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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
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#1
Check-In Meds, Supplements, Vitamins, Medicinals or Whatever Helps You
•It’s Ok If You Don’t Take Any Prescription Medications. •It’s Ok If You Don’t Take Any Psychotropic Medications. •It’s Ok If You Meditate, Exercise, Journal or Participate in Art Therapy. __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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![]() Breaking Dawn
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#2
✅Antihistamines
✅Supplements ✅Vitamins ✅Medicinal ✅Refilled My Pill Container __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Legendary
Member Since Sep 2019
Location: USA
Posts: 16,689
(SuperPoster!)
5 42.2k hugs
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#3
I took a B12 supplement today because I read that it's good for the brain.
__________________ "Every moment is a fresh beginning." (T. S. Eliot) "Problems are not stop signs, they are guidelines."(Robert H. Schiuller) * * * * * * ![]() |
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![]() Cocosurviving
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
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#4
I took all of my prescribed and recommended:
![]() ![]() ![]() ![]() Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#5
I took my
![]() Vitamin B12 Vitamin D Magnesium Selenium Biotin Allegra Zyrtec Synthroid Echinacea and Yarrow Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Grand Magnate
Member Since Jun 2018
Location: Somewhere
Posts: 3,355
6 1 hugs
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#6
@Cocosurviving I have Hashimoto's too and just wanted to mention that you should be careful with the biotin. My doc told me it can skew TSH results. Never been told that before and I've had Hashimoto's for almost 17 years now...
__________________ Life is hard. Then you die. Then they throw dirt in your face. -David Gerrold |
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Grand Magnate
Member Since Jun 2018
Location: Somewhere
Posts: 3,355
6 1 hugs
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#7
Latest thing I'm trying is a product called CurcuBrain. It's supposed to be a type of curcumin that can cross the blood-brain barrier. Curcumin (which is the active compound in turmeric) is supposed to be a decent anti-inflammatory. I am very skeptical that this product will do anything for me, but my thinking is that there's a correlation between depression and inflammation, and last few times my ESR and CRP were checked, they were elevated and kept rising. Of course, that was several years ago and I was definitely sick with something. I just gave up going to all the different doctors about it since it wasn't helping. Luckily whatever it was almost entirely resolved eventually.
Anyway, chronic inflammation isn't good anyway even if lowering it won't affect my depression. So figured, why not? The psychotropics aren't helping enough. I also want to get a vegetarian omega fatty acids supplement. I doubt I get enough of that, if any, through diet. Can't find my B12 pills. Probably should just order more since I tend to be deficient. Other meds: Adderall, Cymbalta, Wellbutrin, BC, Gabapentin, levothyroxine, topiramate, Zofran prn, some vitamins I don't feel like typing out and often forget to take |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#8
Quote:
Thank you. I read of it and asked my Endocrinologist he said everything would be fine. I also have alopecia and my Dermatologist recommended biotin. I’m not sure how long I’ve had Hashimotos. I’ve been misdiagnosed (like a lot of people). I’ve been diagnosed since 2018. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#9
Today I took my
![]() Vitamin B12 Vitamin D Magnesium Selenium Biotin Allegra Zyrtec Synthroid Echinacea and Yarrow •Last week I missed two days of taking meds, supplements and vitamins. •I’ll be getting labs again soon to see if my vitamin deficiencies has improved. PRN Med I took one of my PRN meds last week Hydroxyzine - I take it for Chronic Urticaria which is a rare disease. My depression has not returned. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#10
Ending Surprise Medical Bills
See how new rules help protect people from surprise medical bills and remove consumers from payment disputes between a provider or health care facility and their health plan As of January 1, 2022, consumers have new billing protections when getting emergency care, non-emergency care from out-of-network providers at in-network facilities, and air ambulance services from out-of-network providers. Through new rules aimed to protect consumers, excessive out-of-pocket costs are restricted, and emergency services must continue to be covered without any prior authorization, and regardless of whether or not a provider or facility is in-network. Previously, if consumers had health coverage and got care from an out-of-network provider, their health plan usually wouldn't cover the entire out-of-network cost. This left many with higher costs than if they’d been seen by an in-network provider. This is especially common in an emergency situation, where consumers might not be able to choose the provider. Even if a consumer goes to an in-network hospital, they might get care from out-of-network providers at that facility. In many cases, the out-of-network provider could bill consumers for the difference between the charges the provider billed, and the amount paid by the consumer’s health plan. This is known as balance billing. An unexpected balance bill is called a surprise bill. The Consolidated Appropriations Act of 2021 was enacted on December 27, 2020 and contains many provisions to help protect consumers from surprise bills, including the No Surprises Act under title I and Transparency under title II. No Surprises Act | CMS Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#11
I’ve did good this week. I have not missed any days. I need to purchase more Biotin.
Morning Selenium Vitamin B12 Vitamin D Synthroid Biotin Zyrtec Pantoprazole Trelegy Ellipta Bedtime Allegra Selenium Magnesium Famotidine Echinacea and Yarrow Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#12
This week I didn’t miss any doses. I’ve placed an order for refills. I made a list of which vitamins I need to re-purchase.
Morning Selenium Vitamin B12 Vitamin D Synthroid Biotin Zyrtec Pantoprazole Trelegy Ellipta Bedtime Allegra Selenium Magnesium Famotidine Echinacea and Yarrow Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#13
I hope everyone had a decent weekend. I started a new medication. I’ve been very symptomatic from Hashimotos the last 3 weeks.
All last week both my rare diseases have been going haywire. Morning Selenium Vitamin B12 Vitamin D Synthroid Biotin Zyrtec Pantoprazole Trelegy Ellipta Bedtime Allegra Selenium Magnesium Famotidine Echinacea and Yarrow Famotidine Atenolol Sent from my iPad using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#14
I’ve been experiencing the worst chronic illnesses flare up the last 6 weeks.
My immunologist has started me on two new medications. My adult daughter has been helping with her brother. He’s been staying with her the last few weeks. Morning Selenium Vitamin B12 Vitamin D Synthroid Biotin Zyrtec Pantoprazole Trelegy Ellipta Hydroxyzine Bedtime Allegra Selenium Magnesium Famotidine Echinacea and Yarrow Famotidine Atenolol Hydroxyzine Doxepin Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#15
![]() 2012 - Gained 40 lbs ![]() 2013- Lost 40 lbs ![]() 2017 -2018 : Gained 100 lbs ![]() ![]() Jan 2019- Lost 48 lbs ![]() (Chronic Urticaria, Asthma, Hashimotos, Fibromyalgia & Angioedema) 2020- Gained 15 lbs ![]() (Chronic Urticaria, Asthma, Hashimotos, Fibromyalgia & Angioedema) 2021- Gained 20 lbs ![]() April 2022- Lost 10 lbs Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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New Member
Member Since Jun 2022
Location: USA
Posts: 1
2 |
#16
I do not consider food supplements to be medicines. Medicines cure diseases. Nutritional supplements, in turn, saturate the body with useful elements.
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#17
I started back listening to a variety of podcasts last year.
Certain podcasts I binge listen ![]() Most podcasts conduct interviews. I follow several individuals, BIPOC businesses, add movies/series to my watch list, and add books on my wishlist etc all featured in podcast interviews… 46 days into my vegetarian journey. My autoimmune illnessES have been very well behaved!!! In hindsight, I wish I knew about certain things 20 years ago.. •Functional medicine vs Conventional. •The importance of gut health. •Parasitic cleanse. •Ayurveda approach vs Conventional One-Size-Fits-All approach. •Hydrotherapist- a massage therapist that specializes in lymphatic drainage, to gain more insight. •How emotional trauma can cause a dysfunctional relationship with food. •Why prescription drugs don’t always solve the root cause of your problem. what nutrigenomics is, and how lifestyle factors affect genetic expression. Importance of sleep hygiene and reducing stress. •What integrative psychiatry is. •How “genes load the gun, and lifestyle pulls the trigger” •What genetic testing shows us and how we can use it for our health. •What amino acid therapy is. •The ways sleep influences our health. •The importance of stress management. •The problems associated with prescription drugs. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#18
Quote:
The healthcare system focuses on conventional medicine…the one size fits all approach. Patients are viewed like customers and often times are placed on medications for life. Conventional medicine is not interested in functional medicine or Ayurveda approach. There is not a gold standard in conventional medicine which leads to patients constantly being misdiagnosed, placed on medication for years without improving or cured. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#19
It’s been a while since I gave an update.
I spoke with my immunologist in April 2022 regarding my concerns with taking too many medications. Many medications also cause vitamin deficiencies. I’m aware and acknowledge many of the autoimmune illnesses and rare illnesses I am diagnosed with, have a history of causing vitamin deficiencies. Inflammation does cause the diagnosed autoimmune illnesses and rare diseases to flare up. I’m at a place in my life that I connect with functional medicine vs conventional. I want to understand the root cause vs accept using medication for life as a bandaid. I use a monthly flare up tracker. All the common symptoms I experience are listed and I mark an “x” on days I experience said symptoms. During my follow up appointment on July 25th, 2022. My immunologist was flabbergasted while looking at my monthly flare up trackers for April- July 2022. He immediately asked what did I do to decrease my flare ups by 75%. I started transitioning to vegan on May 23rd 2022. Am I suggesting I will never need another medication ever, no. —However I will not accept taking multiple medications for the rest of my life based on “my diagnosed” medical illnesses. Am I suggesting vegan is for everyone, no. I never said or suggested vegan is for everyone. I knew vegan would work “for me”because my ancestors (Ethiopian and Muscogee Nation) ate primarily vegan or Ital prior to colonization. SAD; standard american diet is the death of BIPOC. My ancestors did not consume dairy at all. Meat was not regularly consumed and primarily during celebratory occasions (wedding). I’m not making suggestions to anyone however I am not interested in negative feedback. I’m simply celebrating and stating what has worked for me based on “my diagnosed” autoimmune illnesses and rare illnesses. Plus my ancestral lifestyle (vegan, Ital) vs SAD (standard american diet). My Goal- Fruits, vegetables, and beans instead of supplements to provide the fiber and vitamins they contain. I’m going to speak with my immunologist about discontinuing all vitamins and supplements (except vitamin D and biotin). I want to getting my annual physical and seeing if I still have vitamin deficiencies “without” taking vitamins. Cronometer app- I use Cronometer because it gives a better information on the foods you consume—-regarding vitamins and nutrition. I have previously worked with a few nutritionists and have a good grasp of reading food labels and which whole foods contain essential vitamins and nutrients. Whole foods – like vegetables, fruits, whole grains, nuts, and legumes -- retain their fiber as well as the whole portfolio of beneficial phytochemicals and nutrients that are often removed in processed foods. I do have diagnoses of : Depression, Fibromyalgia and Atopic Dermatitis as well. I do not take/declined to take; any medications for Depression and Fibromyalgia. I treat both with natural methods and healthy coping skills. Morning Selenium- Recommended by Endocrinologist to treat Thyroid Disease; discontinued taking 4/2022. I eat Brazilian nuts as a substitute. Vitamin B12- Recommended by immunologist based on labs of vitamin deficiencies. I currently take daily as recommended. Vitamin D-Recommended by immunologist based on labs of vitamin deficiencies. I currently take daily as recommended. Synthroid- Prescribed by Endocrinologist to treat Thyroid Disease; I currently take daily as prescribed. Biotin - Recommended by dermatologist to treat Alopecia; I currently take daily as recommended. Zyrtec- Prescribed by immunologist to help control Chronic Urticaria. I discontinued taking daily 4/2022 ; instead I take as needed. Pantoprazole- Prescribed by immunologist to help with ulcers. I discontinued taking 7/2022. Trelegy Ellipta- Prescribed by immunologist to help control asthma; I currently take daily as prescribed. Bedtime Allegra- Recommended by immunologist to help control Chronic Urticaria; discontinued 7/2022. Selenium- Recommended by immunologist to treat Thyroid Disease ; discontinued 4/2022. Magnesium- Recommended by immunologist based on labs of vitamin deficiencies. I currently take daily as recommended. Famotidine- Prescribed by immunologist to help with ulcers. I discontinued taking 4/2022. Echinacea and Yarrow - I taking during weather changes and flare ups to help boost my immune system. Atenolol -Prescribed by immunologist to help control migraines; I discontinued taking 4/2022. Hydroxyzine -Prescribed by immunologist to help control Chronic Urticaria. I take as needed for flare ups. Doxepin -Prescribed by immunologist to help control Chronic Urticaria and Angioedema. I continue to take daily as prescribed. Sent from my iPhone using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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Elder
Member Since Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,909
11 308 hugs
given ![]() |
#20
Over the last two weeks, I have tried to donate blood to the Red Cross twice. Each time, my iron was too low. I reached out to my primary physician to report and explain other symptoms. I was struggling with fatigue and procrastination, and I could feel myself slipping into depression. My primary physician ordered labs and said low iron could trigger my depression. I’ve been eating foods containing iron and hope to not need another vitamin or supplement. I learned that iron is not part of the usual autoimmune disease lab panel. I don’t understand why, since vitamin deficiency is very common among people who have immune diseases, such as myself. The standard lab panel checks for vitamin deficiencies except iron deficiency.
Sent from my iPad using Tapatalk __________________ #SpoonieStrong Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day. 1). Depression 2). PTSD 3). Anxiety 4). Hashimoto 5). Fibromyalgia 6). Asthma 7). Atopic dermatitis 8). Chronic Idiopathic Urticaria 9). Hereditary Angioedema (HAE-normal C-1) 10). Gluten sensitivity 11). EpiPen carrier 12). Food allergies, medication allergies and food intolerances. . 13). Alopecia Areata |
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