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Magnate
Member Since Apr 2021
Location: Georgia (USA)
Posts: 2,599
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Feb 12, 2024 at 11:50 AM
#661
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 Cocosurviving, lizardlady
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,879
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Feb 21, 2024 at 02:16 AM
#662
Greetings! It’s been a while. I am still taking things day-by-day. My first rheumatology office stopped accepting health insurance, straight private pay. I recently found a new rheumatologist and she seems very thorough.
July 2023- I was diagnosed with Osteopenia Nov 2023- I was diagnosed with Lupus SLE. In November 2023, I received a positive antinuclear antibody (ANA) test. Then a positive anti-double stranded DNA (Anti-dsDNA). My new rheumatologist is going to double check everything collecting labs and documenting symptoms. My Fibromyalgia has calmed down this week. We have a few warm days. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,879
11 308 hugs
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Feb 21, 2024 at 02:30 AM
#663
I searched for a Lupus Check-In thread. I did not see a thread but I am not sure if it’s worth making a thread. It seems a lot of people on this forum have Fibromyalgia, I’m not sure about Lupus.
I wonder if a lot of people have several unpreventable autoimmune diseases. I have several. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Member
Member Since Dec 2022
Location: New York State
Posts: 226
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Apr 15, 2024 at 09:06 AM
#664
Hello everyone
I may have posted before.. I have positive ANA and anti thyroid antibodies which my rheumatologist said will most likely never become anything. Also a fibromyalgia diagnosis. I feel as though this needs each symptom to be treated individually. What are your thoughts on gabapentin? I read it can cause depression so I'm scared because I get strange adverse side effects Sent from my SM-A146U using Tapatalk |
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Magnate
Member Since Apr 2021
Location: Georgia (USA)
Posts: 2,599
(SuperPoster!)
3 11.7k hugs
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Apr 15, 2024 at 02:52 PM
#665
I'm not very trusting of medications myself as I've had a few adverse reactions in the past.
I've heard mixed reviews on the Gabapentin for pain from members of a psoriatic arthritis group I belong to. I guess it's like anything else, meds work differently for everybody, some have good experiences, others not so much. I do hope you are able to find some kind of relief from the pain though ... Living in constant pain sucks BIG time! 
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Cocosurviving, DeeeSchmeee68
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Member
Member Since Dec 2022
Location: New York State
Posts: 226
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Apr 15, 2024 at 07:55 PM
#666
Quote:
I tend to be more episodic depending on diet, sleep etc. I'm sorry you have the same reactions to medications too.... Sent from my SM-A146U using Tapatalk |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,879
11 308 hugs
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Apr 16, 2024 at 12:37 AM
#667
I hope everyone had a decent weekend and Monday. I have a follow-up appointment with my rheumatologist in May, and for now, I have one medication aimed at reducing inflammation.
The previous post asked about medications such as gabapentin. In 2019, I was diagnosed with fibromyalgia. I immediately noticed the type of mediation commonly prescribed. I declined the commonly prescribed medications. I tried one RX of Flexeril and CBD under the direction of my specialist. Flexeril lingers too long in my body. CBD didn’t help at all. My rheumatologist then suggested medical cannabis. I had a good experience with medical cannabis creams, but the jar didn’t last long. I actually learned to roll joints, but I prefer edibles. Edibles helped with sleeping through the night. I’m changing occupations and surrendered my medical cannabis license earlier this year. All in all, I try to take medication only when I feel it’s necessary; there are no other options, and it helps. I take one medication for my thyroid, one for inflammation that might be Lupus-SLE, and two injections for a rare illness. I take a lot of vitamins since I am immunocompromised. Me and my teenage son take walks in the evening. I make sure to apply sunscreen in the morning, reapply in the evening, and apply mosquito repellent. My pain has reduced, and I make sure to regularly stretch. I experienced muscle spasms a few times last week. I also drink a lot of water. I struggle with avoiding sweets, but I’m not giving up. Last summer, I took a trip, and my healthy eating habits took a nose dive. I am determined to turn things around. Yesterday, I noticed signs of depression. A big telltale sign for me is procrastination: not making my bed, dishes piling up in the sink, dirty clothes on the floor instead of the hamper, etc. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
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