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Cocosurviving
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Default Jan 24, 2022 at 11:24 PM
  #621
Jan 17th - 23rd 2022 Summary

•Cooked Three Meals
•Washed Laundry
•Folded Over Half of My Laundry
•Cleaned The Restroom
•Scheduled Preventive Appts
•Checked in with Friends and Family
•Attended Zoom Meetings
•Dropped off Recycling
•Grocery Shopping
•Created Meal Plans
•Organized Planner
•Attended Hair Appt
•Healing Journal

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
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308 hugs
given
PC PoohBah!
Default Jan 28, 2022 at 01:03 AM
  #622
Looking for accountability partners (task check in) #2I Woke Up Feeling Fatigue and Nauseous Which are Common Symptoms from My Autoimmune Diseases and Rare Diseases.

Looking for accountability partners (task check in) #2I Listened to My Body and Allowed Myself to Rest.

Looking for accountability partners (task check in) #2I Took a Long Nap and It Helped.

Looking for accountability partners (task check in) #2My First Meal

Looking for accountability partners (task check in) #2Beyond Meat Plant-Based Sausage Links.

Looking for accountability partners (task check in) #2Fresh Avocado Looking for accountability partners (task check in) #2 with Seasonings.

Looking for accountability partners (task check in) #2Toast.

Looking for accountability partners (task check in) #2Non-Caffeine Herbal Tea (Bison Star Naturals).

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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hvert
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Default Jan 28, 2022 at 09:21 AM
  #623
I got some great news yesterday. It seems like some of the hard work I've been putting in is paying off. I've also had fewer meetings this week than usual which has been refreshing. Today I plan on
1. Work on a project.
2. Exercise

3. Vacuum
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Cocosurviving
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Default Feb 24, 2022 at 03:56 PM
  #624
I’m excited about my new paper planner inserts!

I had FedEx to print, cut and hole punch. They did an excellent job.

FedEx charged a lot less than Office Depo quoted me.

Also my experience of Staples and Office Depo is neither is well rounded as FedEx.

Staples and Office Depo made it seem like printing digital downloads was very “complicated” and needed a lot of editing. Lol

Staples and Office Depo only have the old school three hole punch. I would not classify them as a full service printing centers.

I use a Moterm Planner A5, 6 ring.

Undated paper planner inserts.

I like different inserts for specific things and to take notes at my medical appointments, Zoom meetings and personal growth workshops etc.

I had my digital paper planner inserts printed on 30 LB paper (legal size).

I did BuJo (bullet journaling) for a while but quickly learned that all the set ups (constantly using a ruler, weekly spreads, monthly)
was too much for my Fibromyalgia.

I’m more of a functional paper planner and a minimalist vs being heavily into anesthetics.

I like stickers. I like to use stickers to reduce writing and indicate a “thing.” A thing like laundry day, bill due, appointments, meetings/workshops, hair appointments and car maintenance etc.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Thanks for this!
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Cocosurviving
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Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
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308 hugs
given
PC PoohBah!
Default May 01, 2022 at 11:15 PM
  #625
I planned on grabbed items from Sprouts and Whole Foods however fatigue was very high today.

I’m going to Spouts and Whole Foods ASAP. I get all my fresh fruits, vegetables and smoothie ingredients at both places.

I decided to stay home, get a few things done around the house and get ready for the week ahead.

I finished folding my laundry.

Dinner was easy. I cooked hamburgers yesterday. We had leftovers, I baked sweet potatoes and acorn squash.

My paper planner is caught up for the week.

I budget for May 2022 is completed.

My teenager is going to day camp and school.
I need to add the start date to my planner.

I will also add the first day of school for 2022-2023.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Default May 02, 2022 at 07:35 AM
  #626
1. Work on client project #1

2. Work on client project #2
3. Exercise outside
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Cocosurviving
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Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
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308 hugs
given
PC PoohBah!
Default Jul 13, 2022 at 01:59 AM
  #627
Looking for accountability partners (task check in) #2
I had to learn this and end this behavior.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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downandlonely
Cocosurviving
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
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308 hugs
given
PC PoohBah!
Default Apr 16, 2024 at 12:42 AM
  #628
Me and my teenage son take walks in the evening. I make sure to apply sunscreen in the morning, reapply in the evening, and apply mosquito repellent.

My pain has reduced, and I make sure to regularly stretch. I experienced muscle spasms a few times last week. I also drink a lot of water. I struggle with avoiding sweets, but I’m not giving up. Last summer, I took a trip, and my healthy eating habits took a nose dive. I am determined to turn things around.

Yesterday, I noticed signs of depression. A big telltale sign for me is procrastination: not making my bed, dishes piling up in the sink, dirty clothes on the floor instead of the hamper, etc. I called my daughter and chatted with her while I cleaned. It was nice to see an empty sink, and declutterred countertops. I picked up my dirty clothes and made my bed.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Cocosurviving
Elder
 
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
12
308 hugs
given
PC PoohBah!
Default Apr 18, 2024 at 12:34 AM
  #629
Completed Task
•I worked on my scholarship application.
•I reached out to a reference for their email address.
•I worked on updating my resume.
•Checked my POBox.
•Washed dishes and took the trash out.
•Caught up on group action messages and read over letter draft.
•Read my email.


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__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Cocosurviving
Elder
 
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
12
308 hugs
given
PC PoohBah!
Default May 05, 2024 at 07:06 AM
  #630
Over the last two weeks, I have tried to donate blood to the Red Cross twice. Each time, my iron was too low. I reached out to my primary physician to report and explain other symptoms. I was struggling with fatigue and procrastination, and I could feel myself slipping into depression. My primary physician ordered labs and said low iron could trigger my depression. I’ve been eating foods containing iron and hope to not need another vitamin or supplement. I learned that iron is not part of the usual autoimmune disease lab panel. I don’t understand why, since vitamin deficiency is very common among people who have immune diseases, such as myself. The standard lab panel checks for vitamin deficiencies except iron deficiency.

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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Cocosurviving
Elder
 
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Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,920
12
308 hugs
given
PC PoohBah!
Default May 05, 2024 at 07:10 AM
  #631
Last week, I signed up for Ticket-to-Work through the Social Security Administration. My youngest son turns 18 this month, and my income will change. I need to at least work part-time. I am happy to report that my new HAE injection treatments seem to be working. My HAE attacks have slowed down a lot. I received hospital bills from my last few HAE attacks. Working will help me get them paid off.

I have an assigned vocational case manager. We had a phone conversation this week and discussed resumes. I have been dealing with a lot of anxiety over how to explain the gap in my employment history. My case manager explained that I should list volunteer work and explain during interviews that I took time off to raise a family. My kids are all grown, and I am returning to work. Being disabled is very hard, and I understand that it varies greatly from person to person, depending on the type of disability (disabilities) in addition to the severity.

I have a very close relationship with my youngest son, and that’s mainly because I started receiving SSDI when he was in fourth grade. He’s a senior in high school, and I still take him to school and pick him up. I have been able to attend all his school events, band concerts, band competitions, open house events, and parent-teacher conferences. I participated in school carnivals, bake sales, and helped chaperone events. I dropped him off and picked up him and his classmates.

I found a few articles that discuss returning to the workforce. I hope others find the articles helpful too.

•Stay-at-home-mom valuable transferable skills.

Just a moment...

•Finding a job/reentering the workforce after being a stay-at-home-mom.

Just a moment...

•Finding a job/reentering the workforce after a long absence.

Just a moment...

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__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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