but the jar didnít last long.
I actually learned to roll joints, but I prefer edibles. Edibles helped with sleeping through the night. Iím changing occupations and surrendered my medical cannabis license earlier this year.

All in all, I try to take medication only when I feel itís necessary; there are no other options, and it helps. I take one medication for my thyroid, one for inflammation that might be Lupus-SLE, and two injections for a rare illness. I take a lot of vitamins since I am immunocompromised.


Me and my teenage son take walks in the evening. I make sure to apply sunscreen in the morning, reapply in the evening, and apply mosquito repellent.

My pain has reduced, and I make sure to regularly stretch. I experienced muscle spasms a few times last week. I also drink a lot of water. I struggle with avoiding sweets, but Iím not giving up. Last summer, I took a trip, and my healthy eating habits took a nose dive. I am determined to turn things around.

Yesterday, I noticed signs of depression. A big telltale sign for me is procrastination: not making my bed, dishes piling up in the sink, dirty clothes on the floor instead of the hamper, etc.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Apr 19, 2024 at 02:58 AM
  #668
My week has been decent pain wise. Our weather is changing from hot to fall (cool temps). I make sure to take water when running errands.

My place looks better: dishes washed, and dirty laundry off the floor. I plan to clean both restrooms this weekend. One today or Saturday and the second restroom on Sunday.

Iím returning to college for a second degree in the fall. I also plan to work part-time. This weekend will be very busy to say this least. My son grandson is spending the weekend with me and my son. My son is a high school senior and definitely inherited my tendency to volunteer with multiple organizations.
This weekend he has volunteer commitments and a birthday party to attend. Iím applying for scholarships this weekend and being a taxi mama.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default Apr 19, 2024 at 03:34 AM
  #669
I came across this topic on another thread: Fibromyalgia misconceptions and myths.

My experience:
I have tender points, experience muscular knots and muscle spams etc.
I have a hard time taking written notes and usually have to type out my notes.
Iíve tried mechanical pencils and added cushions to my ink pens. I plan to purchase a keyboard for my iPad to make typing easier.

As far as meds and treatments:

ēEarly on I tried a steroid injection once and it hurt way too much. I also know long term use can result in bone deterioration.

ēI tried Flexeril it was too strong and lingered. My rheumatologist then recommended CBD and did a good job of creating a titration schedule but it didnít help.

ēNext I was recommended (same provider) medical cannabis. I prefer gummies and I could sleep through the night like a baby.

ēI knew early on that medication and/or medical cannabis would not be my only solutions. My only health insurance is Medicare, which does not cover acupuncture or chiropractor visits (for Fibromyalgia). Luckily in my area massages are not expensive. We have a decent amount of massage businesses to select from.

ēI also have a YMCA membership and find deep tissue yoga helpful for my overall health, mental clarity and to loose my stiff/achy joints.

I read a lot of articles from national fibromyalgia and arthritis organizations. My Mighty has good articles too and I like that they publish articles written by individuals with disabilities and chronic illnesses.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default May 05, 2024 at 06:38 AM
  #670
Last week, I signed up for Ticket-to-Work through the Social Security Administration. My youngest son turns 18 this month, and my income will change. I need to at least work part-time. I am happy to report that my new HAE injection treatments seem to be working. My HAE attacks have slowed down a lot. I received hospital bills from my last few HAE attacks. Working will help me get them paid off.

I have an assigned vocational case manager. We had a phone conversation this week and discussed resumes. I have been dealing with a lot of anxiety over how to explain the gap in my employment history. My case manager explained that I should list volunteer work and explain during interviews that I took time off to raise a family. My kids are all grown, and I am returning to work. Being disabled is very hard, and I understand that it varies greatly from person to person, depending on the type of disability (disabilities) in addition to the severity.

I have a very close relationship with my youngest son, and thatís mainly because I started receiving SSDI when he was in fourth grade. Heís a senior in high school, and I still take him to school and pick him up. I have been able to attend all his school events, band concerts, band competitions, open house events, and parent-teacher conferences. I participated in school carnivals, bake sales, and helped chaperone events. I dropped him off and picked up him and his classmates.

I found a few articles that discuss returning to the workforce. I hope others find the articles helpful too.

ēStay-at-home-mom valuable transferable skills.

Just a moment...

ēFinding a job/reentering the workforce after being a stay-at-home-mom.

Just a moment...

ēFinding a job/reentering the workforce after a long absence.

Just a moment...

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default May 05, 2024 at 07:06 AM
  #671
Over the last two weeks, I have tried to donate blood to the Red Cross twice. Each time, my iron was too low. I reached out to my primary physician to report and explain other symptoms. I was struggling with fatigue and procrastination, and I could feel myself slipping into depression. My primary physician ordered labs and said low iron could trigger my depression. Iíve been eating foods containing iron and hope to not need another vitamin or supplement. I learned that iron is not part of the usual autoimmune disease lab panel. I donít understand why, since vitamin deficiency is very common among people who have immune diseases, such as myself. The standard lab panel checks for vitamin deficiencies except iron deficiency.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default May 12, 2024 at 02:13 AM
  #672
This week, I had two interviews. The second was the best fit, and I accepted the job offer. Iím waiting for my background check to clear.

My pain has been good this week. I did well this week by avoiding eating out and reducing sweets. I have been consistently drinking water.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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