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Old May 11, 2016, 09:11 AM
thcguy12 thcguy12 is offline
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Member Since: May 2016
Location: Fort Collins, CO
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IS THIS CVS OR SOMETHING ELSE?

So we have been dealing with this for years - ever since I met her five years ago. She has been dealing with it since she was a teenager. She is 31 now.

She is fine 95% of the time. Her attacks are about once a month or once every two months but she can go as long as 6 months between but that is not common.

But occasionally she gets very sick. She has sweats (soaks through clothes), nausea, extreme abdominal pain (upper center chest), and vommitting. Even when she doesn't have anything to puke up the pain in soooo extreme she has to gag herself to puke up bile to make the pain subside for a little while. She takes disolvable zofran and supositories like crazy but they do no good. She gets a little relief from hot baths but only while she is in them.

It keeps her out of work around once a month. I fear she will lose her job soon.

We normally have to go to the ER. Now occasionally we get a nice doctor who gives her pain meds and nausea meds and relaxation meds and it goes away in about 5-8 hours. These meds don't really work unless done with IV.

MORE OFTEN we get hard nosed docs who believe pain meds are the devil and will only give nausea meds. They send her home eventually and it all starts again and we get to visit the ER again the next night or day.

They have done every lab, scope, scan, etc on her - the doctors say Cyclic Vommitting Syndrome but I almost feel like they say that when they can't put their finger on anything else. I mean could it be pancreatitis or something else?

We are not sure exactly what sets it off. What I have noticed would be:

-- She has anxiety which she uses marijuana to treat. Some doctors won't barely talk to her once she mentions she uses marijuana - they say that is the cause - guaranteed. She uses marijuana because actual anxiety meds seem to make her tired and out of it and she needs to work.

-- Has anyone had experience of marijuana causing this and stopping and it's cured? Right now she smoked daily but needs it for the anxiety.

-- Occasionally it will happen after a night of having drinks with friends. It could be the alcohol, dehydration, or the fact she smoked MJ to go to sleep after usually. Anyone ever had alcohol be the trigger?

-------------------------------------

I don't know what to do. I am scared for her, feel horrible, am upset, worried, etc. I don't want her to go through this or be causing it herself without knowing. It could cost her her job - don't know many jobs okay with you missing a couple days every month without warning. It also costs us a fortune - $300 just to walk in the ER door, price of meds, labs, scans, tests, drugs, time off work, etc.

I feel like I am alone just listening and watching her go through this. Needed to reach out for advice.

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  #2  
Old May 16, 2016, 03:39 PM
Skeezyks's Avatar
Skeezyks Skeezyks is offline
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Hello thcguy12: Unfortunately I have no idea what is going on here. However my reply to your post will send it back through the new posts forum. Perhaps someone who missed it will see it & reply with some useful information.

From my perspective, I think you have to go with what the doctors are telling you until your lady had done what they say to do & it becomes apparent that's not the cause. Of course, this would certainly not be the first time doctors misdiagnosed a person's condition. But until she stops smoking marijuana & stops drinking, you can't eliminate those things as the cause & there's unlikely to be any additional effort undertaken to figure out what is really happening with her.
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  #3  
Old May 18, 2016, 08:16 AM
Anonymous40413
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The doctors say marijuana is the cause - has she tried quitting it?
  #4  
Old May 19, 2016, 06:28 AM
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Perna Perna is offline
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It does sound like anxiety of some sort: Chest Pain and Vomiting: 17 Causes, Photos, and Treatments

Is it during the time before/during her period or anything? That's the first thing I thought of, that it might be hormone-related. I would go to a good gynecologist and get a work up through her/him; get blood work done, etc. Then I'd do a bit of a symptom journal and look at everything -- does she have a monthly report due at work or anything like that? Special meetings? Reviews? Group work (and has trouble with somebody in the group)?
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  #5  
Old May 24, 2016, 07:33 PM
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LonesomeTonight LonesomeTonight is offline
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Location: US
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Has she seen a holistic/integrative doctor? Just wondering if it could be some sort of food intolerance (different from an allergy) or something like that. They can be harder to detect because the reaction could take place hours or days later. I ask because I'm in the process of getting evaluated for some physical and mental health issues by an integrative doctor, and the questions and tests are so much more thorough than at a typical physical. They can check for things like yeast overgrowth, chronic Lyme, and other conditions that a typical medical doctor wouldn't bother to assess.
  #6  
Old May 26, 2016, 12:51 PM
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-jimi- -jimi- is offline
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Location: Northern Europe
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CVS is thought to be a type of migraines but if she took migraine meds with no effect I'd wonder. CVS can in rare cases be caused by abdominal seizures, migraines and seizure can come with similar symptoms despite different cause. She ever tried a seizure med?
  #7  
Old May 28, 2016, 05:42 AM
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Finniky Finniky is offline
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It sounds like Cannabinoid Hyperemesis Syndrome. It could also be CVS caused/irritated by marijuana use, which presents similarly to CHS.

Migraines are a common symptom of CVS, but only 30% of patients in the study that I am referencing, that had Marijuana related CVS, had a migraine as the trigger.

Cannabinoid_hyperemesis_syndrome Link

I highly suggest reading this research that I'm linking below as well. The research also explains what was effective in reducing or ending symptoms for their patients with CVS: click here for research: Association of Marijuana Use and Cyclic Vomiting Syndrome
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