[hurtingintn]

i had never in my life heard of this syndrome until open chat last week when someone asked me about this and my son..i have done lots of research on the subject since then and it definately sounds like we might be a bit closer to this dx...anyway tomorrow is our BIG day to go back to vanderbilt to his doc and i will definately be discussing this along with 2 other topics i am very worried and concerned about..right now my emotions are running absolutely wild...i am feeling..sad, confused, mad, hurt, angry, frustrated, terrified, worried, upset, and many more i didnt even know existed..we have never had to go through anything like this before and i am so pissed at all the doctors...they all think giving medication will cure everything...i might end up in jail after this doctors visit tomorrow cause they are the ones threatening to call the dhs on me if i dont make my son take this medication..i flat refuse to..ok to back up a bit..he was dx with diabetes 7 months ago...was put on 2000 mgs of metformin a day..when he takes this med his blood sugar level bottoms out in the 30's...i dont have to tell you what that means..his blood sugar is running for the past few months at around 60 - 80 and that is withOUT the medicine...so that is why i refuse to make him take it..and that is why the doc (pediatric endocrinologist) at vandy is threatening me because i am refusing him medical attention that a specialist has prescribed...i am quiet sure that after our visit tomorrow i will be getting him another specialist to get a second opinion..so wish me luck all..im gonna need it ...anyway here is a link that i am printing out and taking with me tomorrow...take care all and stay safe...oh and dont worry..IF i get the cops called on me and put in nashville jail i have already made arrangements for someone to come and bail me out LOL hopefully that wont be needed...just really scared and anxious about this appointment tomorrow because i know myself and i will NOT back down to the freaking docs anymore..not when it is causing more harm to my son than good with the treatment they are insisting.

http://www.vanderbiltchildrens.com/i...&profile_id=33

[BlueFaith]

(((( hurtingintn ))))) I hope things go well for you. I take my daughter to Vanderbilt, too. They, so far, have done nothing but tell me things I've already been told by other specialists.... haven't done anything at all to help with the problem. I'm not saying the docs there are bad or anything like that, because I'm sure they help many people. But, we haven't had any such luck yet. I'm sorry to know that you are having similar issues. I hope you can present them with the information you have researched and actually get somewhere with it. I'm with you.... doctors are great and I'm glad we have them and I'm happy that they have the ability to help people... but, we do know our children, too. We are there with them through it all, and we see everything that happens. I wish you the best for tomorrow. Let me know if you ever want to talk.