[yellowted]

does anyone know of a case where dissociative motor disorder has ever been classed as a long term substantial disability?
I was dxd 19 months ago,(i think my dx is wrong but no one is taking me serious) my condition is still deteriorating, I am unable to weight bare through my legs so use a wheelchair or scooter when not in bed, have poor core muscles, have no movement in my pelvic floor muscles so am irreversibly incontinent, my arms/hands loose power very quickly so gripping, pushing my wheelchair etc are extremely difficult, my hand/eye co ordination is poor, zips,laces, buttons are vertually impossible to do, i knock things over a lot with my hands or elbows, my arms spasm when i am tired and worse on waking up but it eases off during the day with only the odd little one, I have dxd asthma, arthritis in one knee,multiple allergies, hyperhydrosis, and irreversible incontinence. my MRI (which was done a year after my dmd dx)shows wasting pastangial muscles whatever they are, 3 disk protrusions, 2 are touching nerves in my lower spine, there is multi stage degeneration in the thoracic and lower third of my spine/disks, they found a brain but there is nothing to report about in it!!
I past point and struggle to do the hand on hand then turn one over quickly test. I find after one busy day i have to really push myself to function the following few days until i really am unable to do anything more than lay in bed getting up only for food or to change my 'nappy' on this day i either sleep most of the day or work on the computer, i do not feel depressed very often, usually only on the few days running up to my late partners birthday, or when my care team leave me dangling not knowing what or when they are going to treat me (presently they are considering putting me into a neuro psychiatric rehab unit but dont even know the admission procedure Cant say if, when or for how long i would be in they are talking three to six months but thats all i know. my cercumstances are such that i live alone in the detatched house i own, the bathroom, loo and my bed are upstairs, the kitchen is downstairs, i have been given half a ramp(i made the bottom bit myself last summer after being given a wheelchair but no way of getting it out of the house!), a bath lift, but no means of getting upstairs to use it (i pull up each stair by pulling on the hand rail and pushing with my other hand off the stair, i slide down like an 18 month old!!) DMD is classed as a m/h condition not a physical one so adult services refuse to take me on, and will not apply for a grant to adapt my home, M/H team will not apply for the grant because DMD usually gets better in a few months though i have seen an email in which my social worker stated because of the duration i will likely have difficulties for many years to come!! but still she will not apply for the adaptions. the only help i get is a PA 20 hours a week to help me bathe dress keep my home tidy/clean and help me swim and shop once a week!
I have to shuffle on my bum along the landing to get to the bathroom when she is not around, and to get onto my bed i have to pull on the opposite side or push and belly flop then try to turn over and move round the right way, yhis has been going on for almost two years now, surely the duration is sufficiant to be classed as long term substantial (the apparent criteria needed to get the grant) all i want to do is live safely in my home, for me and my PA to be able to safely access and leave my home, and be able to move around my home without taking the door frames with me! is this too much to ask for?

[(JD)]

I wouldn't know why not, any dissociative disorder can be when the communication impedes function.

For those not knowing about this disorder, may I post it's description?

A dissociative disorder is a defense mechanism in which one's identity, memories, ideas, feelings, or perceptions are separated from conscious awareness. They can't be recalled or experienced voluntarily. The following are considered types of dissociative disorders:
# dissociative amnesia
# dissociative fugue
# dissociative stupor
# trance and possession disorders
# dissociative motor disorders
# dissociative convulsions
# dissociative anesthesia and sensory loss
# mixed dissociative (conversion) disorders

Each of these types of disorders has specific ways in which the symptoms of dissociation are shown. However, they all share the use of separation of emotions or behavior from the person's conscious thoughts.

[yellowted]

thankyou x