 |
| FAQ/Help |
| Calendar |
| Search |
 |
|
advertisement
Forums Index
|
| Reply |
| Thread Tools | Display Modes |
|
|
Forums Index
|
| Reply |
| Thread Tools | Display Modes |
|
Junior Member
Member Since Mar 2011
Posts: 13
13 |
Apr 01, 2011 at 05:14 PM
#1
I've been seeing a rheumatologist these past 2 months because my joint/muscle pain got so bad it became debilitating and I could not get out of bed. I'm 19, and I've been dealing with this issue since I was 13 and it's only gotten worse. When I was 13, it was discovered that my knee bones turn inward and grind against each other which causes some of my pain, but my doctors did nothing to treat it. When I was 15, I went to a doctor who told me everything was all in my head, which is why I didn't see anyone else until recently, out of necessity.
This new doctor has told me that I have fibromyalgia as well as "something else". He told me that it might be lupus, arthritis, or some other autoimmune condition. After numerous tests and visits, however, he still has not told me what exactly I have! Has he just not figured it out yet? Why don't I know? I'm frustrated 
|
|
 Reply With Quote
|
|
who reads this, anyway?
Member Since Oct 2006
Location: Appalachia
Posts: 9,968
17 
|
Apr 01, 2011 at 07:10 PM
#2
Have you had xrays? Has your doctor ever said that you might have chondromalcia/patellofemoral syndrome? In that condition the muscles on the inside of the thigh are weaker than those on outside thigh which causes knee cap bone to be off center. I have that condition and there are exercises you can do to strengthen the weaker muscles.
http://saveyourself.ca/tutorials/pat...n-syndrome.php __________________ The purpose of life is not to be happy. It is to be useful, to be honorable, to be compassionate, to have it make some difference that you have lived and lived well. anonymous |
|
|
Reply With Quote
|
 ina91
|
|
Wandering soul
Member Since Apr 2010
Location: Off yonder
Posts: 6,019
14
|
Apr 02, 2011 at 02:00 PM
#3
Not that this will help or be of much comfort, but some times they don't know and are still trying to figure it out themselves. It doesn't mean you shouldn't keep pushing for answers, for help, and care to manage and treat symptoms in the process. The body can be such a mystery at times especially with autoimmune things if that is what it is. Keep on the doc and go for other opinions too if necessary and in the process to find the care you need.
|
|
|
Reply With Quote
|
|
ina91
|
|
Elder
Member Since Nov 2008
Location: Sunny East Coast Florida!
Posts: 6,873
15 542 hugs
given
|
Apr 03, 2011 at 06:26 PM
#4
ina, i would pursue this until you get a definitive answer. go get a second, third, etc opinion if need be. there are competent docs out there and many who are not.
my son was born with a rare disease. he was very ill from birth. i took him to a diagnostic hospital well known and they told me "he had no illness, i was just an over-protective mother". i had given them the family history of this disease also. turns out that is exactly what he had.) i finally was so desparate that i scheduled to see a new doc. told him my concerns for my son. i said if you're not interested in helping me with my son then don't waste my time. not too tactful but i was so over it and scared. you keep pushing onward to get to the bottom of this.  please keep us posted.
__________________ Do not let your fire go out, spark by irreplaceable spark, in the hopeless swamps of the approximate, the not-quite, the not-yet, the not-at-all. Do not let the hero in your soul perish, in lonely frustration for the life you deserved, but have never been able to reach. Check your road and the nature of your battle. The world you desired can be won. It exists, it is real, it is possible, it is yours..~Ayn Rand |
|
|
Reply With Quote
|
| Reply |
This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
|
My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
Linear Mode
