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#1
May 13, 2014, 07:10 PM
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Does anyone here suffer with EDS-Hypermobility Type? I'd love to meet others dealing with EDS in addition to mental health conditions
 -------- Female, 33 |
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#2
May 14, 2014, 06:57 PM
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So far evidently not. I hope you can find someone to talk to about it.
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#3
Jul 01, 2014, 06:01 PM
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Actually, EDS kinda runs in my family. My sister has it quite severely, the hypermobility type (that's the really flexible kind if I am not mistaken), I might have it to a much lesser degree as well as my mother and another sister.
We all suffer/ have suffered from mental illness, though I am currently dealing with a cancer at the moment too, which obviously isn't ideal for my family's mental health  Regardless, my sister is quite knowledgeable on EDS, and has currently mental health concerns pre-dating my diagnosis. So you're not entirely alone!Soon to be cancer survivor!! What-what! |
 SnakeCharmer
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#4
Jul 01, 2014, 09:31 PM
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I am currently getting tested for EDS as one of my friends proposed I bring it up with my doctor (most of my symptoms are skin related I do believe) so I should know soon enough. Quite honestly the last thing I want ontop of chemotherapy, but alas.
congrats mich!
__________________
“You are so brave and quiet I forget you are suffering.”. |
 Mich90
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#5
Aug 01, 2014, 05:07 AM
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You might find this site helpful: http://www.ednf.org/ .
It includes links to US-based support groups.
__________________
The world is everything that is the case. (Wittgenstein, Tractatus Logico-Philosophicus) Knowledge is power. (Hobbes, Leviathan ) |
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#6
Oct 21, 2014, 12:32 PM
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I have EDS, I was diagnosed by the age of 1-2 because I was born with Kyphoscoliosis. So far, I'm the only one in my family with it actively. I inherited my from my dad, but he's not that hypermobile as me.
__________________
"I know you're afraid to open your eyes too scared of what you'll see Because this girl standing before you is not who she once used to be..."     |
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#7
Oct 21, 2014, 01:33 PM
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I have it. My mother probably does too, but she's never been tested.
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#8
Jan 09, 2015, 06:03 PM
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I was just dxd with Ehlers-Danlos syndrome and read Joint Hypermobility Handbook, which is so enlightening. It effects everything on me: gastroparesis, hyperextension of joints, loose joints, occipital headaches, chronic migraines, cervicalgia, lumbar & SI pain, herniated spinal discs, heavy periods, frequent fxs, poor eyesight that is progressive, Raynauds with numbness, and hypotension. I don't know if it's the EDS that causes my major depression, or a fun, little coincidence. But it makes some days unbearable I think, I can't do this anymore.. Right now I have bronchitis and my asthma is bad, it's overwhelming.
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#9
Jan 09, 2015, 06:06 PM
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Yes! Just dxd recently. I began w sxs at 8 or 9, by 13 I was on my first antidepressant, since then it's just gotten worse, all of it.. I'm overwhelmed and considering ECT.
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