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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#621
1 of 2 •I Create Tasks List and Include Deadlines. •I Request Any Reasonable Health Accommodations. •I Take a Break When I’m Overwhelmed. •Taking a Break For Me Includes: Watching Funny Movies, Listening to Music, I Avoid Any Serious Topics Including Politics, I Take a Walk, Use Aromatherapy, Polish My Nails, Color, Knit etc. •After Re-Grouping/Hitting Reset• •I Remove Any Tasks That Can Be Canceled. •My Tasks List is Weekly vs Daily with the Exception of Deadlines. •My Planner System Helps. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn, Fuzzybear, SprinkL3
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Breaking Dawn, SprinkL3
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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#622
2 of 2 •EFT stands for Emotional Freedom Techniques, and users say that this simple technique helps them feel better quickly. EFT tapping has roots in the 1970s when several doctors began stimulating acupressure points to help their patients deal with stress, fear, and phobias. •I practice a form of meditation and listen to podcasts. •I don’t participate in therapy but I do repost quotes from therapists or that mention therapy. I prefer peer centered support groups vs therapy. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn, Fuzzybear, SprinkL3
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Breaking Dawn, SprinkL3
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Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#623
Good post
__________________ |
Breaking Dawn, SprinkL3
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SprinkL3
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Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#624
__________________ |
Breaking Dawn, SprinkL3
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Breaking Dawn, SprinkL3
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Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#625
Quote:
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Breaking Dawn, SprinkL3
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Breaking Dawn, Cocosurviving, SprinkL3
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Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#626
__________________ |
Breaking Dawn, SprinkL3
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Breaking Dawn, SprinkL3
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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#627
When I’m overwhelmed and have a lot on my mind, I make a list and pause. Yes. I take a pause. •I watch a Marvel movie or something with supernatural elements instead of anything serious. •I polish my nails. •Eat a lot of veggies, fresh fruits and drink lots of water. •I rest, get plenty of sleep. •I do this self care for about 3 days. I learned that being overwhelmed triggers my depression….hashimoto and so on. Also taking a step back and focusing on self care will help make sure I H.A.L.T. first. Afterwards, I wake up feeling refreshed and ready to be productive. Thursday morning I felt like this and spent two hours typing up e-mails. Then I washed my laundry and went to the library. I practiced my Native Indigenous language and discussed plans for Kwanzaa. I’ve been dealing with anxiety. I pause and the burning in my chest stops. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn, SprinkL3
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Breaking Dawn
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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#628
I had a long talk with my adult daughter about this yesterday (Thursday).
I’m upset because as a immunologist, Dr. M. has book knowledge of my two rare diseases… She’s aware anaphylaxis is a symptom of both my rare diseases.. It’s important to give people grace and not attempt to give unsolicited advice/judgement on illnesses you do not personally have. It’s difficult being stressed out and trying to convey online what happened step by step. Convey what happened online just to get it off your chest and process what happened. Me and both immunologists in the practice have been working for months…since April to get my immune system ready/prepared to handle the COVID-19 vaccines. I’ve been taking treatments since April. The thought was that the treatments would block/alleviate triggering my rare diseases. Once my rare diseases are triggered, therein lies a problem. A problem that can lead to anaphylaxis if not quickly controlled. It was hard telling Dr. M., all the symptoms I experienced. Certain symptoms from my rare diseases can be very difficult to talk about or say out loud. The problem is Dr. M. did not have another solution. My treatments were increased in October and still didn’t work to block the symptoms. Last month she mentioned a medication, compound, which is not covered by insurance and outside of the budget. The biggest obstacle is my rare diseases are not under control or being controlled by treatments or medications. Controlled as in reduction in severity of flare ups from triggers. I explained to my adult daughter why I prefer peer lead vs therapy. I feel and view therapist as hierarchy vs peer lead is centered on being equals. Dr. M. has a medical license however her knowledge is purely from books vs someone that lives with rare diseases. I have lived with one of my rare diseases since birth, I’m 45. I’m an expert on my body. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn, SprinkL3
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Legendary Wise Elder
Deilla
is napping.
Member Since: Oct 2017
Location: Limsa Lominsa
Posts: 29,398
(SuperPoster!)
49.2k hugs
given |
#629
I won't see family today. Things have been canceled. And I'm not invited anywhere tomorrow. My mother is celebrating Christmas with her family but didn't invite me. She doesn't care that I'll be all alone. She doesn't care about me.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
Breaking Dawn, MimiBhaduri0, SprinkL3
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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#630
I’m looking forward to Kwanzaa. It’s not about being super happy, putting on a smile, gifts or eating….
It’s about gathering with my kids, remembering our ancestors that paved the way for us…. Connecting with those ancestors and not forgetting their sacrifices. Not forgetting old ways and continuing our roots…. Not forgetting how they came to this continent by force and violence. Continuing to decolonize and stay connected to our ancestral roots, languages, values and principles. I blog to brain dump, process, brainstorm and clear my thoughts, this is my method. It’s important to not try to police others. I don’t share my feelings with certain people because they feel the need to try to fix things vs just listening and being supportive without giving unsolicited advice. When my kids share something with me. I ask, “do you want me to just listen or would you like feedback, would you like my opinion?” Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn
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Wise Elder
Buffy01
has no updates.
Member Since: Oct 2017
Location: USA
Posts: 9,461
(SuperPoster!)
9,664 hugs
given |
#631
I wish that I didn’t have depression. Since taking medicine? I am much better.
__________________ Everyone can do magic - Cassie Nightgale the good witch. Dear Diary today will be different today I can smile it will be genuine because today is the day I get to live. This life will be good and beautiful, but not without heartbreak. In death come peace. But pain is the cost of living. Like love, it's how we know we're alive. And life goes on. That my life weird, messy, complicated, sad, wonderful, amazing, and above all epic and I owe all to Stephen. - Eleanor Gilbert Vampire Diaries |
Breaking Dawn, Deilla, MimiBhaduri0, SprinkL3
|
Legendary Wise Elder
Deilla
is napping.
Member Since: Oct 2017
Location: Limsa Lominsa
Posts: 29,398
(SuperPoster!)
49.2k hugs
given |
#632
I'm glad Christmas is over. It was a horrible day. Today is not much better. I know my family could invite me over now, but they won't. Nobody loves me.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
Breaking Dawn, Crypts_Of_The_Mind, MimiBhaduri0, SprinkL3
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Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#633
__________________ |
Breaking Dawn, MimiBhaduri0
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Breaking Dawn, MimiBhaduri0
|
Legendary Wise Elder
Deilla
is napping.
Member Since: Oct 2017
Location: Limsa Lominsa
Posts: 29,398
(SuperPoster!)
49.2k hugs
given |
#634
I actually believe I need my therapist to feel good. I need her support and validation every day. I need to change that belief and trust that I can support and validate myself. It's going to be hard to do, but I will try.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
Breaking Dawn, MimiBhaduri0
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Breaking Dawn
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Legendary
Breaking Dawn
Thankful for my blessings.
Member Since: Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
42.2k hugs
given |
#635
I'm so sorry people, I have neglected this thread. Ironically, I have been feeling very sad off & on, & trying not to be a dark cloud for others when too many of you are hurting quite enough. At the moment I am forced to accept a perplexing & sad change that hurts a lot. But you know how it is, we accept how we contributed to the outcome & try to improve. I'm sorry if I have hurt you. You deserve to have a place where it feels like others are in your corner, really there for you. I'm so thankful for our forums here, & all of you.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
Deilla, MimiBhaduri0
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MimiBhaduri0
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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#636
I Agree but…Grace Doesn’t Need to be Used to Excuse or Continue Intergenerational Trauma. •Growing Up Many of My Immediate Family Members Would Do or Say Something Harmful Etc.. •They Would Never Apologize to Each Other. My Mama and Siblings Still Do This. •They Go Months Without Speaking. Then Act like Nothing Happened and Start Speaking but Nothing is Ever Resolved. •Just like Any Relationship, Once Another Situation Happens, Each of Them are Arguing about Old **** and the New Situation. •My Dad’s Side is Exactly the Same, Except They Go YEARS Without Speaking. •This is a Toxic Pattern of Functioning in Dysfunction and It’s Exhausting. •If I Did/Said Something, I Will Apologize Even If We Decided to Desolve Our Friendship, Relationship Etc. •Sometimes Relationships, Interacting Needs to End or You Feed ‘Em with a Long Handled Spoon. •The Hurt can be so Deep, Painful or Traumatic. People Don’t Have to “Forgive and Continue” the Relationship…Including Relationships with Family Members. Forgiveness is Not Required for Healing. •People Can Choose to Solely Focus on Healing *🩹 the Hurt, Pain, Trauma and PTSD. #intergenerationaltrauma #family #intergenerationalhealing #healing #grace #accountability #aplogize #apologieswithoutchange #change #forgivenessisnotrequiredforhealing #siblings #neglect #manipulation #indoctrination #relationships @Deardopechick repost Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn
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Breaking Dawn
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Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#637
__________________ |
Breaking Dawn, MimiBhaduri0
|
Wisest Elder Ever
Fuzzybear
has no updates.
Member Since: Nov 2002
Location: Cave.
Posts: 96,300
(SuperPoster!)
81.2k hugs
given |
#638
__________________ |
Breaking Dawn, MimiBhaduri0
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MimiBhaduri0
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Elder
Cocosurviving
❄️Happy Winter Solstice!
❄️Happy Kwanzaa!
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,875
308 hugs
given |
#639
•I Just Need to Vent and Get My Feelings/Frustrations off My Chest. I’m not Seeking Feedback.
•I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community. •Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle. •I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets. •I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups. •The Constant Flare Ups Really Trigger My Depression. •I’m Tired of being in Pain. •I’m Tired of Missing Training/Workshops. •I’m Tired of Feeling Nauseous. •I’m Tired of Medical Bills. •I’m Tired of ****** Health Insurance. •I’m Tired of Fatigue. •I’m Tired of Dealing with Vitamin Deficiencies. • I’m Tired of Constantly Sleeping. •I’m Tired of Chronic Hives. •I’ve Tired of Swelling. •I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom. •I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema. •Today I’m also Tired of Crying. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
Breaking Dawn
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Legendary
Breaking Dawn
Thankful for my blessings.
Member Since: Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
42.2k hugs
given |
#640
I'm glad you could vent here, Cocosurviving!
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * |
Cocosurviving
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