FAQ/Help |
Calendar |
Search |
Grand Poohbah
Member Since Jun 2015
Location: USA
Posts: 1,890
9 387 hugs
given |
#1
I've had lupus since 1998 and lupus related kidney issues for several years now. I was just wondering if there are others like me out there? If so and you want to talk you can PM me or leave a post here.
Healthy thoughts, BlueEyedMama |
Reply With Quote |
Pikku Myy
|
Grand Magnate
Member Since Jun 2009
Location: US
Posts: 3,103
15 4,904 hugs
given |
#2
I have some chronic autoimmune issues... not yet too bad. Somehow learned to deal with them I know there are others with lupus here And they will reah out. Glad you are here
|
Reply With Quote |
Jimi the rat
Member Since Dec 2008
Location: Northern Europe
Posts: 6,292
15 |
#3
I have lupus with negative anti dsdna. That means I don't have a lot of kidney involvement. I just have things like severe fatigue, constant deficiencies, pains and aches, getting every sniffle and cold that will last for weeks or turn into pneumonia, reactions to exertion and sun sensitivity.
I am in a good spell since a few years with a lot, not much pain, a little better not getting sick all the time, I can tire myself out without getting fevers and end up in bed, I tolerate sun in the shade. On the other side, the deficiencies run wild. I am not in any treatment else than the connected Hashimoto's. I opted out of prednisone treatment, I'd rather die than have it. |
Reply With Quote |
Member
Member Since Jan 2011
Location: Pennsylvania
Posts: 340
13 259 hugs
given |
#4
My permanent roommate is multiple sclerosis. Does that count?
__________________ Psoriatic Arthritis, Borderline Personality Disorder, and about a 100 other things. |
Reply With Quote |
Member
Member Since Apr 2016
Location: Chicago
Posts: 68
8 69 hugs
given |
#5
I was just going to write a lupus/autoimmune related post and you beat me to it.
I was first diagnosed with ulcerative colitis when I was about 28 years old. I've had the symptoms for many years before that. Then in 2014 I was diagnosed with Lupus after a doctor seeing that tell tale rash on my face and a crazy high ANA. I wonder if I've had lupus all along and that caused the ulcerative colitis or if the ulcerative colitis made me vulnerable to lupus. I hear that when you have one autoimmune disease, you can wind up with others as well. I am also being tested for RA. RA runs in my family. My joints always hurt. |
Reply With Quote |
Reply |
|