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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
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#1
I was diagnosed with type 2 diabetes about 2 years ago. It took a while to get my blood sugar under control. Once it was doing well, I went into the coverage gap. Now I won't take my meds anymore. At first, it was because I kept telling myself I can't afford it. I don't qualify for assistance. Now I just don't want to take the meds. I quit testing myself. So I don't know how I'm really doing. Every so often I'll take my insulin so that I'm at least trying. But I will quit taking the Trulicity. Last time I got free samples, so that was good. But I'm done with this.
I even created a GoFund Me page to try to raise money for my medicine. No one cares. I haven't raised a dime. I will just take my page down. I don't care anymore. And I don't care what my doctor says either. You can't get blood from a turnip. __________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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Bob1960, Discombobulated, possum220, SprinkL3
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Member Since Mar 2020
Location: Michigan
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#2
It sounds like maybe you've moved from Type II to Type I if you're using insulin now? A lot of the insulin manufacturers have prescription assistance programs, as do many of the commercial pharmacies. There's also NeedyMeds or GoodRx if you haven't used those before.
It can be so frustrating to try to get the medications you need when you don't have coverage or much income. That being said, there are usually some ways to find workarounds. It may be helpful to ask a pharmacist or look into one of the assistance programs out there. I wish you luck! |
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SprinkL3
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SprinkL3
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
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6 49.2k hugs
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#3
I checked into programs to get meds and I don't qualify. There's no help out there. I asked my doctor and she didn't have anything I really wanted to try. Her option was to get vials instead of a pen. I don't want a vial. And I don't want to have to go to Walmart to get it. I don't like leaving my house. That's one of the reasons I'm not getting free samples of Trulicity anymore, cause I would have to drive to my doctor's office and pick it up. My agoraphobia is out of control at the moment. I have insulin in my fridge. But I won't take it every day. That way it lasts longer.
But I know I'm part of the problem and I have to do better. It's just that when I have to leave my house, I panic. I get sick to my stomach. I have one pen of Trulicity left. If I could afford it, I would prefer to drive around the corner to my pharmacy. Maybe I can ask my doctor if my step mom can pick up my medicine. That might be an option. __________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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Bob1960, Discombobulated, possum220, SprinkL3
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
Posts: 15,701
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#4
Not treating diabetes is a slow suicide with a likelihood of horrible health problems along the way. It's important to be honest with yourself and make your choices from there.
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Deilla, Discombobulated, SprinkL3
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Bob1960, Deilla, SprinkL3, unaluna
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
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6 49.2k hugs
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#5
Yea, I guess I've been in denial all summer. I figure as long as I feel fine, I'm Okay. But I won't really know until November when my doctor checks my A1C. I'm working on trying to get my Trulicity. I don't need it for another week so I have some time. It's at the pharmacy at the moment. The pharmacy is right around the corner. I just have to get the courage to drive over there. I'm afraid to ask for help because I'm a grown woman. I should be able to drive to go somewhere.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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*Beth*, Discombobulated, SprinkL3
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*Beth*
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
Posts: 15,701
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#6
Quote:
Many pharmacies deliver. Maybe yours does? __________________ |
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Deilla, SprinkL3
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Deilla, possum220, SprinkL3, unaluna
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
(SuperPoster!)
6 49.2k hugs
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#7
My diabetes stuff is refrigerated. So they won't deliver. But I did build up the courage to ask my mom if she would run by there for me. She said she would. So I am grateful for that. Once I get this, I should be good for another month. I checked my sugar and it was 124. So that's a good number.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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possum220, SprinkL3
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SprinkL3
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catches the flowers
Member Since Jul 2019
Location: Downtown Vibes, California
Posts: 15,701
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#8
2 great things! Good for you
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Deilla, SprinkL3
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Deilla, SprinkL3
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Legendary
Member Since Jan 2009
Location: Uppa Gumtree West
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#9
I just dont know why I missed this. I suppose I havent been near this area since the other thread went quiet.
I am so glad that your Mom can pick up your Trulicity for you. I take it too with other diabetes medication. My doctor threatened me with Insulin because my BAC1 levels were steadily increasing. Too bad that Covid means i cant see the diabetes educator. It is good that your levels are better. Given that you cant take other medication checking you bsl regularly will help you to maintain a level that is good for you. Like you right now I am not experiencing any physical side effects of diabetes. Somehow is is too easy to be in denial. What do you think Deilla? |
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SprinkL3
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SprinkL3
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
(SuperPoster!)
6 49.2k hugs
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#10
Yes, when you feel fine, it's easy to be in denial. I found it hard to take my insulin yesterday. I know I should do better. I have everything I need at the moment. The part I hate is having to put a needle in my belly. I would much rather pop a pill. I'll set an intention to take all my meds today. I hope you do well today too.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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Discombobulated, possum220, SprinkL3
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Bob1960, possum220, SprinkL3
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Legendary
Member Since Jan 2009
Location: Uppa Gumtree West
Posts: 19,397
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#11
Outta sight outta mind.
Yes, today is trulicity day. Mondays are when I use the injector pen to give it to myself. Is the insulin given by and injector pen or via another method. Injector pens are easy. I cant imagine doing it any other way. |
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SprinkL3
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SprinkL3
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
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6 49.2k hugs
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#12
I use a pen for both Trulicy and my insulin. Yes, the pen is convenient. I also take Metformin.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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SprinkL3
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possum220, SprinkL3
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Member Since Nov 2019
Location: Tennessee
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#13
My girlfriend took Metformin for years till she got stage 3 kidney damage from it her doctor said. She then took another kind of pill for a few months and now uses a pin shot. Her BG right now 411.
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Discombobulated, SprinkL3
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Threadtastic Postaholic
Member Since Dec 2018
Location: New Jersey
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#14
Quote:
Have you looked into patient assistance programs? __________________ "I carried a watermelon?" President of the no F's given society. |
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SprinkL3
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SprinkL3
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
(SuperPoster!)
6 49.2k hugs
given |
#15
Quote:
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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SprinkL3, unaluna
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#16
Deilla,
I'm so sorry you struggle with Type II Diabetes. And so many people these days - esp. during the politics of this pandemic - tend to blame people for their diabetes and obesity/metabolic disorder. There are so many things that cause obesity, including mental illnesses and sleep-wake disorders, genetic predispositions coupled with environmental factors (such as trauma, stress), and hormones that fail to work properly in terms of telling us when we're full or hungry. There are some books on how to reverse diabetes, which you could try. The problem is that if the underlying problem isn't just food (most of the time, it's not), then it could be mental illness, endocrine system issues, genetic factors, and incurable sleep-wake disorders. Sadly, PTSD (especially childhood traumas and non-traumatic adverse childhood experiences/ACEs) is one of many risk factors for obesity and Type II Diabetes. It's not always something that we can control, or if it is, by the time we discover the problem, it's too late. There was no forewarning from any of our treatment teams, which makes it harder for us to prevent. Also, the only prevention measures out there (Medicare has one now) are for people who meet a certain threshold, such as being prediabetic, obese with high blood sugar, etc. They should be preventing diabetes long before someone becomes obese or even overweight, such as with those who have PTSD, sleep-wake disorders, and genetic predispositions. Sadly, many free programs that are offered through Medicare are no longer available because even the medical field victim-shames and victim-blames those with prediabetes and diabetes. In Idaho, for instance, the numbers that Medicare lists for the free prediabetes program to reverse diabetes are answered by rather judgmental YMCA persons who stated that "Medicare doesn't pay them enough" and that "obese persons can join their gym." That was the most ignorant statement from any non-medical professional I've ever heard. I plan on reporting them to Medicare in the future, but I'll wait a few months before I do so. Once you have diabetes, many people are reluctant on helping because they figure that half our country has diabetes, and that the government or individuals should fix it. Many people think it's the individual's fault, or the fault of fast-food restaurants, etc. The truth of the matter is that it's a combination of many factors, including being predisposed through childhood traumas, PTSD, sleep-wake disorders, constant stress, constant traumas, etc. So when you try to ask for funds on gofundme, you might have a really challenging time now that people see the elderly and obese for the blame of Covid-19 pandemic restrictions. I've heard some pretty mean statements online and locally, which only makes the stigma on aging and obesity that much more. You could be more vague about your medical condition and just request funding for medications that you cannot afford out of pocket. That might help a little more, if that's possible. I'm so sorry you are struggling in this area. I hope you can address your thoughts and feelings about these meds with your doctor. Your doctor might know of alternative treatments that are less expensive. I wish that there were ways they could find a cure for diabetes, or at least a pill to reverse its effects, depending on the etiology of diabetes. I don't think it's weight alone that creates diabetes, since there are many obese persons who don't have diabetes. There are also normal-weight persons who have diabetes, too. ((((safe hugs)))))) |
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Deilla
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Deilla
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
(SuperPoster!)
6 49.2k hugs
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#17
I'm struggling once more. I need insulin. I will ask my doctor if she has any samples. Otherwise, I'll have to cut the dose in half until I can afford to buy more.
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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Discombobulated, possum220, SprinkL3, unaluna
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#18
Quote:
(((safe hugs))) |
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Deilla
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unaluna
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Legendary
Member Since Jan 2009
Location: Uppa Gumtree West
Posts: 19,397
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#19
Quote:
I hope you can work something out to get this insulin. |
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Deilla, SprinkL3
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Deilla, SprinkL3
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Legendary Wise Elder
Member Since Oct 2017
Location: Limsa Lominsa
Posts: 29,401
(SuperPoster!)
6 49.2k hugs
given |
#20
__________________ ‘Live for now,’ ‘This too shall pass,’ ‘Everything is happening for my good.’ |
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Discombobulated, possum220, SprinkL3
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Discombobulated, SprinkL3
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