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  #1  
Old Jan 22, 2014, 10:14 PM
innocentjoy's Avatar
innocentjoy innocentjoy is offline
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Location: Canada
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I was talking to a friend once who said she worked in a hospital and a girl came in with a letter explaining her issues, and the treatment from staff that helped most. I thought it might be a good idea for me, but have no idea where I would start.

Anytime I have to go to a hospital, or walk in clinic (and I get horrid migraines that often involve dr intervention) I get extremely triggered and switch to my youngest (anywhere between 2-6 years old - it changes sometimes). Because I'm an adult (the body) people expect me to act like this and because she is so young she has a difficult time explaining what's going on, she's always so afraid of getting in trouble.

I thought it might help to write a note explaining that I have a dissociative disorder where I switch personalities, and that hospitals are triggering because I dont know what's happening, there are a lot of weird lights and noises, and I've had scary experiences relating to hospitals. I might even add that it helps when I'm explained things in simple language, spoken to gently, and asked to see if I'm understanding. Basically if I'm acting like a child would, chances are it's a child you're speaking to, even if my body is an adult.

I just don't know what else might go in it, or how staff would react if I handed it to them, but I would feel safer if there was a way of explaining things to the staff in case I'm alone with no one to advocate for myself.

thoughts? Ideas?
IJ
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  #2  
Old Jan 22, 2014, 10:34 PM
Claritytoo Claritytoo is offline
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I think it might be good to put your Dr contact information on it. This way they can also call you Dr and let them know where you are.
  #3  
Old Jan 23, 2014, 05:49 PM
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innocentjoy innocentjoy is offline
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That's a good idea. At the very least they would know I have a Dr backing up the diagnosis.

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__________________


“Courage doesn't always roar. Sometimes courage is the little voice at the end of the day that says I'll try again tomorrow.”
― Mary Anne Radmacher
  #4  
Old Jan 24, 2014, 12:05 AM
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cryingoutloud1 cryingoutloud1 is offline
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may help to get an index card and write your diagnoses and medications on it . as well as emergency contacts and triggers. you may want to keep it with you. for emergency situations.
  #5  
Old Jan 24, 2014, 08:19 AM
Claritytoo Claritytoo is offline
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That's a good idea because you can get the card laminated so it will last.
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