advertisement
Reply
 
Thread Tools Display Modes
Old 03-19-2021, 05:53 AM   #21
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving May 5th ✨National Day of Awareness for Missing Murdered Indigenous Womxn, Girls and 2S
 
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,532
8 yr Member
312 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

Iím very frustrated. Thursday, March 18th 2021, an urgent care clinic told me to go to a local hospital. The urgent care- was not able to help with the my Chronic Idiopathic Urticaria flare up.

Local hospital- Nurse practitioner did not know what to do and just checked my basic vitals.

Male medical doctor- Verified my vitals. I was asked multiple times if I fell, hit my leg or was hurt by someone. Autoimmune Diseases and Rare Diseases Check-In Me: ďNo, itís called Chronic Idiopathic Urticaria. This just happens to be the worst flare up Iíve ever had.Ē

Female medical doctor- Had a little knowledge. She was aware that dexamethasone, prednisone and triamcinolone would not help at all. The first two would only cause weight gain. She failed to know that also offering to give me hydroxyzine (which I do take for emergency Autoimmune Diseases and Rare Diseases Check-In flare ups) would be a horrible idea being that I was at the hospital alone. Hydroxyzine- is a antihistamine generation one sedative. Autoimmune Diseases and Rare Diseases Check-In
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote

advertisement
Old 05-03-2021, 12:16 AM   #22
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving May 5th ✨National Day of Awareness for Missing Murdered Indigenous Womxn, Girls and 2S
 
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,532
8 yr Member
312 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

ďPeople make time for who they want to make time for. People text, call and reply to people they want to talk to . Never believe anyone who says they're too busy.Ē

ďOne of the most important ways you can help a loved one who is chronically ill is by being present.

Simply listening to someone can have a significant impact on their day and overall well-being.

We do not know how someone else is feeling unless we are willing to listen to them. Whether it be a bad day or a good day, approach each conversation with an ear. Be ready to listen.
When we listen, we are allowing the speaker to communicate their feelings. This lets us know if that person is happy, frustrated, depressed, sick, or sad. We can understand each other more clearly through positive, effective communication. We all need someone to talk with during times of joy and times of sorrow. So, when you listen, make sure to pay attention, be non-judgmental, and provide feedback. It makes a world of difference when we feel like our voice has been heard.Ē

I do not find it acceptable for people to be dismissive, part of toxic positivity and
claim to know know what a Spoonie Autoimmune Diseases and Rare Diseases Check-Inis.
Lean in, listen and learn.
.

Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Old 05-03-2021, 12:23 AM   #23
Cocosurviving
Elder
 
Cocosurviving's Avatar
Cocosurviving May 5th ✨National Day of Awareness for Missing Murdered Indigenous Womxn, Girls and 2S
 
Member Since: Sep 2012
Location: Muscogee (Creek) Nation Reservation
Posts: 5,532
8 yr Member
312 hugs
given
PC PoohBah!
Default Re: Autoimmune Diseases and Rare Diseases Check-In

Saturday was nice...very busy.

I have days when Iím very social and other times I need space and solitude.

I spoke with family and friends in Tennessee. Visited Autoimmune Diseases and Rare Diseases Check-InAutoimmune Diseases and Rare Diseases Check-Inmy dad and his wife...plus my momma and stepdadAutoimmune Diseases and Rare Diseases Check-InAutoimmune Diseases and Rare Diseases Check-In.

I didnít make it to a YMCA location...outside was decent tho....I walked 1.2 miles

I tried helping a neighbor...bless her heart a yellow jacket Autoimmune Diseases and Rare Diseases Check-In flew inside her apartment. Autoimmune Diseases and Rare Diseases Check-In She had a can of spray, opened the Autoimmune Diseases and Rare Diseases Check-In front door and it would not leave...we also have vaulted ceilings. I had a neighbor help me before with the same situation. Iíll definitely be making a trip to get spray and another broom Autoimmune Diseases and Rare Diseases Check-In. I broke my broom Autoimmune Diseases and Rare Diseases Check-In killing a spider Autoimmune Diseases and Rare Diseases Check-In Lol Autoimmune Diseases and Rare Diseases Check-In

I came across a few Spoonie Autoimmune Diseases and Rare Diseases Check-Inrunning Autoimmune Diseases and Rare Diseases Check-In groups on Facebook which is very helpful.

The month of May has several awareness causes.

Sunday- I wrote my monthly budget out, paid bills, updated my calendar and to-do-list.

Sent from my iPhone using Tapatalk
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
Cocosurviving is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 03:40 AM.

Powered by vBulletin® — Copyright © 2000 - 2021, Jelsoft Enterprises Ltd.



 

My Support Forums

My Support Forums is the online community that was originally begun on Psych Central in 2001. It now runs as an independent community, overseen by a group of volunteers & Dr. John Grohol.

 

Helplines and Lifelines

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider.

Always consult your doctor or mental health professional before trying anything you read here.