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#1
Jul 27, 2009, 08:25 PM
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I received some good, but also distressing news today.
A medical condition I have lived with for 15 years is a Misdiagnosis. I haven't quite decided how to deal with the news...who to tell...who not to tell...etc. I had suspected and had asked for a re-diagnosis, but thinking it is not the same as hearing it out loud. I am a bit under the weather tonight, but I am sure I will recover in a couple of days after it all...the news and the impact on my life...sink in well.
__________________
The kind of beauty I want most is the hard-to-get kind that comes from within - strength, courage, dignity. ~~Ruby Dee The greatest mistake you can make in life is to be continually fearing you might make one. ~~Elbert Hubbard |
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#2
Jul 27, 2009, 10:59 PM
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Hang in there (((((bigcasper))))) keep us up to date. Hugs for your day.
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#3
Jul 28, 2009, 10:43 AM
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Wow. That's a loooooooong time to go with a misdiagnosis!!!
 But I'm glad you got it straightened out. Or at least know what you DON'T have. My mind and emotions would be spinning too!
__________________
 I'd rather have a visit, note or pretty picture than an "I'll say a prayer" or a "god bless you." Doesn't make me feel better, no meaning to me for sure. Can't stop you from praying and blessing me, and if that makes you feel better feel free.  But keep it to yourself please, don't tell me. And let's all respect each other's feelings. With kindness, support and "sweet dreamings." 
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#4
Jul 28, 2009, 03:18 PM
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((((((bigcasper))))))
I'm sorry you are distressed with the news. I hope you feel better soon, keep us posted please 
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#5
Jul 28, 2009, 03:23 PM
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(((bigcasper))) Take care of yourself , We are here for you
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#6
Jul 28, 2009, 04:39 PM
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(((((((((( bigcasper )))))))))))
__________________
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#7
Jul 29, 2009, 05:30 AM
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Yes, it is a long time to go with a misdiagnosis, but it happens. I am distressed, but only because it has been so long and for a couple of other reasons. I am a bit miffed at the medical system and the researcher/specialists I have seen over the years. Makes me wonder where their minds are when they examine me. Are they seeing it, but not wanting to challenge a fellow research collegue's initial assessment? Why did it take a specialist who is not a researcher to "challenge" the diagnosis. As he put it Monday, "If you presented to me today and I didn't have your past medical history, I would not see the [disease] in you."
Yesterday I spent the day trying not to cry and trying not to hyperventilate; I had grandchildren yesterday. I talked by phone last night with a fellow-disease friend and my psychologist . One believes my diagnosis of my misdiagnosis, but the other is skeptical. I have talked about this before to my doc because I had developed my doubts, and have two fellow friends who would know, but he just doesn't get it. So, Friday will be an interesting and frustrating conversation without a doubt. After last nights conversation I am not looking forward to Friday. It may be the first time I get angry with him...maybe even curse a bit...LOL. Thanks for the support. I am off to another grandkid day.
__________________
The kind of beauty I want most is the hard-to-get kind that comes from within - strength, courage, dignity. ~~Ruby Dee The greatest mistake you can make in life is to be continually fearing you might make one. ~~Elbert Hubbard |
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