I just don't know what to do anymore. I'm struggling to keep my head above water. I've been trying to get help but it's like no one is listening to me. And now I don't know if I can try any longer.

I have been failing to sleep for over 6 months now. And I can't handle it anymore. I've have been told I'm getting a med review and yet I hear nothing about it, I've been waiting for months.

I tried to go to my GP for sleep meds the other day...he said that the pdoc at the mental health team had told them not to do anything with my meds so I have to wait. My care coordinator at the mental health team is a waste of space. I called her a few days ago..I know she was in that day, but still she hasn't returned my call. The same thing happened in December.

I'm trying to get help and it is not there. I am being ignored. And I'm finding it hard to keep on trying.

I don't know what else I can do. I have tried the avenues that I can, and have got nowhere. Now I just give up. Can't do this anymore.

[Rohag]

In my experience, sleep is truly critical in managing MI. Any possibility of bypassing that care coordinator and going directly to a caregiver or director of the mental health center? Continued lack of restorative sleep can lead to a dangerous, emergency situation.

[IrisBloom]

If you have the energy, go up the chain of command, or just go to the director of the program. If you are in danger of hurting yourself or others call 911 or get to the ER asap. Please don't just sit and wait for things to happen. I hope you feel better soon.

I don't think I have the energy to keep trying. I am doing what I can to keep myself on top of things. I don't even know if I can bypass the care coordinator... My GP said he would get in contact with the pdoc to try and speed things up...but I haven't heard anything yet. I've left it too late for this week anyway...50 minutes until they finish for the day.

[IrisBloom]

Hang in there, friend.

I ended up ringing the crisis team, my friend insisted. I'm now waiting for a call back...

[GRUMPYPA]

Well done on the ringing up , just hold on for that call.

I got a call back last night at about 2am. It was a waste of time. They just told me to mention everything in my med review...which still hasn't been arranged. I just don't see the point in trying to get help. No one seems to want to bother

[Fuzzybear]

[dexter]

So sorry HalloweenSkye. Please keep trying. If you don't have the energy see if you can find someone to advocate for you. Sounds like they are dropping the ball and not understanding you need some action.

[Evaluna]

Please hang in there! You're doing really good to be able to keep going. From experience I've learnt that waiting for health professionals to do things is no good. Find the courage from somewhere, or find someone who will speak on your behalf, and tell them they need to help you asap. It's very hard, I've just had to do it myself for other health reasons, but it's worked and I'm finally getting the care I need.

Sent from my SM-G920F using Tapatalk

My pdoc phoned me earlier. Got an appointment at 2 tomorrow, hopefully she can do something to help...

[TheOriginalMe]

Glad to hear you have a pdoc appt.

I hope it goes well, let us know how you get on.

I just can't keep doing this. Got no idea how to survive. I don't want to live anymore. I've had enough

[Catlady360]

Please don't give up Skye! Just take it one day at a time, one hour at at time if you need to.

Just got home from the pdoc. She upped two of my meds and put me on a couple of other things too.. Crisis team/hospital were mentioned but I didn't agree to that so my care coordinator will phone me tomorrow to see how I am, and the pdoc will call again on Thursday to see if there is any change on the meds. Fingers crossed I'll get through this without needing to be hospitalised...

[IrisBloom]

See? You made it through! Hopefully the new meds will help.

[TheOriginalMe]

Try and fix up regular meets with your CC. If you can't get that, get you GP to ask for a case conference. The other people to talk to are Patient Advisory & Liaison Service.

You need some continuity of care. Well done for persevering and hanging on.

[Catlady360]

You've got this Skye! We're all cheering for you here.

Originally Posted by TheOriginalMe

Try and fix up regular meets with your CC. If you can't get that, get you GP to ask for a case conference. The other people to talk to are Patient Advisory & Liaison Service.

You need some continuity of care. Well done for persevering and hanging on.

What does a case conference involve? Never heard of it before...