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  #1  
Old Feb 15, 2015, 08:21 AM
gloamingone's Avatar
gloamingone gloamingone is offline
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Hi! I'm interested in connecting with women who have PCOS (polycystic ovarian syndrome). Sorry if I put this in the wrong section!

I'm pretty sure I have PCOS and go in to the doc's in a few days for evaluation. Im not one to diagnose myself with diseases I read about online, but this hit so close to the mark!

Symptoms: obesity (most of the weight in my middle), prediabetic, high triglycerides and cholesterol, sleep apnea, terrible cystic acne on my lower face extending to my neck, depression and anxiety, skin tags, and my periods have started becoming irregular. There are others, but those are the main ones.

My primary never picked up on it (he says he doesn't deal with "womens' issues") but now I've got a new doctor. I'm really hoping I'm taken seriously. If I do have PCOS, it would explain so many things going on with my health!

Anyway, if you have PCOS, please contact me. Thanks!

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  #2  
Old Feb 16, 2015, 01:58 AM
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growlycat growlycat is offline
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Hi Glomingone!

I have had PCOS since my 20's and my condition was actually not picked up by my primary care doctor, but my dermatologist!!! All the things you describe do align with PCOS. I really believe there is a link to PCOS and diabetes. I was pre-dibatic for years then I was over the blood glucose tipping point at age 35.

Losing weight has been a big struggle, even with regular exercise. However, getting my blood sugar down seems to help with all symptoms. If my sugar levels are normal, so is my period.

The one frustrating thing I have found is that dr.'s, including endocrinologists, don't really help you manage it unless you are trying to get pregnant. What if I just want to be healthy? Dr's like prescribing the pill but I can't take it due to severe reactions to progestins (bruising etc)

I hope you find a great dr. It makes a difference. Makes me mad to think that a dr doesn't "deal with women's issues".
  #3  
Old Feb 16, 2015, 07:46 AM
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gloamingone gloamingone is offline
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Location: New Mexico
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Quote:
Originally Posted by growlycat View Post
Hi Glomingone!

I have had PCOS since my 20's and my condition was actually not picked up by my primary care doctor, but my dermatologist!!! All the things you describe do align with PCOS. I really believe there is a link to PCOS and diabetes. I was pre-dibatic for years then I was over the blood glucose tipping point at age 35.

Losing weight has been a big struggle, even with regular exercise. However, getting my blood sugar down seems to help with all symptoms. If my sugar levels are normal, so is my period.

The one frustrating thing I have found is that dr.'s, including endocrinologists, don't really help you manage it unless you are trying to get pregnant. What if I just want to be healthy? Dr's like prescribing the pill but I can't take it due to severe reactions to progestins (bruising etc)

I hope you find a great dr. It makes a difference. Makes me mad to think that a dr doesn't "deal with women's issues".

Thanks for answering! The biggest thing I worry about is lack of support from my medical team. Will the gynecologist listen? Will she order the tests? If it is PCOS, will she do anything about it?

I'm also worried they'll tell me I'm too old to have PCOS, but these symptoms have shown up gradually over the past five years. I've read it's rare to develop it this late, but possible.

My health has deteriorated so much. I seriously don't even recognize myself when I look at pictures taken five years ago. No acne, slim, healthy. My exercise regime and diet haven't changed much, so where did these 40 pounds come from???

Anyway, thanks so much for your reply! I can't wait to see my doctor on Friday.

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Thanks for this!
growlycat
  #4  
Old Feb 16, 2015, 09:38 AM
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gloamingone gloamingone is offline
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Member Since: Feb 2014
Location: New Mexico
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My boyfriend, who's a paramedic, tested my blood glucose level first thing this morning, and it was high. So I probably have left prediabetes and landed in diabetes land. Then I stepped on the scale. Despite exercising and eating better, I've gained five pounds in four weeks. This is ridiculous!

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  #5  
Old Feb 17, 2015, 08:58 AM
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growlycat growlycat is offline
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Testing for PCOS usually involves a transvaginal ultrasound--not fun. I hope you are ok and that your treatment team is responsive. Aside from the pill, it is common to be prescribed Metformin too. Good luck with your upcoming appointments!
  #6  
Old Feb 17, 2015, 12:23 PM
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gloamingone gloamingone is offline
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Member Since: Feb 2014
Location: New Mexico
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Quote:
Originally Posted by growlycat View Post
Testing for PCOS usually involves a transvaginal ultrasound--not fun. I hope you are ok and that your treatment team is responsive. Aside from the pill, it is common to be prescribed Metformin too. Good luck with your upcoming appointments!

Thank you! Ugh, I hate those kind of ultrasounds. They're so uncomfortable!

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