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Grand Poohbah
Member Since Jun 2015
Location: USA
Posts: 1,890
9 387 hugs
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Feb 17, 2016 at 04:45 PM
#1
I've had lupus since 1998 and lupus related kidney issues for several years now. I was just wondering if there are others like me out there? If so and you want to talk you can PM me or leave a post here.
Healthy thoughts,  BlueEyedMama |
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 Pikku Myy
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Grand Magnate
Member Since Jun 2009
Location: US
Posts: 3,103
15 4,904 hugs
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Feb 18, 2016 at 01:38 AM
#2
I have some chronic autoimmune issues... not yet too bad. Somehow learned to deal with them
 I know there are others with lupus here And they will reah out. Glad you are here
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Jimi the rat
Member Since Dec 2008
Location: Northern Europe
Posts: 6,291
15
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Feb 18, 2016 at 02:57 AM
#3
I have lupus with negative anti dsdna. That means I don't have a lot of kidney involvement. I just have things like severe fatigue, constant deficiencies, pains and aches, getting every sniffle and cold that will last for weeks or turn into pneumonia, reactions to exertion and sun sensitivity.
I am in a good spell since a few years with a lot, not much pain, a little better not getting sick all the time, I can tire myself out without getting fevers and end up in bed, I tolerate sun in the shade. On the other side, the deficiencies run wild. I am not in any treatment else than the connected Hashimoto's. I opted out of prednisone treatment, I'd rather die than have it. |
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Member
Member Since Jan 2011
Location: Pennsylvania
Posts: 340
13 259 hugs
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Apr 11, 2016 at 01:29 AM
#4
My permanent roommate is multiple sclerosis. Does that count?
__________________ Psoriatic Arthritis, Borderline Personality Disorder, and about a 100 other things. 
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Member
Member Since Apr 2016
Location: Chicago
Posts: 68
8 69 hugs
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Apr 18, 2016 at 07:37 AM
#5
I was just going to write a lupus/autoimmune related post and you beat me to it.
 I was first diagnosed with ulcerative colitis when I was about 28 years old. I've had the symptoms for many years before that. Then in 2014 I was diagnosed with Lupus after a doctor seeing that tell tale rash on my face and a crazy high ANA. I wonder if I've had lupus all along and that caused the ulcerative colitis or if the ulcerative colitis made me vulnerable to lupus. I hear that when you have one autoimmune disease, you can wind up with others as well. I am also being tested for RA. RA runs in my family. My joints always hurt. |
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This is an old thread. You probably should not post your reply to it, as the original poster is unlikely to see it.|
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My Support Forums is the online community that was originally begun as the Psych Central Forums in 2001. It now runs as an independent self-help support group community for mental health, personality, and psychological issues and is overseen by a group of dedicated, caring volunteers from around the world.
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