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Old 11-01-2020, 09:52 AM   #11
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Default Re: Autoimmune Diseases and Rare Diseases Check-In

I am in pain. This week got my DX of ankylosing spondylitis. The doctor is wonderful and she is going to fight for me to get on a biologic. I will do anything to not be on fire inside my body all the time. I also have Fibromyalgia on top of it. But at least they will take OFF my medical record that I am a hypochondriac!!!! (Somatic Symptom Disorder) - which just means the doctors could not figure out what we actually wrong with me.
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Old 12-14-2020, 01:14 AM   #12
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My adult daughter called yesterday...very sick. Iím her herbalist of traditional medicinals. Iím feeling much better myself. I completed my two goals for today. 1). Keep up with both my gloves 2). Donít fall from the snow and ice. I walked my dog constantly today. She will not do her main business in the snow. Lol 😂
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 12-17-2020, 05:19 AM   #13
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Default Re: Autoimmune Diseases and Rare Diseases Check-In

Well a major sell for $10 laptops had half the city at a gridlock halt for five hours. I was able to put together my DIY gift bags for Winter Solstice. Iím excited about Winter Solstice. Iím having a dinner this Friday for myself, teenager, adult daughter and my grandson. Iím gonna head to a grocery store tomorrow (later today). I have a lot of cooking to do. Iím very happy about finding a great sale on a Kitchen Aid mixer and itís in my favorite color.

Yíall take care and be safe. Enjoy whatever holidays you celebrate or if you donít celebrate any thatís just fine too.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 02-15-2021, 02:30 AM   #14
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Itís brutally cold, back to back ice and snow ⛄️ storms. I tried walking several times and it was too cold. Iíve had a few flare ups. I treated them primarily with traditional medicinals.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 02-15-2021, 02:55 AM   #15
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Iíve been doing pretty good with my depression. I stopped taking all psychotropic medications in 2018 and it was the best choice for me. After being misdiagnosed when my original diagnoses was always depression. Iíll never go to another mental provider again.

I found several things that work for me as coping skills.....music, coloring, reading, blogging, traditional Indigenous music, praying to my ancestors, chatting with folx, soaking, knitting 🧶 etc.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 02-15-2021, 09:07 PM   #16
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Default Re: Autoimmune Diseases and Rare Diseases Check-In

I'm glad you're on your way to feeling better!
Biologics helped me, so hopefully they will help you, too.
I had never considered "somatic" to mean "hypochondriac"...I didn't know that.
I guess maybe I thought it meant that they didn't know what was wrong.
Some doctors are good ones and they do all they can to diagnose and treat patients. Others are stupid and lazy.
I've had Autoimmune Hepatitis since I was a child, and it took months for them to make a diagnosis.
It seems like I hear that about autoimmune diseases quite frequently-that it takes a very long time (months, even years) to diagnose some of them. But I digress...
Anyhow, hope you feel better soon!

QUOTE=WePow;6963823]I am in pain. This week got my DX of ankylosing spondylitis. The doctor is wonderful and she is going to fight for me to get on a biologic. I will do anything to not be on fire inside my body all the time. I also have Fibromyalgia on top of it. But at least they will take OFF my medical record that I am a hypochondriac!!!! (Somatic Symptom
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Old 02-17-2021, 04:06 AM   #17
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Default Re: Autoimmune Diseases and Rare Diseases Check-In

Iím just getting back into running. I was in track in school and I continued running even after graduating college. One of my sisters also runs and my adult daughter. I walk part of the way then run part of the way. Itís definitely important to me to pace myself. I do have several autoimmune diseases and rare diseases. Iím mindful of my reality.

I try to walk and run for a total of 30 minutes. I do have to break up the time because of the weather and also until I build my running stamina back up. The temperature was 7 degrees yesterday night and breathing in the cold Autoimmune Diseases and Rare Diseases Check-In air definitely triggered my asthma.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old 03-01-2021, 03:13 AM   #18
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Default Re: Autoimmune Diseases and Rare Diseases Check-In

Autoimmune Diseases and Rare Diseases Check-In

Rare Disease Day 2021 (Feb 28th) was nice.
I like awareness walks and runs. I ran for my rare diseases. I ran for my teenagerís rare diseases. I ran for all BIPOC with rare diseases. I ran for Ahmad Abrey, Finish The Run.
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#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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Old Yesterday, 12:56 AM   #19
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Default Re: Autoimmune Diseases and Rare Diseases Check-In

Dealing with a chronic illness flare up.

Resting, no walking or running until Sunday.

Dinner Autoimmune Diseases and Rare Diseases Check-In Beyond Meat plant 🪴 based, fresh acorn squash and sweet potato.
__________________
#SpoonieStrong
Spoons are a visual representation used as a unit of measure to quantify how much energy individuals with disabilities and chronic illnesses have throughout a given day.

1). Depression
2). PTSD
3). Anxiety
4). Hashimoto
5). Fibromyalgia
6). Asthma
7). Atopic dermatitis
8). Chronic Idiopathic Urticaria
9). Hereditary Angioedema (HAE-normal C-1)
10). Gluten sensitivity
11). EpiPen carrier
12). Food allergies, medication allergies and food intolerances. .
13). Alopecia Areata
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